F8te Films

03/05/2025

If anyone can help me out and vote… we are less than two days from the end of the contest and i need to reach first place any help id really appreciate it ….

I’m super inspired by Ciara’s dance music.🎶 I have a rare disease that causes blisters but I persevere despite pain with music and dance.

02/12/2025

Last 24 hours to vote for me before the first cut for the Dance Icon! Thanks in Advance … this contest is to be in Ciara’s Next Music Video. 8 danders will he selected…. I’d be super honored for all your help!!! Dance and Music helps ne cope and what better way to learn than to learn from the Best with Ciara

🙏🏻🫶🏻🔥🦋🤘🏻😎Why Not You Foundation Colossal

Currently in first but need all the help I can get ….

I’m super inspired by Ciara’s dance music.🎶 I have a rare disease that causes blisters but I persevere despite pain with music and dance.

05/19/2023

First FDA approved treatment (gene therapy) treatment for EB

The U.S. Food and Drug Administration on Friday approved Krystal Biotech Inc's first-of-its kind topical gene therapy for patients with a genetic skin disorder, sending its shares up 7% in afternoon trading.

05/12/2023

May 6 2023 Rock 4 EB! EBMRF and all of Hollywood helped us raise over 1 Million for EB research! What a great turn out! 🙏🏻🦋🫶🏻

Kaley Cuoco and Courteney Cox chat with ET's Cassie DiLaura at Rock4EB! 2023, an event which helps raise money and brings awareness to Epidermolysis Bullosa, a rare and life threatening disease of the skin. The actresses open up about how their work with Rock4EB! and the Epidermolysis Bullosa Medica...

01/06/2023

Check out our interview on the Mia thrives podcast!

02/01/2022

Please report as impersonating someone I know. Please help me ig restore my account. Please don’t trust anything they post about investment. They hacked me and another eb person.

02/01/2022

was hacked … can all my friends please report it as impersonating someone else please. I don’t want my ig to be deleted. Please don’t trust anything they say.

11/30/2021

EB is not a choice, it’s a lifestyle…. Conisder donating this

10/18/2021

10/18/2021

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10/16/2021

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10/15/2021

🥁 🤘🏻😎

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