Fight Like Wyatt

01/01/2024

Please tag Taylor Swift in the comments on the original post and help my PDCD Warrior friend Abby reach Taylor! 🙏🏼♥️👏🏼 Thank you!!!

Dear Taylor Swift,

I hope this message finds you well and surrounded by creativity and inspiration. I am reaching out to share a heartfelt story that involves you, indirectly, and a young girl named Abigail.

Abigail is a delightful and resilient three-year-old facing a rare condition called Pyruvate Dehydrogenase Complex Deficiency (PDCD). It's a challenging journey, but Abigail's spirit remains bright. Her upcoming third birthday the first part of January is a celebration of her bravery, her joy, and her unwavering love for life.

As part of her birthday celebration, we are reaching out to individuals and entities whose influence could help shed light on PDCD, a condition that affects so many children worldwide. Abigail's wish is not for presents but for a future where children affected by PDCD can have hope, where awareness can pave the way for treatments and, ultimately, a cure.

Your voice, your influence, your support could make a world of difference. Together with other parents facing similar challenges, we've collectively raised close to a million dollars to fund research and support for these children fighting for their lives.

I humbly ask if you would consider aiding our cause by raising awareness for PDCD. Additionally, I'd like to send you a Hope for PDCD Friendship bracelet. If you'd be willing to wear it, it would mean the world to Abigail and countless other children battling PDCD. Your gesture could truly help save lives and bring hope to families like ours.

We understand your time is precious, but your support would mean everything to us. If you're available and interested, we'd be honored if you could join us, even virtually, for Abigail's birthday celebration. Your presence, whether physical or through a message, would brighten her day immeasurably.

Thank you for considering this request, Taylor. If you have any questions or would like to know more about Abigail's journey or the Hope for PDCD Foundation, please don't hesitate to reach out. Your empathy and kindness could help create a world where children like Abigail can thrive.

Sincerly,
Nikki

08/08/2022

Update from Wyatt’s trip to Children's Hospital of Philadelphia on Aug 4th:

So much happened at Wyatt’s last appointment and honestly, I don’t even know where to start. We learned so much and have 1 new diagnosis so far, Leigh’s Disease. As far as we know rIght now, his team of doctors are so happy with Wyatt’s level of health that they see this as a clinical diagnosis, not a prognosis. Meaning, he fits the criteria, but they are not concerned with regards to more severe outcomes such as a shortened life-span. Which is a miracle! 🙏🏼 Wyatt has a muscle and skin biopsy coming up in Philadelphia to check his enzyme activity and muscle fibers. This will help confirm the 2nd diagnosis of Pyruvate Dehydrogenase Deficiency (PDCD). We’ll be staying in Philly for a few days to allow for recovery time, but we’ll post when that happens. 🏨 His new team of doctors at CHOP are the best in the country and absolutely amazing at what they do! We are forever grateful to them for all the labor, money and time they continue to put in to helping Wyatt. 👏🏼🙌🏼 We still don’t know what this all means for Wyatt long term, but as long as he is happy and has his Army fighting alongside him, he can conquer anything. 💪🏼 He is brave, strong, resilient and loved more than I can even express. In the words of his favorite superhero Spider-Man, “Why fight like a man, when you can fight like a spider?” 🕷 🦸🏻‍♂️🦓💪🏼 Please share to help spread awareness! Thank you! 💕