Muscular Dystrophy News

Muscular Dystrophy News We are dedicated to sharing the latest news, research, and muscular dystrophy patient perspectives.

💬 Ever wondered how simple changes at home can boost independence for someone with Duchenne Muscular Dystrophy? https://...
12/21/2025

💬 Ever wondered how simple changes at home can boost independence for someone with Duchenne Muscular Dystrophy? https://bit.ly/3HyJR3k

From widening doorways and adding stairlifts to installing grab bars and lowering counters—these practical adaptations help make daily life more independent and safer.

Corticosteroids are a key part of managing Duchenne—but they’re not one-size-fits-all. https://bit.ly/4lmNuY1🧠💪 With the...
12/20/2025

Corticosteroids are a key part of managing Duchenne—but they’re not one-size-fits-all. https://bit.ly/4lmNuY1

🧠💪 With the right insights and guidance, you can balance benefits, side effects, and long-term needs.

12/20/2025

Planning ahead with advance directives isn’t scary—it’s caring. https://bit.ly/4fp6ALI

Patrick Moeschen shares why setting up advance directives is one of the most caring gifts you can give yourself and your family. His personal story—paired with his video introduction—makes the advice feel clear, practical, and compassionate.

Living with a rare disease like Myasthenia Gravis comes with daily challenges—but also unexpected strength, purpose, and...
12/19/2025

Living with a rare disease like Myasthenia Gravis comes with daily challenges—but also unexpected strength, purpose, and resilience. 💚 https://f.mtr.cool/jhvijhucbs

This powerful piece is a reminder that you matter, your story matters, and your voice can uplift others.
Let’s keep sharing, connecting, and empowering one another.

Maintaining oral health isn’t always easy for people with Duchenne muscular dystrophy. https://bit.ly/4aLlD21Muscle weak...
12/19/2025

Maintaining oral health isn’t always easy for people with Duchenne muscular dystrophy. https://bit.ly/4aLlD21

Muscle weakness in the jaw, tongue, and hands can make brushing, flossing, and even dental appointments more difficult—and many families need to adapt routines to keep teeth and gums healthy.

Whether it's a tool, a technique, or a small daily habit, your experience could offer valuable support to someone facing the same challenges. 💚

📋 Getting diagnosed with Muscular Dystrophy can feel overwhelming—but you’re not alone.https://f.mtr.cool/sylcvugalf💬💪We...
12/19/2025

📋 Getting diagnosed with Muscular Dystrophy can feel overwhelming—but you’re not alone.https://f.mtr.cool/sylcvugalf

💬💪We’re here to walk you through what the process looks like.👇 Share this with someone who’s just starting their MD journey.

You don’t have to figure it all out alone. 💬 Whether you're newly diagnosed, a long-time caregiver, or somewhere in betw...
12/18/2025

You don’t have to figure it all out alone. 💬 Whether you're newly diagnosed, a long-time caregiver, or somewhere in between, our forums are a place to connect, ask questions, and share experiences with people who understand.

Real conversations. Real support. 💚Right here, when you need it:
https://f.mtr.cool/zzwnintsgp

Advocates are celebrating a recent U.S. federal decision by HHS recommending that all newborns be screened for Duchenne ...
12/18/2025

Advocates are celebrating a recent U.S. federal decision by HHS recommending that all newborns be screened for Duchenne muscular dystrophy. https://buff.ly/64gERlY

Advocates are celebrating a recent U.S. federal decision by HHS recommending that all newborns be screened for Duchenne ...
12/18/2025

Advocates are celebrating a recent U.S. federal decision by HHS recommending that all newborns be screened for Duchenne muscular dystrophy. https://buff.ly/OMAgzYp

Living with Duchenne brings unique obstacles and challenges: https://bit.ly/46WhyX9This article covers key resources to ...
12/18/2025

Living with Duchenne brings unique obstacles and challenges: https://bit.ly/46WhyX9

This article covers key resources to help guide a daily care plan—from specialized therapy and assistive tools to local and online support communities, financial assistance, and advocacy pathways. With expert care and a strong support network, families can build independence and quality of life. 🧠

They live it. They write it. 💬💪. https://f.mtr.cool/mdeukagykgMeet four incredible advocates and columnists who bring ho...
12/17/2025

They live it. They write it. 💬💪. https://f.mtr.cool/mdeukagykg

Meet four incredible advocates and columnists who bring honesty, heart, and firsthand experience to Muscular Dystrophy News. From caregiving insights to life with Duchenne and Becker, their stories offer support, perspective, and real-life connection to anyone navigating muscular dystrophy.

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