Janyia Miracle's Journey

Janyia Miracle's Journey https://a.co/d/cXklZ6m
A story of a girl, a cause to champion, a cause.

Janyia's her name, in a wheelchair she sits,
Her silence is not absence, but a voice that inspires.Where Janyia's journey is known to all.share her tale, let awareness spread

10/18/2025

I have submitted a proposed bill and received a response from a senator today. I am keeping my fingers crossed that we can successfully advance this legislation and raise awareness about the importance of addressing life-altering situations caused by professional negligence and medical malpractice.
Prayers and let's be heard 🙏 ♥️

The Patient Lifetime Compensation Act
A Legislative Proposal for the State of Iowa Date: October 13, 2025
1. Introduction/Statement of Purpose
Medical malpractice can result in catastrophic injuries that leave victims, particularly children, with a lifetime of complex and costly medical needs. While the current legal system provides for compensation through judgments and settlements, these often take the form of a single, lump-sum payment. Over the course of a lifetime, this initial amount can prove tragically insufficient due to the unpredictable nature of long-term medical care, rising healthcare costs, and unforeseen complications. This financial shortfall places an immense and unjust burden on families, forcing them to navigate endless financial hardship while caring for their loved ones, and often results in the cost being shifted to public assistance programs.
The purpose of The Patient Lifetime Compensation Act is to create a framework that ensures victims of catastrophic medical negligence receive the care they need for the entirety of their lives. This Act will shift the ongoing financial responsibility for care from the victim and the public to the healthcare provider or institution whose negligence caused the harm, thereby providing true, lifelong accountability and security for the most severely injured patients.
2. Key Provisions
A. Establishment of a Lifetime Care Trust In any medical malpractice action resulting in a judgment or settlement involving a catastrophic injury, the court shall order the establishment of a Patient Lifetime Care Trust. A “catastrophic injury” is defined as any injury that results in a permanent, severe functional disability, requiring lifelong medical treatment, rehabilitation, or custodial care. The funding of this trust by the defendant and/or their insurer shall be a mandatory component of the resolution.
B. Purpose of the Trust The sole purpose of the Patient Lifetime Care Trust shall be to pay for all reasonable and necessary medical expenses and care needs arising from the malpractice injury for the duration of the beneficiary’s life. Covered expenses include, but are not limited to: * Medical, surgical, and therapeutic treatments; * Rehabilitation services, including physical, occupational, and speech therapy; * Prescription medications and medical supplies; * In-home and residential custodial care; * Assistive technology, durable medical equipment, and necessary home or vehicle modifications.
C. Funding and Administration The Trust shall be fully funded by the defendant(s) or their insurer(s) in an amount determined by the court, based on a comprehensive life care plan submitted by the plaintiff. The Trust shall be managed by a neutral, court-appointed professional trustee with expertise in administering special needs or settlement trusts. The trustee shall be responsible for evaluating the reasonableness and necessity of expenses and making direct disbursements to healthcare and service providers, ensuring accountability and proper use of funds.
D. Relation to Settlement/Judgment The Patient Lifetime Care Trust is established to cover future medical and care-related expenses only. It shall be separate from, and in addition to, any other damages awarded to the victim. The establishment of this Trust shall not limit the victim’s right to receive compensation for other economic damages, such as lost future earnings, or non-economic damages, such as pain, suffering, and loss of enjoyment of life.
E. No Reversion of Funds Upon the death of the beneficiary, any funds remaining in the Patient Lifetime Care Trust shall not revert to the defendant, their insurer, or any other party responsible for funding the trust. The remaining assets shall be distributed to the beneficiary’s estate or, alternatively, be directed to a state-administered fund dedicated to supporting victims of medical negligence and promoting patient safety initiatives.
3. Justification
The current system of lump-sum payments is an inadequate solution for lifelong injuries. It forces families to predict the unpredictable: the precise arc of medical inflation, the emergence of new and costly treatments, and the potential for secondary health complications decades after the initial injury. Damage caps further restrict the ability of a jury to award a sum that can truly meet these future needs. When these funds are exhausted, the financial burden falls upon the victim’s family and, ultimately, on public resources such as Medicaid. This is a fundamental injustice.
The Patient Lifetime Compensation Act corrects this flaw by aligning the duration of the remedy with the duration of the harm. It ensures that the negligent party bears the full, actual cost of the injury they caused, for as long as that cost exists. This approach provides financial security to the family, guarantees the victim receives necessary care without interruption, and protects taxpayer resources from being used to subsidize the consequences of medical negligence. By placing the true long-term cost on the responsible parties, this Act also creates a powerful incentive for healthcare providers and institutions to invest in and prioritize patient safety to prevent such devastating errors from occurring.
4. Conclusion
True justice for victims of catastrophic medical malpractice is not a one-time payment; it is a lifetime of security and care. The Patient Lifetime Compensation Act offers a just, sustainable, and responsible solution that protects the most vulnerable among us. It ensures that the promise of a legal remedy is not eroded by time and unforeseen costs. We urge the Iowa Legislature to consider and enact this vital proposal to provide genuine peace of mind and fairness to families who have already endured unimaginable hardship.

