Masons HLHS Journey 2022

Masons HLHS Journey 2022 I may be gone, but I’ll remain forever, I’m just out flying with the bees 🌻🐝

Happy Birthday to my Noah 💙You’re my quirky, outgoing, go-getter!You give everything a shot, chasing it all down with th...
08/08/2025

Happy Birthday to my Noah 💙
You’re my quirky, outgoing, go-getter!
You give everything a shot, chasing it all down with that cheeky grin that lights up every room.

Another year older today… but let’s be real, you’ll always be my squishy little baby 🤣🎉

Love you always,
Mum 💫💙

28/07/2025

Life After Loss – The Side No One Talks About

Life feels like a roller coaster of emotions. One moment I’m smiling, laughing even — and then it hits me like a wave. Why are you laughing? And just like that, I’m swallowed by guilt for feeling even a second of happiness.

Grief has a way of taking over your life like a thick bubble — suffocating, hard to break through. What makes it even more complex is that I’m not just grieving; I’m still a mother. I have two beautiful children who need me, who deserve every ounce of love I have left to give. And I give it… I truly do. But the guilt sneaks in even then.

It’s like living in a loop — the what ifs, the he would be doing this, the why him.
Some days, I wish I could fast forward time, just to be reunited with him. Just to see his face again, to ask all the questions that never got answered. But I know I can’t. Not yet. I still have two little ones who look to me for guidance, for comfort, for stability.

And here’s the truth — it’s hard to be there for them when I’m struggling to even be there for myself.

This parenting gig? No one prepares you for this side of it. No one tells you what it’s like to bury part of your heart and still be expected to carry on. And even if they did, you’d never believe it would happen to you. I know I didn’t.

Does it get easier? No.
The pain is just as raw as the day it began. You just learn to survive some days better than others. That’s the truth no one talks about. And I wish people didn’t lie and say it gets easier — because pretending doesn’t help anyone.

One day, I know I’ll be with him again. One day, I’ll find peace in knowing he’s out of harm’s way.
But until that day comes, I’ll keep fighting for change — just like I promised him.
It’s a promise I’ll keep until the day I’m called back to him.

🎈 Happy 3rd Heavenly Birthday 🎈To my sweet boy,Forever loved. Forever missed.“Some souls only stay for a moment…but leav...
25/07/2025

🎈 Happy 3rd Heavenly Birthday 🎈
To my sweet boy,
Forever loved. Forever missed.

“Some souls only stay for a moment…
but leave a lifetime of love behind.”

Happy 3rd Birthday, my darling boy.

God, how I wish I could squeeze those yummy cheeks today.
To see you sitting there,
Opening your presents,
Sharing that big heart of yours with everyone.

You were so admirable, my love.
So many parents around the world found strength in you.

You gave them courage,
You gave them perspective,
You gave them hope.

If you’re up there dancing, then dance away, my beautiful boy.
Run a muck, just like you always did.
I’ll be looking for you today, just like I always do.

We’ll celebrate you as if you were here.
And tonight, I’m sure the kids will blow your candles out.
Let’s see if they muck up the lyrics again, shall we?

I love you more than words,
Always have. Always will.

Love,
Mum xx

Every day I wish you were here beside me buddy! Not a day goes by your not spoken or thought of. Each day is meant to ge...
20/05/2025

Every day I wish you were here beside me buddy!

Not a day goes by your not spoken or thought of.
Each day is meant to get easier, I’m still yet to see that.

I love you so much my lil love 🌻🐝

Our last admission…It went anything but smoothly.You’d think I’d be used to walking those same damn hospital corridors b...
18/05/2025

Our last admission…
It went anything but smoothly.

You’d think I’d be used to walking those same damn hospital corridors by now — every admission, the same routine. But somehow, it only makes it harder. Familiarity doesn’t make it easier. It just sharpens the fear. You never know what you’re walking into. How it’s going to go. How long you’ll be stuck there. And each time, the weight feels heavier.

It started to feel like a jail sentence.
Not just the place — but in my mind.
A thousand “what ifs” circling like vultures. And somehow, through all that, a voice still tries to hold on to hope. Every time we pass the same nurses’ station, or see the same faces — I try to believe. I try to pretend it might be different this time.

But the truth is, it’s a war inside yourself. One you can’t see, but it rages on.
And outside? The world just keeps moving. People go about their lives, posting about normal things, living in a rhythm that now feels completely foreign. That’s the part no one tells you — that life doesn’t pause. Not even for heartbreak.

This new reality, it sinks in slow.
And once it does, it doesn’t leave.

I never thought this would be my world. Never imagined living it, breathing it, breaking inside of it — and coming out the other side with everything changed. It’s not just about what you lose. It’s about the parts of yourself that don’t come back either.

If I could walk those corridors with him again, I would.
In a heartbeat.
Even knowing what I know now.
Even knowing how it ends.

18/05/2025

When Silence Fails the Innocent

My name is Leticia , and I stand before you not just as a parent—but as a witness, an advocate, and someone who has lived through a system that has failed our most vulnerable.

Throughout Mason’s admission, we experienced what no family ever should: a series of cover-ups, broken promises, and a healthcare system that too often chose silence over responsibility.

There were overdoses swept under the rug. There were moments where vital lifelines—his only chance at life—were disconnected. End-of-life care was mishandled, not because of medical necessity, but because of systemic negligence.

