Cystic Fibrosis Team Boo Boo

09/09/2025

It's senior year for BooBoo we are blessed to see her grow and become a strong lady

10/28/2023

Her pink out day at college

10/28/2023

She is doing well and we pray she gains a little weight but all in all she is thriving and becoming the most beautiful soul I know

09/30/2023

Yall pray for us we lost our fur baby this morning to a tragic accident this is devastating if yall know Deal when you seen him you saw Snoop Lord help us. 💔

06/14/2023

05/09/2023

So everyone I am about to vent in 2008 my life changed drastically not only did I have a beautiful daughter she was diagnosed with CF never in my life had I ever heard of it at the age of 17 I didn't know what to do with doctors telling me her life expectancy was only her late teens early 20s what was a mother to think I almost lost it but I had to do something so I prayed and cried and cussed God but as I looked at my child every day I saw she was my reason my reason for change and my reason to grow not physically but mentally towards God and his doings so as I grew closer to God I started to realize everything is in his hands and no matter what shall happen in our future he has a purpose for me and my family I know some of you could never understand what God has done for me and sometimes I don't understand but through the God I serve I know this is his will and i will always look to him because I've seen the miracles he has done so now as we take things day by day no matter what the doctors say I know it's all up to him and I thank God for all he has done 🙏💗🙌 May is CF awareness

05/09/2023

She got a surprise from her brother last week and he stays fussing at her about her treatments and taking care of herself 🙏

05/09/2023

For my baby

03/29/2023

Update: my baby's blood pressure is low her vitamin D is way too high....we are on solid foods that's one good thing. I want to thank everyone for the text and calls we appreciate you all. I did manage to get her to smile a little but she is still weak so after school work(yes momma don't play about school) she slept a lot of the day.. please keep her in your prayers 🙏.

03/28/2023

With Cystic Fibrosis you never know what may act up but we are making it through this journey day by day and ask for prayer she is doing better but sometimes her body gets a little off track and we have to take different methods to get it back on the right course no matter what God always has the last say

03/23/2023

Well this is the message I received from her GI today:::

I attempted to call you and it went to voicemail. Dr. Bashaw is sorry to hear she is not feeling relief. Do you and Adrienne feel her symptoms are to the point that she is in need of an admission to help clean out her bowels? While we are working on PA for Amitiza, there is no guarantee that it will be approved or that it will fully alleviate her situation.

Thanks,
Katie, RN

PS: I am asking them to hold off due to the fact she has a Cystic Fibrosis appointment on Monday and I rather get her specialist opinion... I will keep everyone updated but if you don't mind please send some prayers our way