Muscular Dystrophy News

Muscular Dystrophy News We are dedicated to sharing the latest news, research, and muscular dystrophy patient perspectives.

Columnist Betty Vertin's sons with Duchenne MD have seen their social circle shrink over the years, but they now enjoy t...
10/10/2025

Columnist Betty Vertin's sons with Duchenne MD have seen their social circle shrink over the years, but they now enjoy time with each other. https://buff.ly/eH4aILj

Life with FSHD comes with challenges, but joy and laughter can reshape how we see the world. https://bit.ly/3VIXzUXThis ...
10/10/2025

Life with FSHD comes with challenges, but joy and laughter can reshape how we see the world. https://bit.ly/3VIXzUX

This week, Robin Stemple shares an honest, uplifting perspective on staying positive through it all.

10/09/2025

How do you take care of your mental health while managing MD?

Health Canada approved Agamree (vamorolone) to treat Duchenne muscular dystrophy (DMD) in patients ages 4 and older. htt...
10/09/2025

Health Canada approved Agamree (vamorolone) to treat Duchenne muscular dystrophy (DMD) in patients ages 4 and older. https://buff.ly/2Uu0bzr

Columnist Shalom Lim and his girlfriend, Amanda, were among the disability advocates who let their voices be heard at a ...
10/08/2025

Columnist Shalom Lim and his girlfriend, Amanda, were among the disability advocates who let their voices be heard at a recent symposium. https://buff.ly/QEhXbAV

🚀 Big news in FSHD research: https://bit.ly/3KQDyJGA clinical trial combining testosterone and growth hormone showed gai...
10/08/2025

🚀 Big news in FSHD research: https://bit.ly/3KQDyJG

A clinical trial combining testosterone and growth hormone showed gains in muscle mass, strength, and mobility for men with FSHD. Participants also saw reductions in fat and improvements in walking distance that persisted even after stopping treatment.

The path to adulthood comes with unique challenges and powerful lessons. 💪🧠 https://bit.ly/3FybMQcWhether you’re living ...
10/08/2025

The path to adulthood comes with unique challenges and powerful lessons. 💪🧠 https://bit.ly/3FybMQc

Whether you’re living with DMD, supporting someone who is, or just want to understand more—this article is for you. 💬✨ Let’s talk about growing up, support systems, and living life fully—together.

Avidity's exon-skipping therapy del-zota led to functional gains for people with DMD, regardless of their walking abilit...
10/07/2025

Avidity's exon-skipping therapy del-zota led to functional gains for people with DMD, regardless of their walking abilities, a study found. https://buff.ly/PtOem6P

By grounding himself in the reasons why he keeps moving forward, columnist Patrick Moeschen is able to figure out how to...
10/06/2025

By grounding himself in the reasons why he keeps moving forward, columnist Patrick Moeschen is able to figure out how to navigate LGMD. https://buff.ly/B9vbyk7

10/06/2025

Partnership matters—especially in the toughest moments of Duchenne care. https://bit.ly/3VMpu6o

In this video, parent and caregiver Betty Vertin shares how open communication, mutual respect, and teamwork help her and her sons face challenges together. Whether you’re a caregiver or loved one, this story offers lessons in patience, understanding, and walking the journey side by side.

You don’t have to figure it all out alone. 💬 Whether you're newly diagnosed, a long-time caregiver, or somewhere in betw...
10/06/2025

You don’t have to figure it all out alone. 💬 Whether you're newly diagnosed, a long-time caregiver, or somewhere in between, our forums are a place to connect, ask questions, and share experiences with people who understand.

Real conversations. Real support. 💚 Right here, when you need it: https://bit.ly/4jLpcGh

Mondays are usually a relaxing day for columnist Betty Vertin, but this one left her flat on her back after lifting her ...
10/03/2025

Mondays are usually a relaxing day for columnist Betty Vertin, but this one left her flat on her back after lifting her son into the shower. https://buff.ly/BLFhrWt

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