Living Here Now

Living Here Now Living Here Now is about living mindfully with ADHD. It is an invitation to make the most of the here and now, just as you are.

ADHD tax. No Cayman Islands will help you avoid it if you have an ADHD brain.Thousands-worth of insurance claims rejecte...
01/10/2024

ADHD tax. No Cayman Islands will help you avoid it if you have an ADHD brain.

Thousands-worth of insurance claims rejected due to late submission. It will take me many hours of work to make up for this lost money.

Stupid, right? Surely you know to submit your claims on time - duh?

So why did I not? Why do most people with ADHD pay ADHD tax in various forms every day?

Here are some of the forces, (yes, they feel like uncontrollable forces) that are at play:

Knowing but doing something different. Multiple times. I often manage to submit on time because of the systems I have in place or because I’m lucky. And sometimes I don’t manage because the combination of the below factors. The reason why we need less teaching and more support with creating and utilising strategies…

Sticking to a thought, which seems correct, acting as if the impression was true and never properly verifying the facts. My previous insurer had 180 days submission window, not 120. The current one has 180 days for not for my kind of claims. The 180 number was in my head and that was it.

Low-level risk taking that sounds like “it’s fine”. I observe this thought-pattern and force myself (it takes an enormous amount of self-regulation), to act against it (and choose the cautious action that considers potential consequences). With decades of adulting I have had a lot of (costly, painful) practice so I am often able to do it. Until I’m not.

Procrastination on tasks that seem time consuming and boring. They feel huge. We stand at the foot of Mt Everest of these tasks most days. With what feels like no climbing equipment and no prior training. But with unmedicated pneumonia.

These ‘damn-I-still-need-to-dos’ cost tons of emotional energy and mental space as we spend ages agonizing, working around and making excuses about them. They also cost us small (but painfully ripped-out) chunks of self-esteem as we walk around bearing the weight of all the “little, easy” things unfinished and yet another “mistake”…

Avoiding thinking about it to avoid the emotional discomfort of still having these tasks on the to-do list (if such exists), the memories of the previous ‘failures’ and the knowing that we will have to actually get it done sometime.

My experience gives you a gist of the cognitive-emotional-behavioural complexity involved in a daily. ADHD goes way beyond inattention and hyperactivity. Notice the prominent role of emotions powerful enough to overshadow reality. The overwhelm that keeps us frozen. Resistance. Self-disappointment. Defeat. Hopelessness. Sadness. Grief. Frustration. Anger.

This is our lived experience. If you don’t have the first-hand experience living with this brain, this is some nuance of ADHD’s impact. Consider emotion dysregulation even though it is not in the diagnostic criteria. Understand before telling us to “just do it”.

We really do try.

Interoception often gets insufficient attention from professionals working with the neurodivergent population.It is the ...
30/06/2024

Interoception often gets insufficient attention from professionals working with the neurodivergent population.

It is the ability to feel the internal signals coming from the body which impacts us broadly and profoundly.

Many neurodivergent people (ADHD, autistic, with high anxiety, dyslexia etc) process sensory input differently to neurotypical people.
Because interoception is a sense (like smell, sight etc), we may experience our internal feelings atypically, too.

Basic things to know about it:

⚡The intensity with which we experience our internal sensations varies across situations and time. Most of us have low awareness of our interoception levels and how they impact our day/life.
⚡When interoception is very low, you may have difficulty recognising how you feel and what you need, eg. that you are tired or thirsty. This often negatively impacts on our rest, nutrition and other aspects of self-care.
⚡High interoceptive perception, feeling internal sensations intensely, can be distracting and unsettling. For example, experiencing as pain what would be minor discomfort to most. This may fuel anxiety and hyper-vigilance, as well as worsen our attentional challenges and mood.
⚡Emotions are felt in the body and recognising the related sensations (heartrate, breathing pace etc) is a cornerstone of emotion regulation. Low interoception makes it hard to notice that we are getting upset or anxious until emotional intensity is very high, and hence difficult to manage. Acting when highly emotional may lead to damaged relationships, compromised safety and other negative consequences.
⚡Experiencing our bodily sensations intensely or at a muted intensity affects our behaviour. Eg., we may act irritable when too hot or look to reduce our discomfort in maladaptive ways - with no awareness.

