SMA News Today

SMA News Today Your source for spinal muscular atrophy news, support, & real stories from the community. Let’s raise SMA awareness together!🎗️

SMA News Today is a leading online health, science, and research publication, focused on delivering daily news and information about SMA to those affected by the disease, as well as providing first-hand perspectives from members of the patient community. Our news and information articles are written by a dedicated team of science writers, curated, fact-checked, and edited by a team of PhD research

ers and experienced journalists whose sole focus is ensuring our news and information is accurate, timely, relevant, and easy to understand. Our columns are written by SMA patients and caregivers who provide an intimate look at what it’s like to live with SMA. Their stories offer a realistic first-hand account of various aspects of the disease, in addition to providing inspiration and hope to our patient communities. We also offer audio content, such as The Spinal Muscular Atrophy Podcast, hosted by SMA patient Kevin Schaefer. SMA News Today also hosts forums, where members of the community can connect with one another.

Exciting news for the SBMA community: https://bit.ly/45Q3Jrw 💙A prostate cancer drug, leuprorelin acetate, slowed muscle...
01/16/2026

Exciting news for the SBMA community: https://bit.ly/45Q3Jrw 💙

A prostate cancer drug, leuprorelin acetate, slowed muscle weakness progression in a real-world study from Japan. People saw much slower declines in movement, grip strength, and daily function after starting treatment. While more research is needed, this offers real promise for repurposing existing medicines.

Talk with your doctor about emerging options.

How do sleep challenges show up for you? 💙 https://bit.ly/49pPU44Sleep challenges hit hard for many with SMA—from breath...
01/15/2026

How do sleep challenges show up for you? 💙 https://bit.ly/49pPU44

Sleep challenges hit hard for many with SMA—from breathing pauses at night to stiffness, pain, and worry that keep you tossing and turning. These struggles can leave you exhausted during the day, making it tougher to manage symptoms and stay connected with what matters most.

If this sounds familiar, know you’re not alone—let’s talk about it.

✨ Living through the waiting with SMA ✨ https://bit.ly/4sySBJvSo many in the SMA community know what it’s like to live i...
01/14/2026

✨ Living through the waiting with SMA ✨ https://bit.ly/4sySBJv

So many in the SMA community know what it’s like to live in “wait mode” — for test results, new symptoms to ease, or the next treatment option to arrive.

In her latest piece, Brianna Albers reflects on how constant waiting can quietly take over life, and what it might look like to gently live while things are uncertain instead of putting everything on hold. If you’ve ever felt stuck between flares, appointments, or answers, her words may resonate and remind you that your life is more than what you’re waiting for.

Can vibration therapy boost mobility in SMA? https://bit.ly/3LaIbPlDid you know that sitting or standing on a vibrating ...
01/13/2026

Can vibration therapy boost mobility in SMA? https://bit.ly/3LaIbPl

Did you know that sitting or standing on a vibrating platform could help strengthen muscles in SMA? 💪✨ Whole-body vibration (WBV) therapy gently activates muscles, and when combined with physical activity, may boost strength, balance, and confidence in daily movement.

Early studies show promise for kids and adults living with SMA—but it’s essential to consult your doctor and work with a physical therapist for safe, tailored sessions. Pair WBV with other therapies and good nutrition for best results.

Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist Br...
01/12/2026

Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist Brianna Albers. https://buff.ly/4JV8CrH

Exciting news for adults living with SMA: https://bit.ly/4jzoOMKNew research shows Evrysdi stabilizes motor function, im...
01/12/2026

Exciting news for adults living with SMA: https://bit.ly/4jzoOMK

New research shows Evrysdi stabilizes motor function, improves swallowing, eases fatigue, and boosts daily confidence. Side effects are mostly mild and manageable.
Talk with your care team about what this could mean for you.

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