08/28/2025
One of my goals has always been to see something I created up on a billboard in my hometown.
Instead, it went straight to the New York Stock Exchange.
Surreal. Unreal. Grateful.
Last week, I had the privilege of working with the incredible team at to design the digital assets displayed across the as they rang the Opening Bell, a ceremonial milestone that spotlighted their mission to fund treatments and cures for Epidermolysis Bullosa (EB), also called “Butterfly Disease.” EB is a rare condition where skin is as fragile as a butterfly’s wings, blistering from even the lightest touch.
Standing on the podium alongside families, advocates, and supporters as the bell rang was a once-in-a-lifetime moment, one that I’m still processing. To create work that not only reached Times Square-level visibility but also amplified awareness for such a courageous community feels like a dream I didn’t even know I had... coming true.
I’m endlessly thankful for the opportunity, the team, and this mission. EB Research Partnership’s vision is one of the most ambitious, compassionate, and inspiring I’ve ever witnessed, and I can’t wait to see the milestones still to come, for EB, and for the future of rare disease research.
🦋 Here’s to hope, science, and storytelling coming together in ways bigger than I could have ever imagined.
