Ryu & Miyu’s SMA Journey

Ryu & Miyu’s SMA Journey Welcome to our SMA Journey! for any concerns: [email protected]
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I am Ri-yu りゅ Type 1 (4yrs old) Late Treated - Risdiplam & Miyu みゆ Type 1 (1yr old) Early Treated - Zolgensma (Philippians 4:13 I can do all things through Christ which strengtheneth me.)

At CHLA Pulmonary Clinic, Doctors appointment with Dr. Roberta Kato, MD Director of Pulmonology ProgramsFor Newborn Scre...
15/08/2025

At CHLA Pulmonary Clinic, Doctors appointment with Dr. Roberta Kato, MD Director of Pulmonology Programs

For Newborn Screening Accuracy Project, Join to received $50 compensation.

15/08/2025

Going to CHLA Pulmonary Regular Checkups with Dr. Roberta Kato, MD

This SMA Awareness Month, we thank Jae Felismino of Nobita for showing heartfelt support for the SMA community. Your voi...
12/08/2025

This SMA Awareness Month, we thank Jae Felismino of Nobita for showing heartfelt support for the SMA community. Your voice helps shine a light on the strength and resilience of SMA warriors.

Thank you for standing with us. 💜

Happy Big Bro (Kuya)
12/08/2025

Happy Big Bro (Kuya)

SMA and Milkfish, Brain Bone Muscle Maintenance        𝗟𝗢𝗢𝗞 | 𝗛𝗲𝗮𝗹𝘁𝗵 𝗯𝗲𝗻𝗲𝗳𝗶𝘁𝘀 𝗼𝗳 𝗺𝗶𝗹𝗸𝗳𝗶𝘀𝗵In 2022, milkfish (locally call...
08/08/2025

SMA and Milkfish, Brain Bone Muscle Maintenance

𝗟𝗢𝗢𝗞 | 𝗛𝗲𝗮𝗹𝘁𝗵 𝗯𝗲𝗻𝗲𝗳𝗶𝘁𝘀 𝗼𝗳 𝗺𝗶𝗹𝗸𝗳𝗶𝘀𝗵
In 2022, milkfish (locally called “bangus”) is the top animal commodity produced through aquaculture in the Philippines, comprising over 48 percent of the total volume. This translates to over 388,000 metric tons of milkfish harvested in the country that year, worth over 46 billion Philippine pesos.

But the milkfish industry is not only an economic powerhouse. It also provides the people in Southeast Asia and the Pacific with a sustainable, affordable, and healthy source of protein and other vital nutrients.

Milkfish, also known as bangus, offers several health benefits due to its rich nutrient profile. It's a good source of protein, omega-3 fatty acids, and various vitamins and minerals, making it a beneficial addition to a healthy diet.

Specific benefits include:
Heart Health:
The omega-3 fatty acids in milkfish can help lower bad cholesterol levels and improve cardiovascular health, potentially reducing the risk of heart-related issues.

Bone and Teeth Strength:
Milkfish contains calcium and phosphorus, which are essential for bone growth and can help prevent osteoporosis.

Eye Health:
Vitamin A, found in milkfish, is important for maintaining good vision.

Brain Development:
Omega-3 fatty acids play a role in brain development, particularly in children.

Skin Health:
Milkfish can contribute to radiant skin due to its vitamins and healthy fats, which can help prevent dryness and redness by reducing inflammation and keeping skin hydrated.

Preventing Vitamin Deficiencies:
Milkfish is rich in various vitamins and minerals, including vitamin B12, vitamin B3, vitamin B6, and selenium, which can help prevent vitamin deficiencies.

Overall Growth and Development:
Milkfish is a good source of protein and other nutrients that support overall body growth and function.
Potential Mercury Reduction:
Some studies suggest that certain bacteria found in milkfish intestine may help reduce mercury levels in the body, according to the IOPscience journal.

Other potential benefits:
Milkfish may also be beneficial for weight management, blood pressure regulation, and cholesterol control.

Preparation and Consumption:
Milkfish can be prepared in various ways, including grilling, steaming, and frying. It's a versatile fish that can be incorporated into different cuisines and dishes.

