12/08/2025
Tonight I had the honor of sitting on a panel alongside other strong and inspiring caregivers and parents navigating the Dravet world.
We shared our stories in a room full of healthcare providers, scientists, advocates, and professionals attending the American Epilepsy Society Annual Meeting.
Many of you know our journey with Weston’s diagnosis from day one, and some of you also know we had the opportunity to be part of a powerful Dravet documentary that was filmed earlier this year.
I won’t lie… tonight made me nervous. Partly because these pregnancy hormones are no joke and I thought for sure I’d do more crying than talking…but also because sharing our story and what life looks for us now never gets easier. Still, I walked away feeling encouraged and empowered… reminded that we’re not alone on this journey, that our Dravet community is strong, and that even when we don’t know what the future holds with Weston, we trust the one who does. 🙏🏽
No matter what, we’ll always remain hopeful for a cure, expectant for miracles, and I’ll never stop being a voice for my boy! 💜🦋