Haidyn’s Hope - A Cure for Sanfilippo Syndrome

10/14/2025

I guess I'm in trouble for something

10/11/2025

10/06/2025

Sanfilippo Syndrome has taken her ability to talk, to walk and run, to eat by mouth, to swing and to be a "typical," and healthy child with a beautiful future ahead of her.
It has brought on seizures, movement disorders, dystonia, myoclonus, vision and hearing impairment, the need for a feeding tube, damage to her respiratory system, sundowning, days without sleep, neurological storms, muscle contractures, muscle deterioration, organ damage, nerve damage, cellular damage and so, so much

10/05/2025

Sanfilippo Syndrome can't steal the sunshine in her heart.

10/04/2025

Her laughter is the BEST sound