Minds Matter

Minds Matter Minds Matter Musings on Dementia

24/08/2025

“Yesterday, a girl younger than my granddaughter called me ‘sweetie’ and tightened the bedrail like she was closing a suitcase.”

I laughed when she left, because laughing hurt less than crying.

Because I know a bedrail is supposed to keep you safe.

And I know what it feels like to be shut in.

My name is Ruth, and I am eighty-two years old.

I have lived in this nursing home for eleven months and nineteen days, though the calendar on my wall says twelve.

Time gets slippery in here.

Breakfast at eight, pills at nine, bingo at two, lights out at ten.

Some days it feels like a long hallway with no doors.

I didn’t plan on ending up here.

I had a little house with a garden the size of a bedsheet.

I baked on Thursdays, church on Sundays, grandkids on Saturdays.

Then my legs became stubborn, and the stairs got taller, and my daughter, Marion, began staying “just a few nights” on the couch.

We both knew what was coming.

We still pretended we didn’t.

On move-in day, a nurse with kind eyes pinned my name to a corkboard flower.

“Welcome home,” she said, and for a second, I believed her.

Back then, the hallways smelled like lemon cleaner and coffee.

There were pet therapy dogs and a choir that sang from a yellow songbook—“In the Garden,” “This Little Light of Mine.”

The aides took time to sit at the foot of my bed and ask about the pictures on my dresser.

“How old were you when you got married, Mrs. Ruth?”

“Twenty.”

“Lord, you were just a baby.”

We laughed together at how brave and foolish we are when we’re young.

That was last spring.

By summer, the choir was gone, the dogs came less often, and the faces on the night shift kept changing.

Some were still kind.

Some were hurried.

Some were hard.

I learned the rhythms.

Shift change is a storm—footsteps, whispering, the cart rattling like bones.

Supper is the quiet after it.

Night is the tricky part.

The world shrinks to the glow of the TV and the sound of someone down the hall calling, “Help,” in a voice too tired to rise above the ceiling.

My room is the last one before the fire door.

The carpet there is worn darker than the rest, where people turn and turn again.

I keep a notebook in my nightstand.

Names.

Times.

Little things that tell the truth.

“June 3, 10:35 p.m.—asked for water, told ‘Don’t be dramatic.’”

“June 12—Mary fell in shower; no call light within reach.”

“July 1—pill left on tray. Found it under applesauce cup.”

The notebook makes me feel less invisible.

It’s my way of saying, “I was here. I saw.”

There are good people.

I must say that.

Nora from the evening shift whispers, “How’s my girl?” and slips me two extra graham crackers.

She brushes my hair like it’s Sunday and my mother is watching.

Once, when the hallway was quiet, she leaned close and said, “They’re short-staffed again. Corporate keeps cutting hours.”

The word “corporate” felt like swallowing a penny—small, cold, and heavy.

Then there’s Bree.

Twenty-one, maybe.

A phone tucked into her scrub pocket, flashing like a heartbeat.

She can flip me like a pancake and change sheets in a tsunami.

She’s not cruel.

She’s tired in that way young people are now—alert to everything and present for nothing.

She says “sweetie” because someone told her to use soft words.

She tightens the bedrail because there are too many of us and not enough of her.

Still, the thumb-shaped bruise bloomed purple on my arm for a week.

When I was young, I worked the register at Miller’s Grocery.

I wore a blue apron and remembered every regular’s name.

Mr. Jonson wanted his bread not squashed.

Mrs. Kline always brought exact change.

If someone was short, I paid the difference and told them I dropped a quarter.

Not because I was a saint.

Because that’s how a community breathes—little kindnesses, unnoticed and piled up like folded towels.

So when someone says, “We don’t have time to take her to the garden,” I think of those folded towels.

How they’ve come undone.

The worst day was a Thursday.

I remember because the lunch was meatloaf, and meatloaf always tastes like a memory and a mistake.

I buzzed my call light for the bathroom.

And buzzed again.

The hallway buzzed back.

A symphony of need.

By the time someone arrived, my cheeks were wet and my pride was a crumpled paper napkin.

