07/08/2025
Parkinson’s support group looks to recapture pre-COVID numbers
On the second Thursday of each month, the Parkinson’s Disease and Caregiver Support Group meets at the Betty Queen Center from 1:00-2:30. During their June meeting, eight Louisa residents, a mix of caregivers and those with Parkinson’s, bounced ideas off one another to share their experience and tips on how to manage the disease.
Parkinson’s disease (PD) is a type of neurologic movement disorder that also affects the brain. Most people recognize the symptoms of “tremors,” which can look like shaking, but it also manifests in non-motor symptoms including sleep problems, constipation, anxiety, depression, and fatigue. It is chronic and progressive, and affects people’s ability to perform common, daily activities.
Louisa residents shared that before the COVID pandemic in 2020, the group routinely had over 30 people meet each month at Louisa Baptist Church. With numbers that big, they were able to separate into two distinct groups, the caregivers and patients with the diagnosis.
“We know there’s more people with Parkinson’s; they may just not know about us,” an attendee said.
Louisa resident Maureen Deel is the leader of the group.
“[The group] really is helpful, not only for the patients, but the caregivers. We always have questions for the patients, ‘what meds are you taking, how is it working for you, what are the different symptoms?’” Deel said. “With Parkinson’s—nobody is the same, and it affects everyone differently. The more people that are here with Parkinson’s that talk about it, the more education you can get very quickly.”
One resident chimed in, that when he was diagnosed over three years ago, the doctor simply gave him some literature to read. It wasn’t until he started attending community groups that he began to better understand PD and how other community members were managing it.
“Everyone thinks about the shaking when they hear Parkinson's, but there’s a lot going on inside that you don’t see,” another attendee added. “It affects your mind.”
Click below to see how three LCHS grads with CNA certifications are making a difference in the life of a community member with Parkinson’s:
https://www.thecentralvirginian.com/living/health/parkinson-s-support-group-looks-to-recapture-pre-covid-numbers/article_61195c18-00eb-4d33-b8ed-460f4561e5c2.html