Ash Fights Lupus

Ash Fights Lupus Fighter. Writer + Blogger

The hidden costs of autoimmune disease don't show up on the pharmacy receipt. 💸New episode is live — I'm talking about t...
07/24/2026

The hidden costs of autoimmune disease don't show up on the pharmacy receipt. 💸

New episode is live — I'm talking about the expenses no one warns you about, how I save manually to stay ahead of them, and the resources + organizations that can actually help.

Link in bio 🎧 (or: link in comments, if the platform doesn't allow bio links)

Been there? Drop your own hidden-cost story below 👇 And if you ever need pointers to resources, my inbox is always open.

Happy World Sjögren’s Awareness Day to everyone whose chapstick collection is out of control and whose water bottle is n...
07/24/2026

Happy World Sjögren’s Awareness Day to everyone whose chapstick collection is out of control and whose water bottle is never out of reach. 💙💧

Approximately 14% to 18% of lupus patients also develop secondary Sjögren's syndrome, a combination that typically leads to higher disease activity, greater risk of organ damage, and lower remission rates.

So yes Ash Fights Sjögrens, too. 😉

To my dry eye, dry mouth, exhausted-for-no-reason warriors, you know that staying hydrated is practically a full-time job. You’ve probably tried every eye drop on the market and can review humidifiers like a seasoned critic.

Living with Sjögren’s has taught me what thirst really feels like, not just physically, but spiritually too. That is why these Scriptures have been on my heart today.

“As the deer pants for streams of water, so my soul pants for You, my God. My soul thirsts for God, for the living God.” Psalm 42:1-2

Our bodies understand thirst in a way many people never will. Even so, our deepest need has never been water alone. It has always been the presence of God.

That is what makes His promise in Isaiah so powerful.

“For I will pour water on the thirsty land, and streams on the dry ground; I will pour out My Spirit on your offspring, and My blessing on your descendants.” Isaiah 44:3

Then Jesus reveals where that promise is fulfilled.

“If anyone thirsts, let him come to Me and drink.” John 7:37

I love how these Scriptures fit together. Psalm 42 gives words to our longing. Isaiah 44 reminds us that God promises to pour out His Spirit on thirsty places. John 7 points us to Jesus, the One who satisfies the deepest thirst our souls will ever know.

We may live with physical dryness every day, but we never have to face spiritual dryness alone. In Christ, there is living water, lasting hope, and strength for every season.

Now for an important question.

What’s the weirdest place you’ve ever found, or hidden, an emergency chapstick? 😂 I recently found one in my car’s cup holder after it had melted and re-solidified more than once. And yes, I still used it.

Share your best Sjögren’s survival confession below. Let’s laugh together, encourage one another, and remind each other that we are so much more than our diagnosis.

We are deeply loved, sustained by His grace, and never without hope. 💜💧

07/20/2026

Prepping for when Netflix starts filming the documentary on how eldest daughters are most likely sick.

FOUR autoimmune diseases.
Systemic Lupus.
Sjögren’s Disease.
Discoid lupus.
Tonic-Clonic Epilepsy.
& Stroke survivor.

And apparently science backs it up.

The kind of plot twist you don’t see coming.

But God did.

He wrote the plans before I took my first breath—and He already knows how this ends.

So yeah, I’m living in the messy middle right now.
But my faith says the Author knows the outcome.

Any other eldest daughters out here trusting the process even when the plot gets heavy? 🙋🏾‍♀️

👀🙋🏽‍♀️ Catching Lupus Nephritis Early Could Change EverythingThis is a conversation I wish I'd had when I was first diag...
06/30/2026

👀🙋🏽‍♀️ Catching Lupus Nephritis Early Could Change Everything

This is a conversation I wish I'd had when I was first diagnosed. Lupus nephritis doesn't always announce itself with obvious symptoms, and by the time you feel something, damage may already be happening. Early detection is everything.

In this conversation with Dr. Ashira Blazer (), we talk about how to catch lupus nephritis early, what tests to ask for, and why staying ahead of kidney involvement matters so much for your long-term health.

🎙️ Save this for later and share it with someone living with lupus. Watch the full episode on YouTube or listen on Spotify. *LINK IN COMMENTS*
Developed by Vindico Medical Education and supported by an educational grant from Genentech, a member of the Roche Group.
Project Info: VindicoCE.com/H674

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