Nanay Lyka

Nanay Lyka ASD and Mental Health Advocate
[email protected]
(2)

05/06/2026

Good morning, pogi. 😘

05/06/2026

Nanganganib ang buhay kada checking na. Hahaha

04/06/2026

Tuwang tuwa s’ya ih. Hehe

We are homeschooling this school year. We had to convert Rhys’ room into their classroom. Excited but terrified! 🤞
04/06/2026

We are homeschooling this school year. We had to convert Rhys’ room into their classroom. Excited but terrified! 🤞

04/06/2026

Ginulo pb s’ya ni Sam? Syempre, inakyat pa din s’ya! 🤦‍♀️😂

03/06/2026

Sam can’t write independently yet but she is starting to read na. Usually sinusulat un sagot pero I always try to provide accommodation like in this instance, she can circle it nalang instead of writing it. Motto namin ay kung hindi pa uubra, wag muna ipilit. As long as she’s learning something naman. 🙂

02/06/2026

The struggle is super real. Kahit si Tito Ramel na pagkalaki, di kinakaya linisin tenga nya ng gising.

02/06/2026

People with Autism usually have heightened senses. Para sakanila, un isang hibla ng buhok ay katumbas ng pardible o kaya karayom ang tusok, un ingay ng isang partikular na bagay kung para sayo ay volume 20, sakanila katumbas non ay volume 80 tapos mga sampung sabay sabay na iba ibang klase ng ingay.

I can attest to this. Si Rhys, un panganay ko kahit gaano kaingay ang TV sa room, basta may kumatok o nag-pihit ng door k**b, alam nya, lalapit sya sa door at bubuksan, samantalang un kasama nya walang kamalay malay na may tao na pala sa pinto.

Si Sam, un bunso ko, kahit maliliit na langgam na malayo kapag nahagip ng mata nya susundan nya. Kapag pumasok sya sa lugar na malaki parang nalulunod sya kaya tinatakpan nya un mata nya.

Kung binasa mo lahat yan at in-imagine mo ano un nararanasan nila araw-araw, we can all agree na “nakakarindi”. They cope up by stimming (pagtakbo, pagsalita ng paulit upit na sounds o salita, pagtalon, pag-flap ng arms, pag-side glance, etc.)or repetitive behaviors or sticking to a routine. Minsan they fail to cope up due to various reasons, pwedeng nasita sila o sinabihan sila na nakakahiya o nakakaabala o nakakailang un way nila mag-regulate, or kaya naman pinigilan sila intently or forcefully at nag-reresulta un sa meltdowns kasi na-overwhelmed na sila or tuluyan na silang “narindi”. Tapos, mamasamain pa din, sila pa din un mali, sila un maingay, sila un nakakaabala, sila pa din un nakaka-ilang. So pano nalang pala? San nalang pala sila lulugar? And worst of all, they have difficulty expressing themselves, di sila makapagsalita, kung makapag-salita man sila, hindi nila masabi ng maayos ano un nararamdaman nila o naiisip nila.

Imagine how frustrating ang pagdaanan un pinagdadaanan nila araw-araw.

Minsan naiisip ko, para silang mga karakter sa mga Super-Hero movies, may mga super-powers pero hindi pa nila ma-control. 😅 Pero kapag na-control nila, Ay sino ka dyan ngayon? 😜 Pero wala tayo sa mga palabas sa TV, nasa tunay na buhay tayo at sa tunay na buhay, hindi ganoon kadali ang mga bagay bagay. Hindi ganon kadali para sakanila ang i-figure out pano i-handle un overwhelming senses nila, or thoughts nila. KAILANGAN NILA TAYO. Un PANGUNAWA natin. Un PASENSYA natin. Un KABUTIHAN natin.

Kaya sana sa sunod na may makahalubilo ka na katulad nila, mas maintindihan mo na bakit “IBA” sila, kasi, “IBA” talaga sila.

Kung makakita ka man ng “Behave” o “Hindi mukhang Autistic”, please know na maaring hindi naging madali para sakanila, na maaring dumaan sila sa maraming proseso to get where they are, na yes, TONED-DOWN na sila, pero hindi sila TUNED OUT—hirap pa din sila, heightened pa din un senses nila, pero they learned how to manage it, to live with it, to embrace it.

Which leads me to my next point, WALANG GAMOT ang Autism. Maaring ma-manage nila un Autistic like charateristic, sa tulong ng interventions and therapies, pero hindi ibig sabihin non na wala na sila Autism. Un lang. 😊✌️




02/06/2026

Things I do to keep my sanity:

1. I don’t share my food with my kids. In fact, I hide my special snacks and eat them in peace without them. 😂 Even when they see me and asks for it, I still won’t share it. I ask them to eat their own & buy the same snack as mine if they really want it when I take them to the grocery store again. I may not look like it but I always say “no” to them. I actually encourage them to say “no” too when they feel like it, and I always honor that—if it’s something really important, I convince them, not force them. If one of them doesn’t want to share a toy or a food, I don’t force them to share. But I tell them na “okay lang yan if ayaw mo mag-share pero kapag ikaw un humingi at di ka binigyan you have to respect that person’s choice din.” (this actually teaches them about accountability.)—surprisingly, though I train them like that they still grew up generous and helpful (wag lang un mga special interest items nila)

2. Personal time is a non-negotiable. I make time to see/talk to my friends on a regular basis. I don’t take them with me. The idea is to be away from them for a moment. I love them but I need time away from them sometimes. (Granted that I have secured a reliable caregiver while I am away)

3. I still make time for hobbies to nurture my own individuality. Plants. Pets. Crochet. K-drama. Etc. Whatever it is that sparks my interest at the moment.

4. I delegate. I ask for help whenever I feel I need to. I don’t do everything myself. And yes, delegation sometimes involves a gadget—how? Sometimes, when I feel so overwhelmed I need a time away from them I utilize “Yaya Gadget”. If it means I can have 30minutes of time for myself, it’s worth it, not something I should be guilty about no matter what anyone tells me. I believe choosing screen over screaming spree or parental breakdown is better; they’ll need a regulated parent than a screen-free day.

I always say taking care of yourself is the best way to take care of them. Doing these things actually teaches them healthy boundaries, self care and accountability. For example, the next time we go to the grocery store they will think, “Ah Nanay won’t share her snacks, so I’ll have to choose mine carefully.”

Setting boundaries and self-care is not a luxury, it’s a necessity. It is needed to prevent burnout and maintain resilience. Constant sacrifices breed resentment which may hurt your kids more in the long run.

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Marilao

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