01/05/2026
In the quiet Oak Park streets, Abel Berumen sits in his home studio, moving his hands carefully along his half-finished sculpture. Sunlight glistened off his tools, tools he can no longer see but still knows by touch. Once a celebrated photographer, Beruman now creates through texture, memory and sound, finding new ways to see in the dark.
“Everyone I knew, knew me as a photographer, and all of a sudden, the photographer is blind. It’s like a sad joke,” he said.
Amid the height of his artistic endeavors, in 2016, after what seemed like an ordinary night’s sleep, Berumen woke up blind. The cause was a rare hereditary condition called pseudoxanthoma elasticum. The disorder progressively deteriorates eyesight: “It looks like the person I am looking at is under murky water,” he said.
This changed everything for Berumen.
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✍️: Miguel Giebink
📸: Provided by: Abel Berumen