We were told, time and again, “You can do this,” or “We’ll support you in that.” But those words were never followed by action—only excuses. We were repeatedly told it was “unsafe” to do what was right.

Meetings were held not to support Mason’s needs, but to point fingers at us—his parents. His advocates. The ones who refused to stay silent. Every gathering became another opportunity to twist our intentions, to create narratives that painted us as the problem.

Lies and cover-ups became daily occurrences. And once they realized I wouldn’t back down, once they knew I was coming for the truth, they tried to silence me. They used threats. Gag orders. Warnings not to speak out. But I’m here, speaking anyway.

And I speak not just for Mason—but for the countless other babies who were left to suffer while monitors screamed and nurses looked the other way. Parents were told to go home, to rest. Only to return and hear the familiar, sanitized phrase: “Your baby has been settled all night.”

We know what that really means. It means our children were in distress. It means alarms were ignored. It means that while parents were resting, believing their babies were being cared for, the truth was anything but.

How many more careers will be built at the expense of our children’s lives? How many more warnings will be silenced, how many more stories buried, before someone stands up and says: enough?

I’m here today to say it. Enough.

We will not be silenced. We will not let this system hide behind closed doors any longer. Because every child deserves to be fought for. And every parent deserves the truth.

17/05/2025
Neglectful Care in Pediatric WardAs a parent of a seriously ill child, I never imagined that in our most vulnerable mome...
17/05/2025

Neglectful Care in Pediatric Ward

As a parent of a seriously ill child, I never imagined that in our most vulnerable moments, I would have to be on high alert — not only for the well-being of my own child but for the safety of other babies in the ward. But that became our daily reality.

Numerous times during our hospital stay, I shared rooms with other families. We formed a bond not only out of empathy but out of necessity. We found ourselves watching over each other’s children so that we could take breaks, sleep, or simply try to be the best versions of ourselves for our sick babies.

We were told by staff that if anything occurred while we were away — during those rare moments of rest — we would be notified and updated accordingly. We were led to believe that we could trust the staff to care for our children as we would.

That trust was shattered.

On multiple occasions, I and other parents witnessed shocking neglect. Babies would vomit in their cots while alarms rang out, only for nurses to remain seated at their station, eating fast food or chatting casually about their weekends. Monitors would be ignored. Babies were left distressed, crying, sometimes even at risk of choking, while the staff remained disengaged.

It was us, the parents, who turned babies onto their sides to prevent choking, re-settled them to help calm their heart rates, and pressed emergency buttons to alert staff when the situation became critical. Instead of support, we were reprimanded — told not to touch children that were not ours, even when those children were clearly in distress and no one else was helping.

One night in particular, I was informed by another family that my child, Mason, was crying uncontrollably, distressed, and alone. I had encouraged them to comfort him in my absence. Mason was reportedly reaching out, desperate for someone to hold his hand. The staff told the family to leave him be. When I returned the next morning, I was told he had a “very settled night.” That lie was not only insulting — it was cruel.

This wasn’t a one-time event. It was a pattern. And based on conversations with other families, it’s still happening.

This level of neglect is not only unethical — it’s dangerous. The lack of accountability, compassion, and responsiveness within that ward poses a direct risk to vulnerable children and betrays the trust that every parent should be able to place in a hospital.

I will not stay silent while this continues. Our children deserve better. No family should have to rely on other parents to keep their babies alive during a hospital stay.

I am demanding a thorough investigation into this ward’s conduct and protocols, and I call on hospital leadership and health regulators to take immediate action.

Tips on advocating: 1. Document Everything • Write down specific dates, times, and names if you have them. • Include wit...
16/05/2025

Tips on advocating:

1. Document Everything
• Write down specific dates, times, and names if you have them.
• Include witness accounts from other parents who experienced the same events.
• Save any communication between yourself and hospital staff or other families.

2. Report to Hospital Administration
• File a formal complaint with the hospital’s Patient Liaison or Complaints Department.
• Include detailed descriptions, as you’ve done here.

3. Escalate to Health Authorities
• Contact your region’s health oversight body or ombudsman.
• In the UK, for example, that would be the Care Quality Commission (CQC).
• In Australia, that might be AHPRA or the Health Care Complaints Commission (HCCC) depending on the state.

4. Public Advocacy
• Share your experience publicly through media or parent advocacy groups if safe and appropriate.
• Sometimes, collective voices push change more effectively than isolated complaints.

5. Legal Advice
• Consider seeking legal counsel if you believe there has been negligence or a breach of duty of care, especially if Mason or other children suffered harm.

Ho FB Fam 🫶🏼It’s been a minute since I’ve been active on this side of the fence. I’ve been keeping up to date with TikTo...
30/03/2025

Ho FB Fam 🫶🏼

It’s been a minute since I’ve been active on this side of the fence.
I’ve been keeping up to date with TikTok that I’ve missed out on posting right here.

Hope you have all been well and doing ok!

Theres a lot of activity over on tiktok which your more than welcome to come and join us all there,

Tiktok name: masonsheartjourney2022 ft Leticia

Otherwise, shall I do a live update? Or should I just do a post?
I’ll leave it up to you all to decide.

Take care 🌻🐝

18/03/2025

When memories pop up as a reminder

This was all set up before I found out the chances you’ll be needing this will be never!

I can’t…….

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