It is worth observing the impact of interoception and broader sensory processing on self, our children and clients, and actively building awareness of it.

A great introductory video by https://www.kelly-mahler.com/resources/videos/interoception-the-new-topic-in-autism/

It is so easy for me to blaze through the day, week and month without pausing to nourish myself emotionally and spiritua...
09/03/2024

It is so easy for me to blaze through the day, week and month without pausing to nourish myself emotionally and spiritually - the pace of life provides an excuse that is too ready, too acceptable. An excuse that makes self-neglect look justified, even noble.

But it's not really, is it, as there is no justification for unconscious moving through our precious time.

This week has been full of wonderfully meaningful treats and gifts, some of them received just by openness and allowing.

Science nudging us towards a mindset shift - and what an impactful shift that would be!Imagine if we all truly accepted ...
29/02/2024

Science nudging us towards a mindset shift - and what an impactful shift that would be!

Imagine if we all truly accepted that the existence of ADHD, autism or dyslexia is a reflection of natural human diversity instead of viewing them as "conditions" in brains that are abnormal, inferior to the intended majority.

Thank you Megan Ann Neff for bringing this enlightening research to our attention.

Couldn't be more true, sadly.How do we change that and start viewing people's well-being (and not adherence to often arb...
25/02/2024

Couldn't be more true, sadly.

How do we change that and start viewing people's well-being (and not adherence to often arbitrary rules) as a priority?

The impact of emotions and hormones in females with ADHD is not very well studied and is often underestimated in the dia...
21/02/2024

The impact of emotions and hormones in females with ADHD is not very well studied and is often underestimated in the diagnostic and treatment process.

This results in misdiagnosis of females with ADHD and limits effectiveness of their treatment.

If you work with or raise girls with ADHD or are a woman with ADHD yourself, you are likely to find this podcast enlightening.

Link to podcast: https://www.additudemag.com/webinar/adhd-symptoms-in-girls-emotional-dysregulation/

Fabulous to spend the day connecting with and learning from professionals working in the area of inclusion in schools.Th...
02/02/2024

Fabulous to spend the day connecting with and learning from professionals working in the area of inclusion in schools.

Thank you Catherine and Harmeet for organising this great event allowing us to join forces across sectors.

The "D" in ADHD stands for "disorder".You will hear many argue this is misleading as ADHD can be a "gift", or a "superpo...
19/11/2023

The "D" in ADHD stands for "disorder".

You will hear many argue this is misleading as ADHD can be a "gift", or a "superpower".
And I generally would not change the brain I have. Except that sometimes I would subtract the ADHD part from this equation, if I could.

People with ADHD are the most genuine, authentic, interesting, inspirational, kind and creative people I know.

We are so capable that our challenges are often invisible to the outside world.

But there are days when the road leads up a steep hill. Every step which for neurotypical majority is automatic and does not require effort, for us does.
Much work before the actual work even starts. IF we can even get it to start.

This is an image of my week getting better. Because it always does.

Heartfelt best wishes to you all.

People, adults and children, with abilities that are not mainstream, are still misunderstood, sidelined and discriminate...
01/11/2023

People, adults and children, with abilities that are not mainstream, are still misunderstood, sidelined and discriminated against in our educational institutions and workplaces.

That's why we need events like this one - to share practices, encourage progress and collaboraye on plan for further improvement!💪👏💪
Lots of inspiration and learning at the Incluzun conference in Abu Dhabi where inclusion and disability professionals met.

Thank you, Catherine O'Farrell and Harmeet Kaur Dhillon for organising this great event.

