29/07/2025
Being Present While Caregiving for a Loved One with Dementia Jodi Glacer - Senior Care Authority, Palm Beach County & North Broward
Caring for a loved one with dementia is a profound and unexpected journey. Heartbreak, confusion, frustration can stack up as you realize that it is so much more than managing appointments, ensuring safety, or helping with daily activities — it is a deeply emotional experience that can reshape your sense of self, your relationships, and your mental well-being.
One of the most common emotions family caregivers report is grief, even while their loved one is still physically present. Often referred to as anticipatory grief—grieving the gradual loss of the person’s personality, memories, and independence, this can be very confusing to navigate. The parent, partner, or friend you once knew may begin to fade, replaced by someone whose needs are constant and whose communication becomes increasingly difficult.
Guilt is another powerful and persistent feeling. Caregivers often struggle with questions that may sound like: Am I doing enough? Why do I feel frustrated? Should I feel relief when I get time away? These internal conflicts can be emotionally exhausting, especially when compounded by societal or familial expectations, not to mention long-term family relationships.
Right alongside guilt is frustration and/or anger—with the disease, with the behavior changes, and often with oneself. Simple tasks can become prolonged challenges. A loved one may no longer recognize you or may act out in anger or fear. These moments can leave caregivers feeling helpless or ashamed, despite their best intentions.
Isolation and loneliness are common, as well. Friends and even family members may drift away, unsure of how to help or what to say. Social plans get canceled, hobbies fall by the wayside, and suddenly the world seems to narrow into a cycle of tasks and caregiving responsibilities. All of this contributes to chronic stress. The emotional toll, combined with physical fatigue, can lead to burnout, anxiety, or depression if left unaddressed.
On the other side of all of this is resilience. Many caregivers describe unexpected moments of deep connection—holding hands, sharing a laugh, seeing a flash of recognition in their loved one’s eyes. These moments, however brief, are often what keep caregivers going.
If you are caring for someone with dementia, know that your emotions are valid. You are not alone. Seek out support groups, therapy, respite care, and educational resources. Caring for yourself is not a luxury—it’s a necessity.
At its essence, being present for someone else starts with being present for yourself. You are not alone—Reach out to Senior Care Authority today for expert guidance and compassionate support.
Jodi Glacer CSA©, CDP
Area Owner | Assisted Living Advisor | Eldercare Consultant
Senior Care Authority
Main:(561) 303-2242
www.seniorcareauthority.com/southfl/ [email protected]