SMA News Today

SMA News Today Your source for spinal muscular atrophy news, support, & real stories from the community. Let’s raise SMA awareness together!🎗️

SMA News Today is a leading online health, science, and research publication, focused on delivering daily news and information about SMA to those affected by the disease, as well as providing first-hand perspectives from members of the patient community. Our news and information articles are written by a dedicated team of science writers, curated, fact-checked, and edited by a team of PhD research

ers and experienced journalists whose sole focus is ensuring our news and information is accurate, timely, relevant, and easy to understand. Our columns are written by SMA patients and caregivers who provide an intimate look at what it’s like to live with SMA. Their stories offer a realistic first-hand account of various aspects of the disease, in addition to providing inspiration and hope to our patient communities. We also offer audio content, such as The Spinal Muscular Atrophy Podcast, hosted by SMA patient Kevin Schaefer. SMA News Today also hosts forums, where members of the community can connect with one another.

🖊️Mark your calendars for the first MDA Engage event of the summer on July 18! Join Muscular Dystrophy Association in He...
06/16/2026

🖊️Mark your calendars for the first MDA Engage event of the summer on July 18! Join Muscular Dystrophy Association in Hershey, PA for a FREE, live community seminar with Penn State Health Milton S. Hershey Medical Center.

Whether you're a longtime member of the MDA community or just beginning your journey, this is your opportunity for a day of education and practical insights.

Spots are filling up — don't miss your chance to join this exciting event!

👇 Connect with the community and register today! https://bit.ly/4xp5jNq

For adults living with SMA, maintaining function can be just as meaningful as gaining it.A new real-world study found th...
06/15/2026

For adults living with SMA, maintaining function can be just as meaningful as gaining it.

A new real-world study found that adults with SMA who took Evrysdi for up to 30 months experienced stable motor and respiratory function, offering encouraging insights into the treatment's long-term impact.

What does "stability" mean for your quality of life, independence, or daily routine?

Find the full story and learn what researchers found here https://bit.ly/4e9je2D 💙

Challenge beauty standards together—explore what SMA means for self-image and belonging: https://bit.ly/4lN8Kqb ...
06/14/2026

Challenge beauty standards together—explore what SMA means for self-image and belonging: https://bit.ly/4lN8Kqb

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