She has overcome so many obstacles đź’Ş
10/05/2025

She has overcome so many obstacles đź’Ş

In the stillness that followed the chaos, the air was thick with disbelief. Iryna Zarutska lay trembling, blood pooling ...
09/23/2025

In the stillness that followed the chaos, the air was thick with disbelief. Iryna Zarutska lay trembling, blood pooling around her, her innocence stark against the brutality that had shattered her. She was just a young woman—soft-spoken, gentle, her eyes filled with a mixture of pain and unwavering resolve. The wound was deep, a cruel reminder of the violence inflicted upon her, yet her spirit refused to be extinguished.

Even in that moment of suffering, her gaze held a quiet defiance—a testament to the unbreakable core within. She was innocent, yes, but her innocence bore witness to a profound truth: that even in the face of brutality, the human soul can hold onto dignity and hope. As her breath grew shallow, a flicker of strength shone through her eyes, whispering that her story was far from over, that her courage would echo beyond her wounds.

In the silence that enveloped her, the power of her spirit resonated—an unspoken defiance against darkness, a reminder that innocence can be a quiet revolution. No matter the pain, Iryna Zarutska became a symbol of resilience—a luminous testament that even in suffering, hope and humanity endure.
Rest in Peace Iryna Zarutska

09/09/2025

Please share, share, share
Its that time of the year again
Wash your hands as much as possible to prevent to spread of germs.
This is extremely important for all children
High-risk children it is a lot harder for them to fight off and the illness will set them back. Last year Janyia caught RSV and she got very sick, she had to be ventilated. Even a common cold is so hard on her.

09/04/2025

September is Hydrocephalus awareness month
Spread awareness

Fewer than 200,000 US cases per year
The extra fluid puts pressure on the brain and can cause brain damage.
Hydrocephalus is characterized by head enlargement in infants. Adults and older children experience headache, impaired vision, cognitive difficulties, loss of coordination, and incontinence.
Treatment is often a tube (shunt) inserted surgically into a ventricle to drain excess fluid

She Walks Beyond the OddsBorn into whispers, a world full of stares,A girl in a chair met with silence and glares.They t...
08/25/2025

She Walks Beyond the Odds

Born into whispers, a world full of stares,
A girl in a chair met with silence and glares.
They told her *“you can’t,”* they doubted her song,
But her spirit was steady, her will was strong.

Wheels beneath her, yet wings in her mind,
She carved out a path others couldn’t find.
Every “no” only sharpened her fight,
Every dark moment gave birth to her light.

She climbed without legs, but higher she rose,
With courage that bloomed like a defiant rose.
The mountain of “never” she shattered apart,
With strength in her hands and fire in her heart.

Now she stands tall though her body may rest,
Proving to all she is more than her test.
Not broken, not lesser, but destined to be,
A mirror of triumph for the whole world to see.

08/18/2025

Before passing away at the age of 40 from aggressive stomach cancer, world-renowned designer and author Krisda Rodriguez shared these deeply moving words:

I once had the most expensive car in the world… Today I move in a wheelchair.
My brand sold luxury clothing, shoes, and priceless items… Now I’m wrapped in a hospital sheet.
I had millions in my bank account… but now I can’t use them for anything.
I lived in a mansion… Today I sleep on two hospital cots pushed together.
From five-star hotels… to a windowless lab.
I signed hundreds of autographs… Today my signature is on medical forms.
I had seven personal stylists… Today I have no hair.
I flew on private jets… Now I need help just to reach the bathroom.
I had access to the finest cuisine… Today my meals are pills and drops of water.

All the money, fame, and luxury — none of it matters anymore.

Because nothing is more real than death.
And nothing is more valuable than health.

If you have your health, food, a roof over your head, and a family — believe me, you have everything.

Don’t wait until you lose it to start appreciating it. 🌿

REMEMBER TO ALWAYS BE THANKFUL FOR THE DAY, YOUR HEALTH
LOVE MORE, CARE FOR OTHERS AND ENJOY EVERY MOMENT ❤️

Big shout out to my newest top fans! đź’Ž Kristy HouseDrop a comment to welcome them to our community,
08/12/2025

Big shout out to my newest top fans! đź’Ž Kristy House

Drop a comment to welcome them to our community,

Having a child in need of care creates a home where the nurse is not just a caregiver but becomes part of the family. Th...
08/10/2025

Having a child in need of care creates a home where the nurse is not just a caregiver but becomes part of the family. The connections formed are deep and enduring, creating a strong bond that goes above and beyond traditional relationships. Among the original caregivers since Janyia's birth, only two remain with us, and one has recently retired yet continues to work caring for Janyia. As we approach her final month with us, it is a bittersweet moment; her contributions have been invaluable, and her presence will be greatly missed. Though it is difficult to say goodbye, we celebrate the impact she has made in our lives.

Today, I want to take a moment to honor Kristy, an exceptional nurse who has profoundly impacted Janyia's life. She embodies compassion and has truly been an angel during Janyia's journey.
Thank you Kristy for all you have done for our Janyia and family. đź’ś

Brain surgery is the scariest part of our journey. Janyia has had 12 already. Brain surgery will be required the rest of...
08/05/2025

Brain surgery is the scariest part of our journey. Janyia has had 12 already. Brain surgery will be required the rest of her life as needed..

She is a fighter and staying strong

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