06/07/2025
On June 28, our little warrior Neo was rushed to the ER due to four episodes of watery stool and a rising fever. At first, the doctors were hopeful he could be discharged by 4 PM with home medications. But things took a sudden and frightening turn—his fever spiked to 38.9°C, and he began having a severe convulsion.
It was one of the scariest moments we've experienced. His seizure lasted over 35 minutes, much longer than the one he had back in January. During the episode, Neo's eyes shifted to the left, his heart rate became unstable, and his oxygen levels dropped. We were terrified and felt so helpless watching him go through it.
We stayed in the ER from late afternoon until well past midnight, trying everything to stabilize him. Eventually, he was moved to a hospital room, and we prayed for his strength and healing.
The next day, Neo slowly began to regain consciousness, but we noticed his vision seemed blurry and his grip was much weaker than usual. On June 30, the doctors performed an MRI to better understand what was happening.
The results showed changes in both sides of his brain—findings that the doctors believe point to leukemic involvement. This means his leukemia has reached his brain, and he now needs to begin a new, more aggressive treatment protocol. Instead of continuing with maintenance chemo, we’re now faced with stronger medications and a more intensive plan moving forward.
It breaks our hearts to see him go through this again, just when we thought we were making progress.
We’re still currently admitted at the hospital, and as you can imagine, the medical bills are rising quickly. We’ve reached out to government support, but they told us their budget is not yet available due to the recent change in administration.
This new protocol will require more hospital stays, additional tests, and stronger treatments—not just emotionally but also financially challenging for us. As much as it's difficult for us to ask, we are humbly reaching out for help.
If you're able to support Neo’s healing journey in any way—through donations, sharing this message, or simply keeping him in your prayers—it would mean the world to us. Every act of kindness brings us one step closer to getting him the care he needs.
Thank you for standing with us during this fight. We’re holding on to hope and to the love you continue to show our family. 💛🙏🏼