Belonging is Bliss

Belonging is Bliss Real Life•Wheelchair Mom•Disability Advocate•LGMD 2B/R2 Warrior•Adult ADHD •Disney Girl•Lego Obsessed•Girly Girl•PINK Everything
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09/18/2026

Part 6 - LGMD 2B 101
The Polymyositis Misdiagnosis

Always advocate for comprehensive genetic sequencing.

09/18/2026

Part 5 - LGMD 2B 101
Inheritance & Genetics

Genetics 101: Autosomal recessive inheritance means you need two altered copies of the DYSF gene (one from each carrier parent) to develop LGMD2B/R2. Most carriers live their entire lives without ever knowing it!

Quantum Rehab

09/18/2026

High Creatine Kinase (CK) is often the first red flag that something is happening at the cellular level in someone with LGMD 2B (dysferlinopathy). When cell membranes leak, CK pours into the bloodstream.

09/17/2026

Part 3 - LGMD 2B 101
No heavy lifting

The classic fitness mantra "no pain, no gain" is dangerous advice for people with dysferlinopathies. Without the cellular machinery to patch micro-tears, heavy eccentric exercise causes irreversible damage.

09/16/2026

Life hack gadget!! If you have a hard time opening your mail this is the best little gadget. I absolutely love mine. This automatic letter opener is lightweight, rechargeable, and comes in a couple of different colors.
💌 Link in the comments 💌

09/16/2026

Part 2 - LGMD 2B 101
The New Name

Medical naming changes as genetic mapping advances! What used to be labeled LGMD2B is now classified as LGMDR2 (dysferlin-related). Have you ever had a medical diagnosis change names on you?

09/16/2026

Part 1 - LGMD 2B 101
If you’ve ever wondered what "dysferlinopathy" or LGMD2B actually means on a cellular level this is a good analogy. Did this video help it click? Drop a comment below! 🧬

09/11/2026

Here’s another outfit of the day! And this time it comes with a link!!
As a NEW Amazon Associate, I am excited to share the things I love and things that make my life easier!

Amazon Associates

09/09/2026

Why don’t models ever do a seated position when modeling clothes?!?

Quantum Rehab

08/19/2026

Honda where are all the fuel pumps at?!?

I have two wheelchair accessible vehicles but I am still not mobile! Van needs a fuel pump that is on back order for who knows how long and SUV with ParaVan Space Drive hand controls has an issue with the steering device.

All very much first world problems but still highly frustrating. Welcome to life with a disability.

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