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Fabry Disease News Your source for FAB news, support & real stories from the community. Let’s raise FAB awareness🎗️

When someone asks if the neuropathic pain or the kidney problems are gone yet… 😅Nope—still managing one day at a time. 💪...
05/06/2026

When someone asks if the neuropathic pain or the kidney problems are gone yet… 😅

Nope—still managing one day at a time. 💪

Do you think Fabry disease only causes a few visible symptoms? If so, click this link to learn more: https://f.mtr.cool/...
29/05/2026

Do you think Fabry disease only causes a few visible symptoms? If so, click this link to learn more: https://f.mtr.cool/eaerxvvscb

Common signs include neuropathic pain (burning, tingling), skin angiokeratomas (dark red spots), sweat-and-heat intolerance, gastrointestinal issues, and over time, organ involvement (kidneys, heart).

A dose of Addition’s RNA-based gene therapy for Fabry disease produced long-lasting levels of the missing alpha-Gal A en...
28/05/2026

A dose of Addition’s RNA-based gene therapy for Fabry disease produced long-lasting levels of the missing alpha-Gal A enzyme in mice. https://buff.ly/DwpJMV8

A dose of Addition’s RNA-based gene therapy for Fabry disease produced long-lasting levels of the missing alpha-Gal A enzyme in mice.

Protecting mental health is an essential part of learning how to move forward after receiving a diagnosis, says guest wr...
27/05/2026

Protecting mental health is an essential part of learning how to move forward after receiving a diagnosis, says guest writer Narah Cano. https://buff.ly/1ics8wV

Protecting mental health is an essential part of learning how to move forward after receiving a diagnosis, says guest writer Narah Cano.

Columnist Susanna VanVickle and her daughter, Marisa, embark on a magical trip to the Sanctuary of Our Lady of Lourdes i...
26/05/2026

Columnist Susanna VanVickle and her daughter, Marisa, embark on a magical trip to the Sanctuary of Our Lady of Lourdes in France. https://buff.ly/wOHgiAr

Columnist Susanna VanVickle and her daughter, Marisa, embark on a magical trip to the Sanctuary of Our Lady of Lourdes in France.

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