“Why didn’t you wait?” she said.

“I did,” I said.

That afternoon, the girl who brings the mail put a stack on my tray and said, “You’ve got a letter from your father!”

She laughed when she saw my face.

“Oops. I meant your daughter.”

I laughed too, but it stuck in my throat.

My father has been gone almost half my life.

He taught me to change a tire and to spit into my hands before a hard job.

He taught me to plant tomatoes deep, because the roots need room to dream.

I think he would have hated this place.

Not the walls or the food.

The way a person’s need becomes a problem to solve, instead of a hand to hold.

Marion visited every Sunday.

She brought strawberries, soft ones, because my teeth aren’t what they were.

She brought photos of the kids.

She tried not to look at the notebook tucked under my Bible.

“Mom,” she said, “are you sure you’re writing all this down right? Some of it might be… I don’t know… a misunderstanding.”

She meant, Are you forgetting?

She meant, Is this the beginning of something else?

I wanted to tell her how clear the bad moments are, sharper than the good, like they were cut out with scissors.

But I didn’t want to make her carry more than she already does.

So I just said, “I’m sure enough.”

There are bright times that still land like sparrows on a wire.

One morning, the sun came into the room and found me.

Nora had put a sprig of rosemary in the vase beside my bed.

“Smell,” she said, and I did.

Suddenly I was thirty-five again, roasting chicken on a snow day, my kitchen warm and the kids in socks, sliding across the linoleum like lazy seals.

I could have cried from the sweetness of it.

But I smiled instead and said, “More rosemary next time.”

We both pretended there would be a next time.

Another day, the therapy piano in the common room was free.

I haven’t played in years—my hands are stiffer than bread heels.

Still, I found “Amazing Grace” with two fingers and a thumb.

By the second verse, Mr. Alvarez from 210 was humming.

By the third, even Bree had put her phone away.

We are so hungry to be together, even in places built to separate.

The little triumph I keep in my pocket happened on a Tuesday.

I asked the administrator to come to my room.

He wore a suit that fit like it had never met a human being.

He smiled with his teeth, not his eyes.

I took out my notebook, set it on my tray, and slid it over with two fingers.

“I’m not here to make trouble,” I said.

“I am eighty-two. Trouble is a marathon I no longer run.”

“I’m here to ask for the basics. Dignity. A call light answered. A shower without fear of the tiles. A caregiver whose eyes meet mine.”

He patted the notebook like it was a sleeping cat.

“We take concerns very seriously,” he said.

“We strive to exceed expectations.”

“I don’t need ‘exceed,’” I said.

“Just ‘meet.’”

He cleared his throat and asked if I had considered that aging can feel like mistreatment when, in fact, it’s just the new limitations of the body.

“My body knows its limitations,” I said.

“Do you?”

When he left, my hands shook.

Not because I’d said too much.

Because I’d said enough.

Because I had asked for something I deserved.

Because even at eighty-two, there are muscles that haven’t forgotten their use.

Last week, Marion came on a Thursday.

Not Sunday.

She set down a folder thick with papers and said, “Mom, I’m moving you.”

Her voice wobbled like a table with one short leg.

“To where?” I asked.

“A smaller place,” she said.

“Near my house. I can stop by every day.”

She had done her homework.

She had lists and questions.

She had a spine I recognize.

We held hands for a long time.

Her palm is still the size of the little girl who used to fall asleep on my chest with her hair smelling like summer.

I went to say goodbye to the garden before I go.

It’s a small patch by the loading dock.

A few marigolds trying their best and a rosemary bush that refuses to quit.

I broke off a little sprig and rubbed it between my fingers.

It took me home the way a song does.

To my kitchen with the window over the sink.

To a blue bowl with wooden spoons.

To a husband who flirted with me when he put on his church tie crooked.

To life, with its small perfection.

On my way back, I saw Mary from 207.

She was waiting for someone to take her to the bathroom.

Her call light glowed like a distant star.

I pressed it again for her.

I said, “I’m leaving, Mary.”

She blinked and said, “Will you send me a postcard?”

“I’ll do better,” I said.

“I’ll send my daughter.”

