Beta Cell

Beta Cell The award-winning podcast about people living with type 1 diabetes. The EIN for Beta Cell Action is 92-2603887.

Beta Cell Action lobbies for federal legislation that eliminates barriers to accessing insulin and other diabetes medications and devices. We endorse federal lawmakers and candidates who share our belief that diabetes care should not be for profit. Beta Cell Action is a 501(c)(4) organization, which focuses on advocacy and legislative work. Because Beta Cell Action fights for affordable insulin by organizing around critical elections and key legislative battles—donations are not tax-deductible.

Call your lawmakers with our handy script at betacellaction.substack.com (link in bio). You’ll also find tips for how to...
12/11/2025

Call your lawmakers with our handy script at betacellaction.substack.com (link in bio). You’ll also find tips for how to navigate diabetes without insurance.

24 million people rely on ACA plans for their health insurance coverage, which includes everyone from small business owners, contractors, farmers, and early retirees who don’t yet qualify for Medicare. Many of these individuals can only afford plans because of the enhanced subsidies passed by Congress in 2021 to make health insurance more affordable during the pandemic. Those subsidies have now expired. Without them, consumers lose a large portion of federal support that helped to keep monthly premiums manageable. Democrats kept the government in its longest shutdown ever because they wanted to extend these enhanced subsidies to keep ACA plans affordable. Republicans said they will only negotiate these subsidies after the government is funded.

If Congress fails to extend subsidies, premiums could double next year for many plans. The exact amount depends on where you live, your income, and the plan you choose, but the average person will pay roughly twice as much for the same (or in some cases worse) coverage. ACA plan coverage thus far has not been comprehensive for people with diabetes and in the face of rising premiums, many won’t be able to afford these higher costs and will have to forgo coverage or choose high-deductible plans. For people with diabetes, access to healthcare is critical. Without it, paying the list price for insulin, oral medications, glucose testing supplies, and insulin pump supplies can be thousands of dollars per month–just one month of insulin pump supplies can cost $800 a month. On top of that, paying for endocrinologist appointments, blood works (which are often required to get certain prescriptions), retinopathy exams, and more can add up too.

Continued on the Beta Cell Action Substack…

Beta Cell Action is launching a new campaign to provide specific, easy actions you can take to make a positive differenc...
23/01/2025

Beta Cell Action is launching a new campaign to provide specific, easy actions you can take to make a positive difference for people living with diabetes. These actions won’t address everything that is terrible, and we might miss things and make mistakes (we are only a 3-person team volunteering our time to this project), but we are doing our best to highlight simple yet effective steps you can take. There are going to be a lot of things to do in the coming days and years, and collective action is our best way forward.

So let’s lower our cortisol levels a tad (and maybe even out our BGs) and take the steps we can right now.

Check the link in bio for the full Beta Cell Action newsletter.

On this  , Beta Cell Action looks at how Trump’s administration is going to change healthcare for diabetics in the U.S.—...
14/11/2024

On this , Beta Cell Action looks at how Trump’s administration is going to change healthcare for diabetics in the U.S.—and our plan to counter it. 🔗 in bio.

Want to be a part of the resistance? Let us know.

This is why coupons are not the answer for high list prices for drugs. Companies like Eli Lilly and Dexcom can change th...
28/08/2024

This is why coupons are not the answer for high list prices for drugs.

Companies like Eli Lilly and Dexcom can change the price at any time for people who rely on medications and devices to stay alive.

Unless there are caps on the list price, we are at the mercy of companies that care more about profits than people.

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About Beta Cell

At 13 years old, Craig Stubing started experiencing the symptoms of extremely high blood sugar. Without any experience with type 1 diabetes, his family mistook his symptoms as just puberty. Eventually, a visit to the doctor sent him to the emergency room and changed his life forever. Hear more of Craig’s story here.

Craig launched Beta Cell in 2015 as a response to an online community he felt was more about complaining than understanding each other. Through one-on-one interviews with people of all backgrounds, Craig tries to discover how type 1 diabetes impacts our lives and how our lives impact our type 1 diabetes.

To help explore the many aspects of living with type 1 diabetes, Craig created and hosts three more shows: Out of Range, a talk show about "real things diabetes;" The 3s, where people with T1D interview their friends and family; and Thicker Than Water, which documents Craig's Aunt Laura getting diagnosed with, and adjusting to, life with type 1 diabetes at 60 years old.

In 2019, Beta Cell was named the “Diabetes Podcast of the Year.”