Here's why milkfish could be a relevant food source in the context of SMA, albeit as part of a balanced diet:
Excellent source of protein: Milkfish is packed with high-quality protein, which is essential for building and maintaining muscle mass.

Source of healthy fats: Milkfish contains healthy fats, including omega-3 fatty acids, which can help reduce inflammation and promote heart health. Inflammation is believed to play a role in sarcopenia, a condition involving age-related muscle loss that can be particularly relevant for individuals with SMA.

Rich in essential vitamins and minerals: Milkfish provides important nutrients like vitamin B12, niacin, and selenium, which play roles in overall health and muscle function.

Potentially easy to digest and swallow: While some individuals with SMA may require modified food textures, fish, in general, can be softer and easier to chew and swallow compared to other protein sources like some meats.

Important considerations
Individualized needs: Every person with SMA has unique dietary needs and challenges. Consulting with a dietitian or healthcare professional experienced in SMA is crucial to developing a personalized nutrition plan, especially before making significant changes.
Swallowing difficulties: For individuals with swallowing difficulties (dysphagia), the preparation and texture of milkfish would need to be considered. Softer preparations, like steamed or pureed milkfish, might be recommended.
Mercury levels: Like other fish, milkfish can contain varying levels of mercury depending on the source. It's wise to consider sourcing from reputable suppliers and follow general guidelines for fish consumption, particularly for vulnerable populations.

In summary, while milkfish isn't a magical cure for SMA, its nutritional profile suggests it could be a beneficial inclusion in a well-rounded diet tailored to the specific needs of individuals living with this condition. Consulting with healthcare providers and specialists is paramount to ensure optimal nutrition and manage any related challenges.

𝗟𝗢𝗢𝗞 | 𝗛𝗲𝗮𝗹𝘁𝗵 𝗯𝗲𝗻𝗲𝗳𝗶𝘁𝘀 𝗼𝗳 𝗺𝗶𝗹𝗸𝗳𝗶𝘀𝗵
In 2022, milkfish (locally called “bangus”) is the top animal commodity produced through aquaculture in the Philippines, comprising over 48 percent of the total volume. This translates to over 388,000 metric tons of milkfish harvested in the country that year, worth over 46 billion Philippine pesos.

But the milkfish industry is not only an economic powerhouse. It also provides the people in Southeast Asia and the Pacific with a sustainable, affordable, and healthy source of protein and other vital nutrients.

💊 A recent clinical trial with over 700 older adults showed that omega-3 supplementation may have geroprotective benefit...
08/08/2025

💊 A recent clinical trial with over 700 older adults showed that omega-3 supplementation may have geroprotective benefits and slow biological aging.

The study, conducted over three years, also suggested that combining omega-3 supplementation with vitamin D and exercise could provide additive benefits.
Participants aged 70 and older were divided into eight groups receiving different treatments, including vitamin D, omega-3, and a home exercise program.

The researchers found that omega-3 consumption moderately slowed biological aging, and combining omega-3, vitamin D, and exercise worked even better.

Additionally, the three interventions together had the biggest impact on lowering cancer risk and preventing frailty over three years. The researchers suggest that each intervention works through different but related mechanisms, and when combined, they reinforce each other, creating a stronger overall effect.

📄 RESEARCH PAPER

📌 Heike A. Bischoff-Ferrari et al., “Individual and additive effects of vitamin D, omega-3 and exercise on DNA methylation clocks of biological aging in older adults from the DO-HEALTH trial”, Nature Aging (2025)

Eggs are nutrient dense. That means they have more nutrients -- vitamins, minerals, amino acids -- per calorie than most...
08/08/2025

Eggs are nutrient dense. That means they have more nutrients -- vitamins, minerals, amino acids -- per calorie than most other foods! https://wb.md/4k5W6l7

Eggs are nutrient dense. That means they have more nutrients -- vitamins, minerals, amino acids -- per calorie than most other foods! https://wb.md/4k5W6l7

Replenish your minerals for better energy, immunity & balance! 💪Eat real food, test smart, supplement wisely, heal your ...
08/08/2025

Replenish your minerals for better energy, immunity & balance! 💪
Eat real food, test smart, supplement wisely, heal your gut.

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