It was wonderful to meet with you Kevin Baskerville Ceanlia Vermeulen Fati Abubakar Siddique, MEd,PGCE ,ACCA,CPT3A Maha Khorchid

Marilena di Coste SallyHelweh you were greatly missed 😘

❗ LESS FEAR, MORE MENTAL WELLNESS AS THIS SCHOOL YEAR BEGINS ❗Speaking with a bunch of tweens as they prepare for their ...
29/08/2023

❗ LESS FEAR, MORE MENTAL WELLNESS AS THIS SCHOOL YEAR BEGINS ❗

Speaking with a bunch of tweens as they prepare for their first day of middle school, I deliberately start by asking about the “fun stuff”.
Their brief answer is swiftly followed by “You get detention for submitting assignments late”. “Don’t be late to class or the teachers will hate you“. “You can get kicked out of school if you don’t do your homework”. “She (the PE teacher) screamed so hard at the class last year that…”

Our kids want to do well. And they’re anxious about all the things that might get in their way.

“Teflon for the positive and Velcro for the negative” is how neuroscientist Rick Hanson describes the human mind: We naturally dismiss, forget about, discount, not talk about and simply not focus on the good stuff. We do, on the other hand, give abundant attention to what might go wrong: imagining it, worrying about it, planning, preparing for it and otherwise dwelling on it.
This normal, “designed” as protective bias towards negativity sets the stage for our children’s heightened anxiety. We add peer pressure, social media, fast pace of moderns lives, information-overload, impossible-to-meet standards, caregivers’ poor mental health and general lack of community support many families experience and…we should stop adding.

TEACHERS. PARENTS. May I direct this appeal and reminder to us all, as this academic year begins:

Our children already feel the pressure from the world we live in. Excessive, constant, exaggerated reminding children of the potential negative consequences does not help performance but does fuel debilitation anxiety. While it might spurt out-of-fear action in the moment, it is not motivating, not educational and not mental health-promoting in the long-run – all the things we hope our communication to be.

Our children and students need to be well to do well, so let us:

- validate and normalise (communicate we understand that their experiences are real and feel very important to them)
-listen (even if you disagree and/ or already know the answer)
-provide facts (fill information gaps and correct misinformation)
- include them in solution-finding (empower: help them use resources they already have)
- assess their needs and provide appropriate support (what skills do they miss and how can they be developed?)
- highlight and explore strengths (they are there – make sure the child knows and uses them)
- offer unwavering support (communicate you “have their back”)
- provide safe space (withhold judgment, make effort to stay calm)

Wishing us all a great academic year!

With this beautiful bloom in my garden, the birdsong in my trees, the cup of Earl Grey in my hand, the smell of fresh br...
22/04/2023

With this beautiful bloom in my garden, the birdsong in my trees, the cup of Earl Grey in my hand, the smell of fresh bread I just baked and the laundry from the glorious night away with my wonderful friends, I start the day with much gratitude and peace.

Sending love to you all and wishes of Eid Mubarak to my Muslim friends.

07/04/2023

Reframing Autism is pleased to introduce Autism Essentials - our free, self-paced online course that provides a neuro-affirming understanding of Autism.

Check it out here: https://reframing-autism-s-school.teachable.com/p/autism-essentials

This course is designed for a wide variety of lived experiences as well as different levels of pre-existing knowledge about Autism - from those that are totally new to the topic to those that have formal education in Autism.

Whether you are Autistic, formally diagnosed, self-identified or think you might be Autistic, a family member or loved one of an Autistic person, a researcher, teacher, other professional, or ally, we hope you learn something new or deepen and extend your existing knowledge of Autism and the Autistic community.

The course focuses on five main areas:
• Language
• What Is Autism?
• Brain Differences
• Communication and Socialising
• Thinking and Processing

All learners access the same base information in the course, but each topic has multiple worksheets available for different levels of knowledge about Autism. You can choose to complete the level that best fits your knowledge to customise your learning in a way that works for you.

Image description: The Reframing Autism logo is on a dusty rose background with the text: Reframing Autism is excited to present our free online self-paced course Autism Essentials, followed by https://reframing-autism-s-school.teachable.com/p/autism-essentials

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