11/09/2025
So, you’ve had months of treatment; the agonising decision making, trauma of maybe multiple surgeries, chemotherapy, radiotherapy, followed by adjuvant medication which changes your body in ways you cannot imagine. Your body has been irreversibly scarred due to a double mastectomy (with or without implants). You are sick and tired of hospital appointments, letters arriving with dates that will be etched into your mind forever.
Then, out of nowhere, a letter drops through your door calling you for routine mammogram screening.
“What? I literally have no breast tissue!”
Try to imagine how this feels. Triggering? Insulting? Hurtful? This can happen on an annual basis, time and time again, for many years beyond treatment. So, after all you’ve faced, this reminder that you have no breasts still comes to find you and demands action.
Some ladies feel safer knowing they are still in the system, but for many, this simple letter can stir up all kinds of trauma, frustration and anger.
Here we ask; how are women who have had bilateral mastectomies monitored? Shouldn’t there be an option for ultrasound at the very least?
A few have looked into having themselves removed from the list. However, the wording of the opt-out form is inflammatory and unsatisfactory. It feels dismissive of the very people the screening is trying to protect. Currently, there is nowhere on this system to record that our breasts have been hastily removed, hoping to save our life.
From another aspect, sending appointment letters out to ladies who are not able to use this type of screening is very wasteful; in time, money and resources - all of this could be avoided by adding a simple tick box on the database for “bilateral mastectomy” and the date of surgery.
These ladies will also be included in the statistics that show, the often discussed, poor uptake of breast screening, therefore skewing the figures. The statistics in breast cancer are already poorly tracked without this added issue.
It is simple yet complicated but certainly an unnecessary, extra, hassle to deal with on top of the numerous hurdles we already face.
Surely it would make sense to improve efficiency and avoid upset?