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We are dedicated to sharing the latest news, research, and Fabry disease patient perspectives.

28/08/2025

Fabrazyme has been approved in China for ages 8 and older since 2019, but a post-approval study was done to test its safety and efficacy. https://buff.ly/Jbod6rT

Fabrazyme has been approved in China for ages 8 and older since 2019, but a post-approval study was done to test its safety and efficacy.

26/08/2025

As the parent of children with Fabry disease, columnist Susanna VanVickle understands the importance of compassion in lightening their load. https://buff.ly/QdZWgoo

As the parent of children with Fabry disease, columnist Susanna VanVickle understands the importance of compassion in lightening their load.

21/08/2025

The main part of a Phase 2 trial of AL01211 for men with Fabry disease is now completed, with positive safety and efficacy signals. https://fabrydiseasenews.com/news/acelink-therapeutics-completes-6-month-primary-phase-of-al01211-clinical-study-in-fabry-disease-patients/

The main part of a Phase 2 trial of AL01211 for men with Fabry disease is now completed, with positive safety and efficacy signals.

14/08/2025

Analyzing kidney cells from urine could provide a noninvasive way of diagnosing Fabry disease-related kidney problems, a study found. https://buff.ly/KYJmOGf

Analyzing kidney cells from urine could provide a noninvasive way of diagnosing Fabry disease-related kidney problems, a study found.

07/08/2025

Fabry disease often leads to cardiomyopathy, a serious heart condition, in both male and female patients in Finland, a study finds. https://fabrydiseasenews.com/news/fabry-often-leads-cardiomyopathy-women-men-finnish-study/

Fabry disease often leads to cardiomyopathy, a serious heart condition, in both male and female patients in Finland, a study finds.

31/07/2025

Researchers found a new Fabry mutation in two people who turned out to be related, allowing mapping of the family tree to track the disease. https://buff.ly/1Ntl8ca

Researchers found a new Fabry mutation in two people who turned out to be related, allowing mapping of the family tree to track the disease.

24/07/2025

Researchers found that Fabry disease causes changes in blood vessels in the eyes, which may help explain patients' increased stroke risk. https://buff.ly/YC5mEDS

Researchers found that Fabry disease causes changes in blood vessels in the eyes, which may help explain patients' increased stroke risk.

17/07/2025

Women with Fabry disease often see distinct challenges, including health providers having limited knowledge about it and diagnosis delays. https://buff.ly/dSL1WDK

Women with Fabry disease often see distinct challenges, including health providers having limited knowledge about it and diagnosis delays.

10/07/2025

Fabry disease patients face a higher risk of renal cell carcinoma, a study found, and researchers recommended routine screening. https://buff.ly/2KMMKu8

Fabry disease patients face a higher risk of renal cell carcinoma, a study found, and researchers recommended routine screening.

03/07/2025

Fatty deposits called myeloid bodies in urine may help diagnose Fabry disease and monitor response to treatment, a study found. https://buff.ly/usx2dU7

Fatty deposits called myeloid bodies in urine may help diagnose Fabry disease and monitor response to treatment, a study found.

01/07/2025

Acute gastrointestinal issues gave columnist Susanna VanVickle a greater sense of empathy for her children's Fabry disease symptoms. https://buff.ly/d4uR2yR

Acute gastrointestinal issues gave columnist Susanna VanVickle a greater sense of empathy for her children's Fabry disease symptoms.

26/06/2025

Patients saw better kidney function measures in the year after receiving a single dose of Fabry disease treatment ST-920, trial data show. https://fabrydiseasenews.com/news/fabry-disease-treatment-st-920-improves-kidney-function-data/

Patients saw better kidney function measures in the year after receiving a single dose of Fabry disease treatment ST-920, trial data show.

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