12/19/2025
For decades at Boston Children's Hospital, John Costello has practiced his specialty: saving patients’ voices. Thanks to Costello and the clinicians around the world he’s trained in his methods, several thousand people, most of them ALS patients who know they will eventually lose control of the muscles in their mouth and larynx, have been able to preemptively preserve the ability to communicate using the sound of their own voice. He is an international leader in the field of “augmentative communication,” and voice cloning is the latest development.
There are other tools out there that help speechless folks communicate using robotic-sounding voices and generic language. Costello’s efforts, though, are unique. He wants patients to sound like themselves. After all, to lose one’s distinctly individual voice, with all its unique color and character, is to lose a piece of identity. “The voice is an acoustic fingerprint,” Costello said. “There are turns of phrase you use that the people around you appreciate and recognize—and it’s not just the words, it’s also the delivery.” Read more:
ALS robs patients’ voices. John Costello ’83 saves them.