Got Hydrocephalus?

Got Hydrocephalus? I have had Hydrocephalus since birth. 16 surgeries under my belt. I created this page to share my story, my life and my health updates.

Thank you for being here đź’™

08/23/2026

Paralympic Sports Association is offering drop in paddle boarding or kayaking next week!

08/23/2026

Thank you to my 1 new subscriber! I now have 7 total! It means so much to me!

08/22/2026

I have been nauseous the last couple days. I haven’t thrown up, but I’m still having headaches. I really don’t know what to do.

Big thanks toTanya Sorensen, Tim Shelton, Sarah Hattie Reese, David Bryant Hawksfor all your support! Congrats for being...
08/22/2026

Big thanks to

Tanya Sorensen, Tim Shelton, Sarah Hattie Reese, David Bryant Hawks

for all your support! Congrats for being top fans on a streak 🔥!

Big shout out to my newest top fans! đź’ŽDequan Foxworth, Manraj Kaur, Antonya Pullen, Tanya Sorensen, Michelle Fournier, T...
08/22/2026

Big shout out to my newest top fans! đź’Ž

Dequan Foxworth, Manraj Kaur, Antonya Pullen, Tanya Sorensen, Michelle Fournier, Tim Shelton, Margie Ainsworth, Sarah Hattie Reese, David Bryant Hawks, Chronically B***d

Drop a comment to welcome them to our community,

08/21/2026

Hydrocephalus Awareness Month is right around the corner!
There are plenty of ways you can start preparing to raise awareness this September:

• Request a Hydrocephalus Awareness Month proclamation from your state
• Ask a local landmark or business to light up blue in September
• Register for a WALK to End Hydrocephalus near you

This year’s theme, “What Hydrocephalus Means to Me,” puts your experiences and stories at the heart of awareness 💙 Find ready-to-share graphics, hydrocephalus facts, sample proclamations, and more ideas to help you get involved: https://www.hydroassoc.org/ham2026/

08/21/2026

Need a little help navigating the school year? You don’t have to do it alone. We are here to offer personalized support for individuals and families impacted by spina bifida and hydrocephalus.

Start your one-on-one sessions by emailing [[email protected]](mailto:[email protected]). đź’™

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