Muscular Dystrophy News

Muscular Dystrophy News We are dedicated to sharing the latest news, research, and muscular dystrophy patient perspectives.

The power of community was on full display at MDA’s 25th anniversary gala—and it was nothing short of inspiring. 💫 https...
07/14/2025

The power of community was on full display at MDA’s 25th anniversary gala—and it was nothing short of inspiring. 💫 https://bit.ly/3IfESol

In this column, Shalom shares moments that remind us why we advocate: reconnecting with lifelong friends, standing beside fellow survivors, and celebrating the hope this organization continues to build. 💚

Tap the link in bio to read the full story. 📖

🧠💪 Did you know there are over 30 different types of muscular dystrophy? Learn about the different types here: https://b...
07/12/2025

🧠💪 Did you know there are over 30 different types of muscular dystrophy? Learn about the different types here: https://bit.ly/44Jwl5I

Each one is unique—with different symptoms, age of onset, and progression. Understanding the differences helps you advocate, support, and care more effectively. 💬💚

Whether you're newly diagnosed, a caregiver, or just looking to learn more, this guide breaks it all down in a way that’s simple and clear. You’re not alone—we’re here to help you every step of the way.

Columnist Betty Vertin embraces July's slower pace, a much-needed respite from caregiving demands for her family of nine...
07/11/2025

Columnist Betty Vertin embraces July's slower pace, a much-needed respite from caregiving demands for her family of nine. https://buff.ly/o9xJ8Hn

A research team collected pain and prescription data from the medical records of 1,282 people with different types of mu...
07/10/2025

A research team collected pain and prescription data from the medical records of 1,282 people with different types of muscular dystrophy. https://buff.ly/Kv4oE9s

🌍 Big news for the Duchenne MD community! https://bit.ly/4lzALl8The European Commission has conditionally approved Duvyz...
07/09/2025

🌍 Big news for the Duchenne MD community! https://bit.ly/4lzALl8

The European Commission has conditionally approved Duvyzat (givinostat) for treating Duchenne muscular dystrophy—a major step forward in offering more treatment options for boys who are still walking. 💊💪

This is more than just an approval—it’s hope, progress, and proof that the MD community's voice matters. 💚

Columnist Shalom Lim is energized by a recent program for youth leaders in Singapore that matched them with people from ...
07/09/2025

Columnist Shalom Lim is energized by a recent program for youth leaders in Singapore that matched them with people from the MD community. https://buff.ly/PuCarLR

Households incur substantial costs to accommodate Duchenne muscular dystrophy (DMD) patients, according to a survey of U...
07/08/2025

Households incur substantial costs to accommodate Duchenne muscular dystrophy (DMD) patients, according to a survey of U.S. caregivers. https://buff.ly/moBba0u

🧠💪 Occupational therapy isn’t just about support—it’s about empowerment. https://bit.ly/45O71fXFor those living with Duc...
07/07/2025

🧠💪 Occupational therapy isn’t just about support—it’s about empowerment. https://bit.ly/45O71fX

For those living with Duchenne muscular dystrophy, occupational therapists play a key role in helping maintain independence, adapt daily routines, and build confidence through every stage of life.

Address

University Park, TX

Website

Alerts

Be the first to know and let us send you an email when Muscular Dystrophy News posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Muscular Dystrophy News:

Shortcuts

Share

Category