Myasthenia Gravis News

09/23/2026

Rethinking rest and rebuilding strength: https://bit.ly/4bOZKz8

09/23/2026

Discover her calming strategy: https://bit.ly/4rkkNOS

When symptoms spike, Cindy focuses on calming her body and breathing through the moment.

09/23/2026

Do you ever struggle to explain myasthenia gravis to others? How about these 3 metaphors?

🚗 Forum moderator Shawna describes explains MG like this: The signals sent from the neuromuscular junction (where nerve cells contact muscle cells to create movement) are like cars going through a toll plaza. When you have MG, there's a major bottleneck!

🔋 MG fatigue is like starting the day with 50% battery EVERY DAY. No matter what, you can't get to 100% full.

🎈Breathing difficulties? Think of the lungs as a balloon and the diaphragm as an accordian pump. There isn't enough energy to press the pump and fill the balloon.

How do you explain MG to others? Share in the comments, then read Shawna's full piece: https://bit.ly/46E2NGY

09/23/2026

Explore the details: https://bit.ly/4At9itF

A targeted cell therapy aimed at immune cells producing antibodies that drive myasthenia gravis showed promise in lab and mouse models.

A targeted cell therapy aimed at immune cells producing antibodies that drive myasthenia gravis showed promise in lab and mouse models.

09/22/2026

There’s more here: https://bit.ly/476vj4w

09/22/2026

Notice how the little things change MG care: https://bit.ly/4sost2E

Jennifer Crow shares how a simple morning routine and support from her husband help her manage MG symptoms.

MG patient advocate Jennifer Crow shares how a simple morning routine and support from her husband help manage MG symptoms.

09/22/2026

MG News Forum member Ken Miller’s summer with myasthenia gravis has been full in more ways than one.

Ken lives with generalized myasthenia gravis, which has changed how summer activities are approached from day to day.

When we asked Ken for one word to describe summer with MG, the answer was simple: “‘Stable’ fortunately.”

That stability still comes with planning. Ken shared, “Every day is set with calculations on limitations for that day so I am constantly aware of my body.” Sometimes activities have to be cut short for rest, and experience has taught Ken to approach plans with more caution.

When asked what advice they would give others navigating summer with MG, Ken said: “Learning, respecting and staying within your limitations.”

Heat has also been a major factor. Ken shared, “The heat/sun definitely impacts me more than it ever had so anything outside is done early and allowing myself to take it easy is very important. The pool is a big help but the sun still ways heavy.”

But adapting to MG has not meant putting life on hold. Ken and their wife have continued traveling, spending time with family, enjoying the pool with their grandchildren, working with veterans, and fitting in cruises and a trip to the Lake of the Ozarks.

As Ken put it, “We’ve had a pretty full summer and our next trip is not until September so we’ll be enjoying our pool with our Grandchildren working with our Veterans and taking on whatever life throws our way! We had a wonderful time at the Lake of the Ozarks last month!”

One of the biggest constants through all of it has been Ken’s wife and best friend of nearly 47 years. When we asked what has helped keep that bond so strong, Ken answered: “Friendship, we are still best friends as well as husband and wife.”

Ken’s summer has been a mix of travel, family, service, rest, cooling strategies, and the daily awareness that can come with MG. Thank you, Ken, for sharing your summer with our MG News Forums community.

Join us - https://bit.ly/4xD9iox

09/22/2026

Get the scoop: https://bit.ly/3T2G4Bk

Thymectomy can help keep generalized myasthenia gravis under control in older patients without a thymus tumor, according to a study.

Thymectomy can help keep generalized myasthenia gravis under control in older patients without a thymus tumor, according to a study.

09/22/2026

Fill in the blank:
MG fatigue feels like ____

09/21/2026

For years, walking was something MG had taken from Sarah. Slowly, that began to change.

After building up from short walks to hours on her feet, she decided to take on a nighttime hike through a hilly zoo. Finishing it brought an enormous sense of pride, but also two days of soreness, pain, and extreme fatigue.
The experience left her thinking differently about progress: discovering what her body can do while still paying attention to what it needs.

🔗 Read Sarah’s full column: https://bit.ly/4rsVwU8