Muscular Dystrophy News

09/23/2026

Learn how Duchenne genetics and inheritance work for your family. More here: https://bit.ly/4pE4V9G

09/22/2026

Learn why early diagnosis in Duchenne matters and what steps families can take next: https://bit.ly/47aqPKb

For DMD caregivers and people with Duchenne, knowing the early signs and next steps can improve self-care and help manage a child’s care.

09/22/2026

Take a closer look: https://bit.ly/3VJxhF3

Cell study links type I interferon signaling to muscle damage in DM1 and identifies the pathway as a potential therapeutic target.

Cell study links type I interferon signaling to muscle damage in DM1 and identifies the pathway as a potential therapeutic target.

09/22/2026

❗Happening today❗

Managing Muscular Dystrophy goes far beyond routine doctor visits and medical checklists. Clinical metrics can track the condition, but they fail to capture the real story: what it actually takes to navigate daily life with MD.

Join us for Rarely Speaking: Living Well with Muscular Dystrophy Webinar and hear real answers from real people. Featuring Patrick Moeshcen, Betty Vertin, Kelly Berger and Adith Thummalapalli. 📣

Today @ 1 p.m. ET

Last chance to register here: https://bit.ly/477LsGp

09/22/2026

When choosing specialists, character and empathy are just as important as medical expertise. We want to help you find providers who truly listen and care. See what matters: https://bit.ly/4ezEM9i

Colin Werth, who has Duchenne muscular dystrophy, reflects on the quality he most appreciates in his healthcare team members.

09/22/2026

Eating a balanced diet can help support energy levels, muscle health, and overall well-being for people living with Duchenne muscular dystrophy. Explore key foods to include, options to limit, and tips for bone health. Dive into simple nutrition strategies: https://bit.ly/4fsL3SQ

09/21/2026

Understand corticosteroid use in Duchenne Muscular Dystrophy: https://bit.ly/4vTxtiL

09/21/2026

Talk about your journey: https://bit.ly/3LPxIcn

09/21/2026

Wondering where to find someone who gets it?

That question is exactly why Muscular Dystrophy Association created the MDA Resource Center — and why we sat down with its Senior Director, Brooke Smith, for a Forum AMA.

She answered real questions from the community, from locating specialized care and equipment to navigating financial resources and finding community support.

Catch the full Q&A on the Forum 👉 https://bit.ly/3UZ2c01

09/21/2026

This Muscular Dystrophy Awareness Month, we’re highlighting the real, unfiltered experiences of people living with MD. 💚

Actor, comedian, and writer Steve Way shares the parts of life with muscular dystrophy that often go unspoken, the challenges, the humor, and, most importantly, the good. His story is a reminder that life with MD can be complicated and difficult, but it can also be full of meaningful work, relationships, laughter, and joy.

“I have work I love, people I love, a body that has never once cooperated, and a life I wouldn’t trade.”

Read Steve’s story and join us in recognizing the many different experiences within the muscular dystrophy community this Muscular Dystrophy Awareness Month.

🔗 Read more: https://bit.ly/4zag4U3