02/12/2024
Disability World Day 2024: A Call for Action on the Rights and Needs of Persons with Disabilities in South Sudan
Introduction
December 3rd, 2024, marks another opportunity for the world to come together and honor the International Day of Persons with Disabilities (IDPD). This day is a crucial reminder that we must not only acknowledge the existence of Persons with Disabilities (PWDs) but also address the significant challenges they face daily. In South Sudan, a country still grappling with the effects of conflict, political instability, and economic hardships, the situation for PWDs remains dire. This year’s theme is a call to action for all stakeholders to take responsibility and work towards building an inclusive society where persons with disabilities can lead dignified lives.
The Situation of Persons with Disabilities in South Sudan
South Sudan is home to a population of approximately 14 million, with an estimated 15% of this population living with disabilities. The ongoing civil conflict, displacement, and lack of essential services have exacerbated the vulnerabilities of PWDs. Many of them face compounded challenges, including limited access to healthcare, education, and employment opportunities. Furthermore, societal attitudes and deep-seated stigmas often lead to isolation, discrimination, and neglect.
Inaccessibility of Basic Services The lack of infrastructure, particularly in rural areas, remains a major hurdle for persons with disabilities. Most public buildings, schools, healthcare facilities, and transportation systems are not disability-friendly, making it difficult for PWDs to access essential services. Those living with physical disabilities, including those who use wheelchairs or crutches, often find themselves confined to their homes because they cannot navigate the country’s roads and buildings.
Barriers to Education Access to education for children with disabilities remains a major issue. Most schools do not have the necessary resources, including trained teachers, assistive devices, and proper facilities, to cater to students with disabilities. As a result, many children with disabilities are excluded from formal education, condemning them to a future of limited opportunities.
Health Care Challenges Access to specialized health care for PWDs is extremely limited. There is a shortage of medical professionals trained to work with persons with disabilities, and essential treatments, including physiotherapy and mental health care, are often unavailable. This leaves many PWDs in chronic pain, unable to manage their conditions, or living in poor health.
Economic Exclusion The majority of PWDs in South Sudan are unemployed, with limited opportunities for economic empowerment. Many businesses and employers do not consider persons with disabilities as part of their workforce, often due to misconceptions about their capabilities. This economic exclusion not only limits their independence but also contributes to the poverty cycle that many disabled persons find themselves trapped in.
Social Stigma and Discrimination The cultural stigma surrounding disabilities is pervasive in South Sudanese society. Persons with disabilities are often seen as a burden, and in some cases, they are hidden away in homes or treated as second-class citizens. This marginalization contributes to poor mental health, loneliness, and social isolation for many PWDs.
The Role of Government, International Community, Donors, and Parents
To address the issues faced by persons with disabilities in South Sudan, it is imperative that all stakeholders take proactive steps to create a more inclusive environment.
Government's Responsibility The South Sudanese government must take the lead in improving the lives of PWDs. It is essential that the government enacts and enforces policies that promote inclusivity. This includes:
Legislation: South Sudan must ratify and implement the United Nations Convention on the Rights of Persons with Disabilities (CRPD). It is crucial that laws are put in place that protect the rights of PWDs and ensure they have equal access to education, healthcare, and employment.
Infrastructure Development: The government must prioritize making public spaces and transportation systems accessible for PWDs. This includes building ramps, accessible toilets, and creating disability-friendly schools and clinics.
Awareness Campaigns: Government-led campaigns to reduce stigma and raise awareness about disabilities can help shift societal perceptions. Collaboration with media outlets to showcase the abilities of PWDs rather than focusing on their limitations is key.
The Role of the International Community and Donors The international community, including donor organizations and humanitarian agencies, has an important role to play in supporting persons with disabilities in South Sudan. International aid should be directed towards:
Inclusive Education Programs: Donors should fund initiatives that provide education to children with disabilities, including building specialized schools, providing assistive devices, and training teachers.
Health Services and Accessibility: There is a need for investment in accessible health care for PWDs, especially those requiring physical rehabilitation, mental health care, and specialized medical treatments.
Advocacy and Capacity Building: International donors can support local NGOs working for the rights of PWDs by funding advocacy campaigns and capacity-building programs. These programs can help strengthen local organizations that are fighting for disability rights.
Parents and Communities Parents and local communities also play a critical role in the lives of PWDs. By fostering a supportive, inclusive environment, they can contribute to breaking down barriers:
Encouraging Education: Parents should advocate for their children with disabilities to attend school and ensure they receive the support they need. It is important for families to work with schools to ensure that reasonable accommodations are made.
Promoting Inclusion: Local communities should encourage the inclusion of PWDs in social activities and discourage practices that marginalize or isolate them.
Raising Awareness: Parents and local leaders can raise awareness about disabilities, combat myths, and promote positive attitudes toward persons with disabilities.
A Call to Action
On this Disability World Day, we call on the South Sudanese government, the international community, donors, and all members of society to take immediate and sustained action to improve the lives of persons with disabilities in South Sudan. It is crucial to remember that PWDs are an integral part of our communities, and their contributions are essential for the development of a peaceful, prosperous, and inclusive society.
We must work together to ensure that PWDs in South Sudan are not left behind. Let us commit to providing the support and opportunities they need to thrive. Today, we stand in solidarity with persons with disabilities and reaffirm our dedication to ensuring their rights, dignity, and full participation in society.
Conclusion
As we observe Disability World Day 2024, let us honor the resilience, strength, and potential of persons with disabilities in South Sudan. This is not just a day of reflection, but a call for action. We all have a part to play in building a society that celebrates diversity and provides equal opportunities for all. Let us move from words to action, making South Sudan a place where everyone, regardless of ability, can live with dignity, respect, and opportunity.
Repent Woroh Odrande
Amadi FM 93.8 is a community radio station in Greater Mundri county established in 2020.
