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Angelman Syndrome News Your source for Angelman syndrome news, support, & real stories from the community. Let’s raise Angelman awareness together!🎗️

Angelman Syndrome News is a digital platform providing daily updates on research, science and advice news for Angelman Syndrome patients and caregivers.

🎉 ASF's 2026 Family Conference full agenda is now live! https://asfconference.org/family-conference/📍 July 30 - August 1...
05/06/2026

🎉 ASF's 2026 Family Conference full agenda is now live! https://asfconference.org/family-conference/

📍 July 30 - August 1, 2026 in Aurora, CO

Get ready for a weekend filled with education, connection, support, and community alongside others who truly understand the Angelman syndrome journey.
✨Research and therapy updates
✨Expert-led educational sessions
✨Workshops and consultations
✨Exhibitor resources and tools
✨Social events and family connections

More than a conference, this is a place to learn, ask questions, build friendships, and feel supported every step of the way.

Still need to register? https://asfconference.org/family-conference/

GTX-102 was linked to continued developmental gains in children with Angelman syndrome, with Phase 3 results expected in...
11/05/2026

GTX-102 was linked to continued developmental gains in children with Angelman syndrome, with Phase 3 results expected in 2026. https://buff.ly/NcGMIax

While standardized assessments are necessary for advocating for her son, they don't capture the full picture, says colum...
05/05/2026

While standardized assessments are necessary for advocating for her son, they don't capture the full picture, says columnist Joelene Wand. https://buff.ly/Zo1uty0

Surgery aimed at correcting strabismus, or misalignment of the eyes, is usually successful in children with Angelman syn...
13/04/2026

Surgery aimed at correcting strabismus, or misalignment of the eyes, is usually successful in children with Angelman syndrome, a study shows. https://buff.ly/dToRxyI

10/04/2026

Take survey here: https://bit.ly/47LEtE9

Gene therapy is evolving—but what does the community really think?

We asked individuals impacted by rare diseases to share their thoughts, hopes, and concerns. Their voices matter in shaping the future of treatment 💙

What are your thoughts on gene therapy? Drop them below

Columnist Joelene Wand describes the disability equipment that allows her son, Jude, to explore the world with dignity a...
07/04/2026

Columnist Joelene Wand describes the disability equipment that allows her son, Jude, to explore the world with dignity and more independence. https://buff.ly/df8RjGt

We’re grateful to stand alongside the Angelman Syndrome Foundation in supporting the Angelman community. Their commitme...
12/03/2026

We’re grateful to stand alongside the Angelman Syndrome Foundation in supporting the Angelman community. Their commitment to advancing awareness, research, and support for families living with Angelman syndrome makes a real difference every day.

Thank you, Angelman Syndrome Foundation, for being such a dedicated partner in this work. 💙

👉 Learn more about their mission and resources: https://angelmansyndromenews.com/advocacy-partners/angelman-syndrome-foundation/

Columnist Joelene Wand is prioritizing family fun as well as developmental goals for her son, Jude, who's living with An...
10/03/2026

Columnist Joelene Wand is prioritizing family fun as well as developmental goals for her son, Jude, who's living with Angelman syndrome. https://buff.ly/F8VPTCf

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