Got Hydrocephalus?

Got Hydrocephalus? Content creator providing information, news and advice to those living with Hydrocephalus like myself.

08/22/2025

Curious about what we’ve been up to lately? Wondering how you can contribute to the positive changes we've been making? Get an overview of the ADA National Network activities and information about the regional ADA Centers' unique projects here: https://adata.org/national-network-projects

08/22/2025

Ain’t no mama like a NICU mama 💪🏽🍼
She advocates. She sacrifices. She shows up when it’s hard.

Tag a NICU mama who embodies this strength every single day. 💛

08/22/2025

Hi everyone! 🌟 You can support me by sending Stars - they help me earn money to keep making content you love.

Whenever you see the Stars icon, you can send me Stars!

My cutie 💙
08/22/2025

My cutie 💙

08/21/2025

I’m already ready for it to be after work hours tomorrow.

I need a job to be excited to go to everyday. I. Am. Exhausted.

08/20/2025
08/20/2025
Shout out to my newest followers! Excited to have you onboard!Savannah Cashman, SHARiFUL ISLAM, Christine Musango, Valia...
08/20/2025

Shout out to my newest followers! Excited to have you onboard!

Savannah Cashman, SHARiFUL ISLAM, Christine Musango, Valiant Kutlwano, Amanda Bstutts, Tiffany Kelso, Amanda Swift, Bethany Ingram Murphy, Maestro Gopal Patel ૐ, Jacque Rose, Jez Hanson

Big shout out to my newest top fans! 💎Samantha Nicole Moser, Patrick Kelley, Ryder Bruen, Manraj Kaur, Wendy Cruz, Dallo...
08/20/2025

Big shout out to my newest top fans! 💎

Samantha Nicole Moser, Patrick Kelley, Ryder Bruen, Manraj Kaur, Wendy Cruz, Dallon K Viklund, Jessica A Hoff, Michael Shaw, Jeremy Sherman, Ron Patrick Kelleher, Tanya Sorensen, Christopher Sierra, Lydia JamTone Toney, Siphosethu Malinga, Renee M. Mercier, Lovelle Campbell, Ana Flores, Jonathan Morrison, Helen Irene Esterly, Cheryl Wheeler, Thomas Gene Parady Jr, Tina Marie, Robert Kerr

Drop a comment to welcome them to our community,

Thanks for being a top engager and making it on to my weekly engagement list! 🎉Jonelise Bosman, Valiant Kutlwano, Ryder ...
08/20/2025

Thanks for being a top engager and making it on to my weekly engagement list! 🎉

Jonelise Bosman, Valiant Kutlwano, Ryder Bruen, Tanya Sorensen, Daquasha Smith, Niki Stanley, Glenn Miller, Christopher Sierra, Simon Day, Alastair Wardhaugh, Toni Lz, Alexia Sifford, Derek Jefferies, Michael Shaw, Verneisha George, Kelsey Kjt Thompson, Christine Musango, Thomas Bartel, Sandy Lawton, Havyn Lezotte, Amanda Baggett Stutts, Lulu Abdulla, Robert Kerr, Jonathan Morrison, Laurie Ford, Åse-Line Hasselgård, Debra A Viramontes Cota

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My story

I was a premature baby, born at 29 weeks on July 6th, 1996 - my birth date was originally September 17th. My first shunt was put in on August 20th, and I was in the hospital for two months prior. A VP (ventriculoperitoneal) shunt was in place.

There were no problems for sixteen years until October 17th, 2012 during my sophomore year of high school. I started getting bad headaches, neck pain, all along my shunt tract. Pain I had never experienced before in my life. When the pain got so bad, I had had to go to the hospital. Long wait in the ER for scans to be done to determine the other part of my life. I had a full shunt revision.

Shortly after my second surgery, on the day before Thanksgiving 2012, I had my third. On November 21st, CSF (cerebrospinal fluid) was leaking from the incision on my head scar. My fourth revision was on February 3rd, 2013 because of leakage as well.

Again, everything was alright for two years until 2016. My fifth revision was April 19th and sixth was on July 24th.