Adventure with Jett

Adventure with Jett Jett is an 11 year old boy who is living with an ultra rare neurological disease called Alternating Hemiplegia of Childhood (ATP1a2) and Autism.

In 2025, he asked to be a YouTuber and his parents are excited to make this happen!!

05/26/2026

Making a short post to let everyone know we haven’t made a video in awhile because Jett has been fighting one infection after another. While I often video in some of his darkest moments he has verbalized not wanting to be filmed and I’ll always respect that.

He is starting a new treatment and we are hoping to get him feeling better. This has been going on since early Jan. These infections have made him grouchy and aggressive more so lately. When you can’t verbalize exactly what you feel you have to understand the aggression will worsen.

We tried to have him fitted for a new wheelchair because his is too small. I can’t even strap him to keep him safe because I can’t extend the straps anymore. They were not able to get measurements because of his aggression. He really needs a new chair so we are really hoping he’s feeling better soon.

Let’s hope this new treatment will get him feeling better. 💜💙

05/03/2026

Wonky legs!!

05/01/2026

Giving Bowser a heart!! 💜 Build-A-Bear Workshop

Jett had a quick trip to the mall. He visited build a bear and the Lego store. What do you think he picked?             ...
04/30/2026

Jett had a quick trip to the mall. He visited build a bear and the Lego store. What do you think he picked? LEGO Build-A-Bear Workshop

Jett has really been struggling the last few days to hold his head up. Of course, I forgot his medical neck pillow. Hope...
04/25/2026

Jett has really been struggling the last few days to hold his head up. Of course, I forgot his medical neck pillow. Hopefully he will be up to making some videos today.

When you are in La and get to see family. Miss all these sweet faces. Jett learned he’s a cousin. We have been working w...
04/17/2026

When you are in La and get to see family. Miss all these sweet faces. Jett learned he’s a cousin. We have been working with him on understanding that he’s a son, brother, nephew, and cousin. 💙💜

The smiles say it all!! 💙💙💙💜💜💜
04/17/2026

The smiles say it all!! 💙💙💙💜💜💜

It’s been a bit since I’ve posted, we have had a lot going on and we have not been able to be actively connected to soci...
04/15/2026

It’s been a bit since I’ve posted, we have had a lot going on and we have not been able to be actively connected to social media. We have been to Alabama and then to La to see family and friends. During all of this Jett has been battling some miserable infections. Enjoy a few of his pics while we actively get busy making videos again.

04/04/2026

We are off…traveling to Louisiana.

03/30/2026

Today was hard!!

Address

2301 Erwin Rd
Durham, NC
27705

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