18/05/2023
It's wire up the noodle time. We made up that new song for today.
Earlier, I was feeling okay and now I am emotional. I am not sure if it is the adrenaline crash or the realization at just how hard this journey has been the last 10 years.
Our original doctor who has followed our case for the last decade in on rounds and this is the first time we have seen in face to face in 8 years. He saw Finn and smiled broadly commenting at how much he has changed.
As the doc spoke with us a flood of memories came rushing into my brain that included original hospital stay. I have said before I will never get used to seeing my baby like this. I never forget he has epilepsy but I am often able to tuck the fears and heaviness of his condition away. Right now, I am telling myself two things can be true at the same time. I can be weary in this journey and I can have joy at how amazing this not so little man is.
Image description :Finn laying on a hospital bed with his iPad and EEG equipment on his head.
