Cystic Fibrosis News Today

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Cystic Fibrosis News Today We are dedicated to sharing the latest news, research, and patient perspectives from the CF community.

Cystic Fibrosis (CF) is a relatively rare disease, and certainly not a household term that many people are familiar with. And yet, the research community is highly active in pursuing CF research and developing novel treatments for the disease. Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of the science, medicine, and human interest stor

ies surrounding the effects of the disease, as well as the effort underway to treat and eventually cure it. The editors at Cystic Fibrosis News are committed to sourcing and covering CF stories on a daily basis, creating the first and only 24-hour news cycle for the disease. Between groundbreaking research in the lab, critical findings in clinical trials for novel CF therapies, game-changing funding announcements for furthering CF R&D, and heartwarming human interest stories that highlight the powerful Cystic Fibrosis support community, there is enough news each day to keep CF patients, their families, and other researchers informed on the progress being made in treating and curing the disease.

A port has been crucial to sustaining columnist Lara Govendo's health, but it's also been risky. It's been a love-hate r...
11/07/2025

A port has been crucial to sustaining columnist Lara Govendo's health, but it's also been risky. It's been a love-hate relationship. https://buff.ly/mATQ2Ve

🚨 Big news for the CF community in Europe! https://bit.ly/4llmAAEThe European Commission has officially approved Alyftre...
10/07/2025

🚨 Big news for the CF community in Europe! https://bit.ly/4llmAAE

The European Commission has officially approved Alyftrek — the first once-daily triple combination therapy for cystic fibrosis. 👏

This next-gen treatment is approved for people with CF ages 6+ who have at least one F508del mutation — the most common CF-causing mutation.

Why it matters:
âś… Simplifies daily treatment
âś… Expands options for younger patients
âś… Represents progress in CF innovation

Women with CF who planned their pregnancies after a lung transplant had better outcomes compared with those who didn't p...
10/07/2025

Women with CF who planned their pregnancies after a lung transplant had better outcomes compared with those who didn't plan, per a study. https://buff.ly/K8KpwaP

đź’­ Is work-life balance really possible when living with cystic fibrosis? http://bit.ly/4kkfP0xIn this column, a CF advoc...
08/07/2025

đź’­ Is work-life balance really possible when living with cystic fibrosis? http://bit.ly/4kkfP0x

In this column, a CF advocate shares how constantly pushing through work and school led to burnout — and how rethinking her schedule helped protect her health long-term.

✨ A powerful reminder that health isn’t something to “fit in” around work — it has to come first.

Delivering gene-editing tools to mice as they were still developing in the womb corrected the CFTR gene mutation that ca...
08/07/2025

Delivering gene-editing tools to mice as they were still developing in the womb corrected the CFTR gene mutation that causes CF, per a study. https://buff.ly/J9oKufx

Lara Govendo lives life with courage and compassion. In Valiant Voice, she opens up about lung transplant, mental health...
07/07/2025

Lara Govendo lives life with courage and compassion. In Valiant Voice, she opens up about lung transplant, mental health, and the emotional side of surviving CF.

Read Lara’s words: https://bit.ly/4krP5wd

The European Commission approved Alyftrek to treat CF patients 6 years and older who have at least one non-class 1 mutat...
03/07/2025

The European Commission approved Alyftrek to treat CF patients 6 years and older who have at least one non-class 1 mutation in the CFTR gene https://buff.ly/njn5UGu

At , over 375 vests have been donated across 61 countries, bringing vital respiratory therapy to children and adults wit...
03/07/2025

At , over 375 vests have been donated across 61 countries, bringing vital respiratory therapy to children and adults with cystic fibrosis. https://bit.ly/46gXYEj

Their work goes beyond equipment—they’re delivering hope, empowerment, and equity to CF patients globally.

Brad Dell doesn’t just write about surviving CF — he writes about thriving post-transplant. In Victorious, Brad shares r...
30/06/2025

Brad Dell doesn’t just write about surviving CF — he writes about thriving post-transplant. In Victorious, Brad shares reflections on faith, gratitude, purpose, and what it means to keep showing up.

Read Brad’s reflections: https://bit.ly/43FSY9r

Caregivers of children with CF in the U.S. reported delays in evaluation after their children tested positive during new...
30/06/2025

Caregivers of children with CF in the U.S. reported delays in evaluation after their children tested positive during newborn screening. https://buff.ly/CKR9e6s

Navigating financial aid for CF care can feel overwhelming, especially when you're just starting out. Share your tips an...
29/06/2025

Navigating financial aid for CF care can feel overwhelming, especially when you're just starting out. Share your tips and insights to help ease the burden for others!

Columnist Lara Govendo worked herself sick in the years before a lung transplant, but now she's working toward a better ...
27/06/2025

Columnist Lara Govendo worked herself sick in the years before a lung transplant, but now she's working toward a better work-life balance. https://buff.ly/DsZDIUe

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