Ash Fights Lupus

04/02/2026

Ya’ll the pink gown came out, and suddenly that old vulnerability and embarrassment showed up too. Gotta keep reminding myself that this discomfort is temporary while I walk through treatment. My Great Aunt would say “You can live in hell one year if you know you’ll get out of it the next.” ‼️

I’m out here leaning on Psalm 22 this week, because here King David shows us that agony eventually turns into God’s great glory. I’s waiting in faith!

“He has not hidden his face from him but has listened to his cry for help.” Psalm 22:24

I’d 𝓵𝓸𝓿𝓮 to connect personally with you all via DM but it’s a bit overwhelmingly as I share across all socials not just here, so please hit the link in my bio to chat or send me an email.

04/01/2026

If you saw me in 2014, you saw the fight. In 2015, I was healing, but I wasn’t quite there yet. I remember leaving my big cousin’s wedding just to get my arms airbrushed because I couldn’t face the stares. I walked back in, my mama cried, and I felt safe behind the mask.

But fast forward to 2018. The shame was gone. I wore my arms out at my own wedding, scars and all, because the truth of my healing was more beautiful than any edit. I’ve realized that being perfect is exhausting, but being real? That’s where the freedom is. 🕊️✨Plus my man and my girls said “Girl, Bump them people.” 😂

“For am I now seeking the approval of man, or of God? Or am I trying to please man? If I were still trying to please man, I would not be a servant of Christ.” Galatians 1:10

📧 I love to hear yalls stories and getting to know you all, so please head to the link in my bio to chat or send me an email, if you don’t hear back from me. 🤍✨

03/29/2026

Nobody: 🫣

Me: sharing how I check the mail like I’m headed into a snowstorm… just to avoid the sun. 😂☀️

For lupus patients, the sun is not just ‘a little hot.’ UV rays can trigger flares, rashes, inflammation, and straight-up chaos in our bodies.

So yes… this is my mail-checking uniform. 😭

‘The Lord will keep you from all harm; He will watch over your life.’ – Psalm 121:7

The same way I cover my skin with discoid lupus from UV Rays, God covers my whole life.

If you know someone with lupus, share this so they do not feel alone.

And sis, protect your peace and your skin. You deserve to feel safe outside.

03/19/2026

No, I still can’t pronounce Sjögren’s disease, so HUSH 😅😩 If you’ve got dry skin, dark spots from Lupus, or even eczema that acts up whenever it wants, HEY TWIN. 👋🏽

🧼This turmeric bar from has been brightening my dark spots, calming my rash, and keeping my skin soft without stripping me of moisture.

And listen… Deuteronomy 24:8 said take skin conditions seriously, and I follow my rheumatologist’s orders like it’s Levitical law at this point. 😂


If your skin’s begging for relief, go get yours and use ASH15. ✨I’ll link these skin-savers in my bio for you!

03/11/2026

Lupus doesn’t just show up in my joints or my labs — sometimes it shows up right on my scalp. The itching, redness, flakes, and hair loss can feel like another battle on top of everything else. 😞

But I’m reminded that even when my body feels out of balance, my worth never is. “I will praise thee; for I am fearfully and wonderfully made: marvellous are thy works; and that my soul knoweth right well.” – Psalm 139:14 (KJV)

And then 🫚 Ginger Root & Cinnamon entered the group chat, yall. I’m crushing on this Scalp Stimulating Treatment Mask; it’s bringing immediate comfort to my scalp. It’s gentle, helps calm the irritation, and leaves my curls soft and manageable. ITS GIVING BOUNCE, BOO! 👩🏽‍🦱

SCREENSHOT THIS CODE NOW, GIRL: ASH15

🤏🏽 It’s a little act of care that reminds me I’m still me, flare or no flare.
🟣 If lupus has touched your hair or scalp, you’re not alone.
📌 Save this post for the days you need to remember: beauty isn’t lost, it’s rooted in God’s truth.

🔗 Dropped the link for yall in the comments. I'ma gon’ have to keep this on the shelf! 💯

03/05/2026

Such a great explanation of how and why the sun loves me so much 🫠

Down south, the sun is starting to make its case for spring, folks. And if you know someone w Lupus, you know we are basically hiding in dark, cold corners of our home. So what exactly does heat and sun do to a Lupus body as we move into Spring and Summer? Here’s some of the science: In patients with lupus, sun/UV exposure and heat can trigger symptom flares.
👉🏻UV Damage: Ultraviolet (UV) rays from the sun damage skin cells and their DNA, in a process known as apoptosis.
🤦🏻‍♀️Impaired Clearance: In healthy individuals, the immune system efficiently clears away these damaged or dead cells. However, in people with lupus, this process is slow and impaired.
👉🏻Immune System Overreaction: The lingering dead cells, along with their altered contents (including DNA fragments), can be misinterpreted by the lupus immune system as foreign invaders.
💀Autoimmune Attack: This triggers an autoimmune response, where the body’s own immune system attacks healthy cells and tissues, leading to inflammation and lupus symptoms.
👉🏻 it’s important to remember, not just the sun, but also fluorescent and other types of lights give off UV rays and can also trigger symptoms as well.
When it comes to heat: Heat can potentially exacerbate existing inflammation in the body, which is a hallmark of lupus.
Stay safe! Stay inside when possible during these hot months, and rest more if you’re body feels like it is struggling more than normal 💜

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