Janyia Miracle's Journey

09/09/2025

Please share, share, share
Its that time of the year again
Wash your hands as much as possible to prevent to spread of germs.
This is extremely important for all children
High-risk children it is a lot harder for them to fight off and the illness will set them back. Last year Janyia caught RSV and she got very sick, she had to be ventilated. Even a common cold is so hard on her.

09/04/2025

September is Hydrocephalus awareness month
Spread awareness

Fewer than 200,000 US cases per year
The extra fluid puts pressure on the brain and can cause brain damage.
Hydrocephalus is characterized by head enlargement in infants. Adults and older children experience headache, impaired vision, cognitive difficulties, loss of coordination, and incontinence.
Treatment is often a tube (shunt) inserted surgically into a ventricle to drain excess fluid

08/25/2025

She Walks Beyond the Odds

Born into whispers, a world full of stares,
A girl in a chair met with silence and glares.
They told her *“you can’t,”* they doubted her song,
But her spirit was steady, her will was strong.

Wheels beneath her, yet wings in her mind,
She carved out a path others couldn’t find.
Every “no” only sharpened her fight,
Every dark moment gave birth to her light.

She climbed without legs, but higher she rose,
With courage that bloomed like a defiant rose.
The mountain of “never” she shattered apart,
With strength in her hands and fire in her heart.

Now she stands tall though her body may rest,
Proving to all she is more than her test.
Not broken, not lesser, but destined to be,
A mirror of triumph for the whole world to see.

08/18/2025

Before passing away at the age of 40 from aggressive stomach cancer, world-renowned designer and author Krisda Rodriguez shared these deeply moving words:

I once had the most expensive car in the world… Today I move in a wheelchair.
My brand sold luxury clothing, shoes, and priceless items… Now I’m wrapped in a hospital sheet.
I had millions in my bank account… but now I can’t use them for anything.
I lived in a mansion… Today I sleep on two hospital cots pushed together.
From five-star hotels… to a windowless lab.
I signed hundreds of autographs… Today my signature is on medical forms.
I had seven personal stylists… Today I have no hair.
I flew on private jets… Now I need help just to reach the bathroom.
I had access to the finest cuisine… Today my meals are pills and drops of water.

All the money, fame, and luxury — none of it matters anymore.

Because nothing is more real than death.
And nothing is more valuable than health.

If you have your health, food, a roof over your head, and a family — believe me, you have everything.

Don’t wait until you lose it to start appreciating it. 🌿

REMEMBER TO ALWAYS BE THANKFUL FOR THE DAY, YOUR HEALTH
LOVE MORE, CARE FOR OTHERS AND ENJOY EVERY MOMENT ❤️

08/12/2025

Big shout out to my newest top fans! 💎 Kristy House

Drop a comment to welcome them to our community,

08/10/2025

Having a child in need of care creates a home where the nurse is not just a caregiver but becomes part of the family. The connections formed are deep and enduring, creating a strong bond that goes above and beyond traditional relationships. Among the original caregivers since Janyia's birth, only two remain with us, and one has recently retired yet continues to work caring for Janyia. As we approach her final month with us, it is a bittersweet moment; her contributions have been invaluable, and her presence will be greatly missed. Though it is difficult to say goodbye, we celebrate the impact she has made in our lives.

Today, I want to take a moment to honor Kristy, an exceptional nurse who has profoundly impacted Janyia's life. She embodies compassion and has truly been an angel during Janyia's journey.
Thank you Kristy for all you have done for our Janyia and family. 💜

08/05/2025

Brain surgery is the scariest part of our journey. Janyia has had 12 already. Brain surgery will be required the rest of her life as needed..

She is a fighter and staying strong

08/01/2025

1 John 4:16: "So we have come to know and to believe the love that God has for us. God is love, and whoever abides in love abides in God, and God abides in him,"

07/25/2025

Heterotopic rupture 13 weeks along pregnant with Janyia and her twin. The internal bleeding and loss lead to Janyias brain damage.

"I Was Gone… But I Came Back"

It started like a lightning strike.
A pain so sharp, so violently intense, it ripped through every nerve in my body, from the top of my head to the soles of my feet.
It hit so hard, so fast—I collapsed into the fetal position, unable to move, unable to scream.
The pain was too big for words, too loud for sound.

I wasn’t just hurting.
I was vanishing.
Falling in and out of consciousness, surrounded by chaos I couldn’t fully see.
Everything became blurred—doctors, nurses, voices, movement—it all slowed down like a dream fading into a nightmare.
Needles in my veins. Blood transfusions. Machines beeping.
But none of it made sense.
Because I couldn’t process what was happening.
All I knew… was that I was dying.

