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The Blind Date 🦮 A blind lady talking with disabled people
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Toronto ON (3/3) “I really want people to know there’s a balance. You don’t need to be superwoman all the time and obvio...
18/10/2024

Toronto ON (3/3) “I really want people to know there’s a balance. You don’t need to be superwoman all the time and obviously I don’t want anyone to be negative all the time. But being positive but also realistic and acknowledging how you’re feeling is so important. For example, when my Botox kicks in and I feel amazing, I’m positive, like, yes, let’s do this. But once the Botox wears off, I’m not going to pretend that it’s amazing walking. No, I might need to use my wheelchair more that day and it’s okay to have a bad day. It’s okay. I really want disabled people and people with chronic illnesses, anyone just if you’re having a bad day, it’s okay. Feel that. Feel it.“ Jules

Toronto ON (2/3) “I think in my twenties a lot of it had to do with my self-esteem issues. Going to university really he...
18/10/2024

Toronto ON (2/3) “I think in my twenties a lot of it had to do with my self-esteem issues. Going to university really helped my self-esteem. I feel a lot smarter being in university, learning about social work. I also, it’s kind of silly, but two years ago I got bangs. Having bangs really increased my self-esteem as well.

Dating has been challenging. A lot of people, in my case men, are very ignorant. For example, I do use a wheelchair and a cane. They can’t seem to wrap their heads around someone using a wheelchair while walking. So I’ve been met with a lot of ignorance. When it comes to my speech, I speak slowly and I’ve been asked many times if I have an accent. However, I was born in Canada, so I just say I’m disabled.” Jules

Toronto ON (1/3) “I have generalized dystonia. Essentially dystonia is a neurological movement disorder and the dystonia...
17/10/2024

Toronto ON (1/3) “I have generalized dystonia. Essentially dystonia is a neurological movement disorder and the dystonia impacts my neck, my right hand and the way I walk. I do walk with a limp. However, 11 years ago I underwent a wake deep brain stimulation surgery and with that surgery I had two electrodes implanted into my brain and it’s connected to a stimulator that is located under my collarbone on the right side. And what that’s doing is stimulating my brain to not misfire.

I do not have as many involuntary movements. For example, before my surgery, I could not hold my head up on my own but now I can.

I do still walk with a limp and with my walking I do get Botox treatments, which is amazing. Dystonia is essentially the muscles being overactive. The Botox temporarily paralyzes the muscle, which really really helps my walking. I get the Botox injections in my calves and my right arm and it’s supposed to last for three months.

The first couple of weeks of getting the Botox, the Botox is kicking in and it’s like a roller coaster where the walking gets better and then by maybe like towards the last month, the Botox is getting out of my system so the walking gets a little more challenging before my next Botox injection. However, we cannot inject Botox before the three months because then you’re risking permanent paralyzation.

I appreciate when the Botox is at its peak and I utilize that by going to the gym and just being very mindful and grateful that I’m able to walk better. But then I also utilize a cane and a wheelchair so my mobility devices also really help me be independent and allow me to do things.” Jules

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