ALS News Today

09/18/2026

With ALS, tasks that once felt automatic may gradually require more energy, grip strength, dexterity, coordination, or adaptive tools over time: https://bit.ly/3ZoCD7T

For many people living with ALS, symptoms involving hand weakness, muscle fatigue, spasticity, reduced fine motor control, or mobility changes can affect daily independence in ways others may never notice. Small frustrations can add up physically and emotionally throughout the day.

This reflection highlights some of the challenges people with ALS navigate regularly while also emphasizing the importance of accessibility, understanding, and adaptive solutions that can help preserve comfort and independence.

09/18/2026

Explore this study that found a strong geographic association between ALS and multiple sclerosis: https://bit.ly/4h1wI1U

Researchers say this pattern points toward possible environmental factors influencing both diseases.

09/18/2026

Being the first person in your family diagnosed with ALS can bring a unique layer of uncertainty, especially when there is no known family history. Questions about genetics, risk, identity, and what this diagnosis means for loved ones can sometimes feel overwhelming: https://bit.ly/4oyJ6rr

For some people, genetic testing provides clarity or answers. For others, it may raise additional emotions, decisions, or conversations within families. Experiences around familial ALS and genetic testing can vary widely from person to person.

If you were the first in your family diagnosed with ALS, how did that experience affect you or your family?

09/18/2026

ALS affects the motor neurons responsible for controlling voluntary muscle movement, gradually disrupting communication between the brain and muscles over time. Researchers continue working to better understand the biological changes behind ALS, including how the disease develops and progresses: https://bit.ly/3MRvhXk

This resource breaks down the science behind ALS in a more approachable way while exploring some of the key processes researchers are studying today.

09/18/2026

Take a closer look: https://bit.ly/4y2rith

Geneuro received a European patent for GNK-301, an ALS therapy candidate targeting a viral protein thought to contribute to the disease.

Geneuro received a European patent for GNK-301, an ALS therapy candidate targeting a viral protein thought to contribute to the disease.

09/18/2026

Discover more: https://bit.ly/46xm50F

A brain-computer interface enabled a woman with a motor neuron disease to generate her own words in real time, according to its developer.

A brain-computer interface enabled a woman with a motor neuron disease to generate her own words in real time, according to its developer.

09/17/2026

Discover more: https://bit.ly/4jaBz20

Columnist Kristin Neva pauses to reflect on the uncertainty of living with ALS, even as she commits to making memories with her husband.

Columnist Kristin Neva pauses to reflect on the uncertainty of living with ALS, even as she commits to making memories with her husband.

09/17/2026

What would you tell someone who just received an ALS diagnosis? Add your perspective here: https://bit.ly/4ntdUK0

An ALS diagnosis can completely change the direction of someone’s life in a single conversation. Hearing from others who have lived through it can make that road feel a little less isolating.

Maybe there’s something you wish someone had told you sooner. Maybe it’s practical advice, something emotional, or simply a reminder to take things one step at a time. Your perspective could be exactly what someone else needs to hear today.

09/17/2026

Take a closer look: https://bit.ly/3TCmdcf

Keynote speaker Mindy Henderson redefines "impossible" ahead of MDA Engage: Chicago, taking place Sept. 25-26 at the Westin Chicago Lombard.

Keynote speaker Mindy Henderson redefines "impossible" ahead of MDA Engage: Chicago, taking place Sept. 25-26 at the Westin Chicago Lombard.

09/17/2026

When “How are you feeling?” is always a complicated question as a patient or caregiver. 😅

Kiersten lives with Friedreich's ataxia (FA), but this feeling can be familiar across many chronic and rare disease communities.

Living with ALS or caring for someone who is? Connect with others who get it: https://bit.ly/4gUny7f