And still, the pain grew worse. Not pain, exactly—something beyond that.
So severe, it couldn’t be measured or explained.
I could barely breathe.
Each breath felt like the last.
I was gasping—begging my body to keep going, to just hold on a little longer.

Then…
I opened my eyes.
And I saw it.

Not a hospital ceiling.
But a glowing screen—like a drive-in movie playing in the sky.
My life… playing out in scenes.
My childhood. My children.
Past, present… and future.

I saw my boys—older, stronger—walking across a stage in caps and gowns.
They hadn't reached that age yet.
I was seeing something that hadn’t happened.
And I wasn’t in it.
I wasn’t there.

The pain came rushing back.
The breathlessness.
The fading.

I turned my head—barely—and saw my OB by my side, clutching the rails of my bed.
His eyes were filled with something I never expected to see: tears.
He looked broken.
Helpless.
Afraid.

And me?
I could barely whisper the word *“help.”*
That one word took everything I had left.

Then, I saw her.
My grandmother.
My strength.
My warrior. My Queen.

She stood beside me like a soldier holding back tears—but I saw them.
I whispered, “I’m dying.”
And she looked right into my soul and said, “God will be with you.”
Her voice was steady… even as her heart broke.

And then—
Everything went white.

No pain. No body. No noise.
Just… peace.

I was looking down at myself.
I saw them wheeling my body away to trauma OR.
But I wasn’t *in* that body anymore.

And then, darkness.
A void.
I wasn’t human.
I wasn’t *me* anymore.
I didn’t know where I was.
I just knew… I was *gone.*

And I was scared.

I’d never felt so alone.
So empty.

But then, in the far distance—a tiny light.
And a voice.
Familiar.
Warm.
Comforting.
Calling me back.

I moved toward it.
The closer I got, the brighter it became.
And I didn’t feel alone anymore.
I felt… safe.

That voice stayed with me.
And months later, I told my grandmother what I’d heard.
I said, “It was Gianna’s voice.”

Her face went white.
She froze.

I didn’t know it at the time, but while I was unconscious, on life support in a medically induced coma—Gianna had come to visit.
She stood by my bed.
She held my hand.
She whispered to me: *You gotta fight. You gotta come back. The kids need you. You’re not done.*

And right then—every machine I was hooked up to lit up.
Alarms. Monitors. Panic.

Because my spirit…
Came back.

I came back.

---

Jessica Laurie

07/17/2025

Here is a quick update on Janyia: she has been doing well, gaining weight and staying healthy. Thank you for your unwavering support.

05/28/2025

I came into this world under the most challenging circumstances—a twin whose life was cut short before it even began. My mother's body, marked by a heterotopic rupture, fought fiercely for survival amid an overwhelming loss. During those first moments, I was deprived of oxygen for 29 long minutes, sealed within the confines of her womb at just 13 weeks.

The odds were stacked against me. Doctors had little hope, yet I clung to life, defying expectations. As I grew, I felt trapped, unable to move, the oxygen deprivation leaving its mark. I remember the sound of my mother’s cries, the bustle of medical staff preparing for what they believed would be my short-lived arrival. But against all odds, I was born, heart beating and spirit unbroken.

Years passed, and while I carried the weight of twelve brain surgeries—and the knowledge that more may be necessary—I continued to fight. Each procedure was a test, a struggle against the limits of what one person can endure. The time spent in hospitals blurred into an endless cycle of hope and fear, yet I always returned to my purpose, which I discovered lies in my faith.

Through it all, I found that building a relationship with God has been my guiding light. His presence is a reminder that my life is not defined by struggles alone but by the strength to overcome them. As I share my story, I urge you to reflect deeply. Nurture that bond with Him, for it is the most vital connection you can cultivate before you close your eyes each night.

05/27/2025

Join Janyia on an incredible journey as she shares her story of miracles! From the beginning, Janyia's Miracles Journey Starts Here is a heartwarming and inspiring ride that will leave you feeling uplifted and motivated. Get ready to be amazed by Janyia's courage, resilience, and determination as she takes you through her personal experiences, struggles, and triumphs. This is just the starting point of an epic adventure, so be sure to hit that subscribe button and the notification bell to stay updated on Janyia's journey. New videos, new stories, and new miracles await!

Who has or knows someone who has Hydrocephalus or Arthrogryposis?