Here is what I want you to know:

Most of us in here are not asking for miracles.

We’re asking for water within reach and voices that know our names.

We’re asking for the kind of care you give a garden—turn the soil, pull the weeds, notice when something is wilting.

It is not complicated.

It is costly only in the ways that make a life.

I have lived long enough to see the world change three times over.

We went from party lines to pocket-sized screens that watch us back.

From neighbors who brought casseroles to neighbors who leave comments.

From hands that held to hands that hover.

Not all of it is worse.

Not all of it is better.

But some of it is lonelier.

And I think that loneliness is the mold that grows in places like this when no one is watching closely.

Tomorrow, Marion will come early.

We’ll pack the photo of my wedding day—the veil looks like it belongs to someone else now.

We’ll pack the recipe box with the smudged cards.

We’ll leave the bedrail the way we found it.

We’ll take the rosemary.

I’ll sit in the passenger seat with my notebook in my lap and the sun on my knees.

I will breathe out, and the breath will say, “Not home, but closer.”

If you have someone in a place like this, check on them.

Not just once.

Not just at visiting hours when everything is staged and softly lit.

Come on Thursdays when the meatloaf makes everyone sleepy.

Ask to see the shower.

Ask where the call lights go to die.

Learn the names of the people who hold your person’s body when you are not there.

Bring them muffins.

Bring them respect.

And if you can’t bring that, bring questions.

If you work in a place like this, I see you.

I know the work is heavier than it looks.

I know some days the clock is a cruel friend.

Please remember: we are not a task.

We are someone’s rosemary, someone’s blue bowl, someone’s crooked tie.

We have lived long enough to be worth the time.

And if you have a story like mine—about hurt or about help—tell it.

Write it down.

Share it.

Tag the nurse who held your mother’s hand until morning.

Name the aide who looked away when your father asked for dignity.

Shine light on both, because light is how gardens grow.

I am Ruth.

I am leaving this hallway with the worn patch by the door.

I am carrying my notebook and a sprig of rosemary to remind me that even small things can wake a whole room with their scent.

I hope the next place remembers to smell.

I hope yours does too.

📌 If you’ve ever loved someone through the last miles, thank the hands that helped—and hold accountable the hands that didn’t.

Make sure you read this very important document on the right to a dignified death.
16/07/2025

Make sure you read this very important document on the right to a dignified death.

Crucially important!
16/07/2025

Crucially important!

Do not miss this documentary…
09/07/2025

Do not miss this documentary…

Join GERATEC and The Eden Alternative South Africa for an inspiring screening of "Human Forever," an acclaimed Dutch documentary that powerfully chronicles Teun Toebes' transformative journey alongside individuals living with dementia. This impactful event will take place on July 30, 2025, at the Bl...

Join me this Friday at 13h00 for a conversation on the relationality of care.
24/06/2025

Join me this Friday at 13h00 for a conversation on the relationality of care.

In this week's IFA , Dr. Rayne Stroebel will discuss "I am because we are: Ageing and the wisdom of inter-reliability in South Africa."

Register now: https://shorturl.at/iegtl

16/06/2025

Liana
9 June 2025
My cousin Liana died on Wednesday after a brief battle with a rare type of cancer. She turned 42 on May 7th. I have faced many deaths over the past years of people close to me, but this one was different…

Liana was the life and soul of every gathering. Short and stout, she had a cheeky smile and the most wicked sense of humour. Like the rest of our family, she would notice that one thing about someone that would have us laughing like naughty schoolchildren in a church service. Like all of us, she adored animals. Her dogs were her children in the home. (The last time I visited, one of the dogs stole my sock and buried it somewhere in the garden. We all agreed that this was just normal behaviour—something our kids would do.)

In her work, Liana trained young, new farmers. She was passionate about her work and uplifting others. She loved fishing. At every family gathering, Liana was always the first to suggest a round of shooters. Full of life, laughter, and mischief.

