SMA News Today

SMA News Today Your source for spinal muscular atrophy news, support, & real stories from the community. Let’s raise SMA awareness together!🎗️

SMA News Today is a leading online health, science, and research publication, focused on delivering daily news and information about SMA to those affected by the disease, as well as providing first-hand perspectives from members of the patient community. Our news and information articles are written by a dedicated team of science writers, curated, fact-checked, and edited by a team of PhD research

ers and experienced journalists whose sole focus is ensuring our news and information is accurate, timely, relevant, and easy to understand. Our columns are written by SMA patients and caregivers who provide an intimate look at what it’s like to live with SMA. Their stories offer a realistic first-hand account of various aspects of the disease, in addition to providing inspiration and hope to our patient communities. We also offer audio content, such as The Spinal Muscular Atrophy Podcast, hosted by SMA patient Kevin Schaefer. SMA News Today also hosts forums, where members of the community can connect with one another.

⚡️ New hope for SMA! https://bit.ly/4rYovidSpinal cord stimulation is an innovative therapy that uses gentle electrical ...
12/25/2025

⚡️ New hope for SMA! https://bit.ly/4rYovid

Spinal cord stimulation is an innovative therapy that uses gentle electrical pulses to improve muscle strength and reduce fatigue. Early studies show improved movement and walking in adults with SMA. Could this be the next big step in SMA care? 💙

Discover the most-read SMA stories of 2025, featuring updates on the gene therapy Zolgensma, next-generation treatments,...
12/24/2025

Discover the most-read SMA stories of 2025, featuring updates on the gene therapy Zolgensma, next-generation treatments, and diet research. https://buff.ly/MUom2K8

The holidays can be complicated when rare disease is in the mix: canceled plans, extra germs to worry about, more fatigu...
12/24/2025

The holidays can be complicated when rare disease is in the mix: canceled plans, extra germs to worry about, more fatigue, more logistics. If this season feels heavy, you’re not alone.

To everyone living with a rare disease, and to every caregiver and loved one beside them: you’re seen, you matter, and your version of “holiday” is valid. Here’s to softer schedules, honest boundaries, and tiny bright spots that bring comfort, connection, and a sense of control in a season that doesn’t always make space for them.

Episode 155 is out now! 🎧 Listen here: https://bit.ly/4pktHuwHost Kevin Schaefer chats with Jasmine Jackson from Vancouv...
12/24/2025

Episode 155 is out now! 🎧 Listen here: https://bit.ly/4pktHuw

Host Kevin Schaefer chats with Jasmine Jackson from Vancouver, Washington — a development and marketing manager, digital creator, and mom living with SMA type II. Jasmine opens up about her childhood with SMA, her path to motherhood, and how she’s using her voice to advocate for other disabled parents.

Tune in for an inspiring conversation about resilience, community, and the power of representation. 💪

Explore more about SMA type 3: https://bit.ly/4iPDE1jSMA type 3 can bring gradual muscle weakness that changes what dail...
12/23/2025

Explore more about SMA type 3: https://bit.ly/4iPDE1j

SMA type 3 can bring gradual muscle weakness that changes what daily life looks like over time. It often starts in childhood or adolescence and can make things like walking or climbing stairs more challenging.

There’s no cure yet, but there are treatments that can help slow progression, and many people with SMA type 3 have a life expectancy similar to the general population.

Care and support can come from family, friends, and professionals, and it often shifts as needs change.

Exciting news for the SMA community: https://bit.ly/4aG4aYHNew research shows that pairing the experimental therapy BIO1...
12/22/2025

Exciting news for the SMA community: https://bit.ly/4aG4aYH

New research shows that pairing the experimental therapy BIO101 with Spinraza may boost muscle strength and reduce fatigue in SMA—at least in the lab. In mouse models, this combo outperformed Spinraza alone when it came to muscle function.

Could combination therapies unlock even more potential for people living with SMA? More studies are on the way, but the results are promising!

Share how anchors help you weather SMA’s changes—and tell us your story here: https://bit.ly/4oP7c1L
12/21/2025

Share how anchors help you weather SMA’s changes—and tell us your story here: https://bit.ly/4oP7c1L

Join the discussion in our forums: https://bit.ly/48HNQ8ECaregiving often goes both ways in families living with SMA. Ma...
12/21/2025

Join the discussion in our forums: https://bit.ly/48HNQ8E

Caregiving often goes both ways in families living with SMA. Many find small ways to support their caregivers emotionally and practically, too.

Do you “caregive” back to your family? Share your practices below—they might help someone navigate their home dynamics.

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