Grace On Wheels

Grace On Wheels Olivia: T8 Paraplegic 👩🏻‍🦽‍➡️
Kat: Mom and Caregiver 💞
👉 SpinalCordStroke 👉 SpinalCordInjury
👉 Disability 👉 Caregiver
👉 SpinalCordInjuryAwareness
🙏🏼 💚 💪

Spinal Cord Injury Awareness

UPDATE  #2: Waiting for discharge paperwork and we’re outta here! One last attempt with the guide wire to place the cath...
05/30/2026

UPDATE #2: Waiting for discharge paperwork and we’re outta here!

One last attempt with the guide wire to place the cath before resorting to the OR and it worked! No OR or heavy sedation needed!

Olivia now has a smaller gauge catheter taped into her site with an optional bag attachment until we see her doc in clinic. Thank God!

Agenda for the rest of the day:
👉 Drive home
👉 Nap
👉 More napping!

Until next time (like next week 😂)…

Always grateful,
Kat

UPDATE: Olivia was admitted to Boston Children’s Hospital. It’s 1:00 am and she’s finally settled in her room. It’s a go...
05/30/2026

UPDATE: Olivia was admitted to Boston Children’s Hospital. It’s 1:00 am and she’s finally settled in her room. It’s a good thing we packed a set of clothes and supplies - just in case.

The doc was not able to get the catheter inserted, even with a guide wire.

The hope is that the team will round in the morning and discuss the option of bringing her to the OR under sedation to try a guide wire with camera to insert a catheter, tape it in place, leave it until further instruction from her urology team, and head home.

But as we’ve learned, especially the last year and a half, things don’t always go according to *our* plans. So, we wait and see.

More updates tomorrow and hopefully it’s one that says we’re going home. 🙏🏼❤️

I’m grateful for this hospital and Olivia’s team of knowledgeable, experienced, compassionate medical professionals. And for all of you who support us along the way.

On the advice of Olivia’s doctor, we’re headed to Boston Children’s Hospital ED. We haven’t been able to get a catheter ...
05/29/2026

On the advice of Olivia’s doctor, we’re headed to Boston Children’s Hospital ED.

We haven’t been able to get a catheter inserted into her newer site (and thankfully she’s able to empty her bladder with standard catheterization for now).

They are hoping they can manipulate it to get tape a cath in the site so she doesn’t have to undergo surgery again. Here’s hoping for a quick visit and no admission.

Updates to follow and prayers welcome.

05/25/2026

🧑‍⚕️ Caregivers: How would *you* like people to respond? What is helpful to you?

This message spot on and not meant to put down well-meaning friends. It’s hard to know what to say to a caregiver, especially if you’ve never walked in their shoes. Caregivers for loved ones are most often in an “always on” mode.

Caregiving for loved ones takes a toll physically, emotionally, financially, and spiritually. It’s not that it’s a burden to care for our loved ones; it’s that there never seems to be an off button.

Caregivers spend an average of 27 hours per week providing care, and 24% provide 40 or more hours a week. That’s care outside of average weekly household, family, and work duties, in and out of the home. Many caregivers have been forced to quit their jobs or drastically reduce their working hours outside of the home.

We’re not hero’s, or strong, or special because some people “could never do it themselves”. We’re tired, and emotional, and strapped in every way. We’re here because we love our loved ones and this life chose us. And we don’t really have another choice.

Let me know what your experiences have been as a caregiver! I’d love to hear from you.





05/11/2026

We haven’t posted in a while but we’re still here! Life has been a struggle but it’s not without its wins. Here’s Olivia’s first time trying out at Planet Fitness!

Always something to be grateful for. ❤️



03/30/2026

💫 Olivia’s new equipment! (READ👇)

The Klaxon Twist is a wheelchair power assist that gives the user more maneuverability and accessibility.

Olivia can attach her Klaxon Twist three ways:

👉 To the rear of her chair to push her forward;
👉 To the front of her chair without handlebars to pull her forward;
👉 To the front of her chair WITH handlebars to pull her forward and give her even more steering capabilities.

Accessibility matters. 👩🏻‍🦽‍➡️





03/03/2026

Caring for yourself as a caregiver…

I’m Olivia’s mom and primary caregiver for her spinal cord injury.

I have a 20 year old son with Level 2 Autism.

I also live with chronic illness.

It’s a lot but it’s doable.

Taking care of my body, my mental health, my spirituality, is all so important to make this work and that’s a reminder to myself as much as it is to others! It’s definitely a work in progress.

Don’t forget to hit that FOLLOW button! 🙏🏼❤️

And share with others who may be traveling this same journey.





Remember, just because you’re not disabled today, doesn’t mean you won’t be tomorrow. There are no safety nets that meet...
02/22/2026

Remember, just because you’re not disabled today, doesn’t mean you won’t be tomorrow. There are no safety nets that meet all of your needs when you do. It is a broken and faulty system and most people with disabilities, visible or invisible, are barely getting by due to gaps in healthcare, finances, housing, accessibility, home care, and more.

02/17/2026

Can you spot them???

The ADA Nerd is right — putting an accessible sign up doesn’t magically make it so. Neither does just throwing in a grab bar. Can you spot the reasons this bathroom isn’t wheelchair accessible? Put them in the comments!

Guess who’s going home today?!!Olivia has been in the hospital for post-op recovery for a week. Her pain lessens a littl...
02/17/2026

Guess who’s going home today?!!

Olivia has been in the hospital for post-op recovery for a week. Her pain lessens a little each day.

At this time, she has a temporary supra p***c tube below and to the left of her belly button that will stay in place to continuously drain urine for the next 3-ish weeks.

Olivia also has a her new Matrofanoff site with a tube placed below and to the left of her belly button, also for another 3-ish weeks but that is capped and unusable until the site heals.

When we go back to clinic for follow-up, the docs will remove the SP tube, remove the Mitrofanoff tube, teach her (and me) how to cath using the new Matrofanoff site and she will be on her way - tube free!

As of last night, she is able to transfer from/to level surfaces using her slide board and some assistance. She’ll get back to baseline the more she works on it.

I’m so proud of her and excited that this new Mitrofanoff will allow her easier access to cathing and lower risk of infection/UTIs!




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Boston, MA

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