We discussed getting her affairs in order and setting up an advance directive. I knew her time was limited, yet I didn’t realise it would be that brief. When I received the message last Wednesday saying that she had transitioned, it felt as if someone had kicked me in the gut—a deep, throbbing pain right at the core of my stomach. Such a beautiful, meaningful life cut so short. The grief of a mother, a father, and two brothers is unthinkable—her beloved partner. If I feel this way, I cannot imagine what they must feel…

Stop all the clocks, cut off the telephone,

Prevent the dog from barking with a juicy bone,

Silence the pianos and with muffled drum

Bring out the coffin, let the mourners come.

Let aeroplanes circle moaning overhead

Scribbling on the sky the message She Is Dead,

Put crepe bows round the white necks of the public doves,

Let the traffic policemen wear black cotton gloves.

She was my North, my South, my East and West,

My working week and my Sunday rest,

My noon, my midnight, my talk, my song;

I thought that love would last for ever: I was wrong.

The stars are not wanted now: put out every one;

Pack up the moon and dismantle the sun;

Pour away the ocean and sweep up the wood;

For nothing now can ever come to any good.

W H Auden

For me, this is one of the strangest feelings in light of death—the way the world just carries on. Traffic, people going to work, dogs barking. When my mother died, I wanted to scream that the world must stop, that there should be global silence, that no one is allowed on the streets to carry on with their business as usual. Did they not know that my mother is dead?

And here I am back at my desk, answering emails, checking Facebook, and cuddling with my cat. All the while, Liana is dead.

🌿 AGEING OPTIMALLY: Embracing the Journey Ahead 🌿Workshop 1: Elderhood – Ageing as a Developmental Stage📅 Date: 10 June ...
05/06/2025

🌿 AGEING OPTIMALLY: Embracing the Journey Ahead 🌿
Workshop 1: Elderhood – Ageing as a Developmental Stage
📅 Date: 10 June 2025 | 🕑 14:00 – 15:00
📍 HSFA Vonke Park, 121 Lourensford Road, Somerset West

GERATEC, in collaboration with the Helderberg Society for the Aged (HSFA), proudly presents a brand-new 12-part educational workshop series for older persons, caregivers, family members, and professionals.

💡 Workshop 1 lays the foundation for the series by exploring elderhood as a developmental stage, challenging ageist narratives, and embracing a holistic approach to ageing—especially in the South African context.

🎟️ Book your seat here:
👉 https://www.quicket.co.za/events/318454-ageing-optimally-workshop-1-elderhood-ageing-as-a-developmental-stage/ #/

🗣️ Stay after the session for the Let’s Talk support and knowledge-sharing group from 15:00 – 16:00.
☕ Refreshments will be served.
📚 Notes and handouts provided.

Join us as we reframe ageing and celebrate the richness of elderhood.

🌿 AGEING OPTIMALLY: Embracing the Journey Ahead 🌿Workshop 1: Elderhood – Ageing as a Developmental Stage📅 Date: 10 June ...
05/06/2025

🌿 AGEING OPTIMALLY: Embracing the Journey Ahead 🌿
Workshop 1: Elderhood – Ageing as a Developmental Stage
📅 Date: 10 June 2025 | 🕑 14:00 – 15:00
📍 HSFA Vonke Park, 121 Lourensford Road, Somerset West

GERATEC, in collaboration with the Helderberg Society for the Aged (HSFA), proudly presents a brand-new 12-part educational workshop series for older persons, caregivers, family members, and professionals.

💡 Workshop 1 lays the foundation for the series by exploring elderhood as a developmental stage, challenging ageist narratives, and embracing a holistic approach to ageing—especially in the South African context.

🎟️ Book your seat here:
👉 https://www.quicket.co.za/events/318454-ageing-optimally-workshop-1-elderhood-ageing-as-a-developmental-stage/ #/

🗣️ Stay after the session for the Let’s Talk support and knowledge-sharing group from 15:00 – 16:00.
☕ Refreshments will be served.
📚 Notes and handouts provided.

Join us as we reframe ageing and celebrate the richness of elderhood.

GERATEC and the HSFA have a new 12-part educational series titled Ageing Optimally: Embracing the Journey Ahead. These workshops are designed to empower and educate older persons, caregivers, family members, and professionals working with elders. Workshops will take place in person at HSFA Vonke Par...

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