Lytia Nycohl, Norfolk, VA (2025)

07/29/2025

Husbae🥰🥰

07/25/2025

One year later 💜💜

07/09/2025

life💜

07/01/2025

It’s hard to describe what it feels like to be ignored for years — to know something is wrong with your body and be told, over and over again, that it’s just your skin, just arthritis, just stress.

For more than five years, I was treated for psoriasis and psoriatic arthritis. I took injection after injection, went through countless flares, pain, rashes, and extreme fatigue — and was never tested for lupus. Never even considered that it might be something else. Doctors dismissed my worsening symptoms, even though I kept coming back in pain. I tried to trust them. I tried to survive.

Then, in November 2024 — just 2 months after giving birth, 13 days after my 32nd birthday, and 7 days after I went to ER — I had two seizures. I was hospitalized, and they found a hemorrhagic lesion in my brain. That’s when I finally got the real diagnosis: Systemic Lupus Erythematosus — and it had already reached my central nervous system.

It was too late. I now have permanent brain damage. I deal with seizures, numbness in my hands and feet, constant headaches, and fear. I get lightheaded when I stand up. I forget things. My brain will never fully heal.

I’m 32 years old. I’m a mom, a wife, a daughter, and sister and I will never get back the years I lost to this misdiagnosis, or the part of my life that changed the moment my brain was injured by untreated disease.

This wasn’t just a medical mistake. It was a system that failed to see and hear me — and I’m still paying the price.

I’m sharing my story to encourage others who feel mistreated, overlooked, misunderstood, and neglected by “doctors” who are supposed to help and treat patients. ADVOCATE FOR YOURSELF. I went years and years without any real help or answers for what I was going through. Now, my life will never be the same. All because none of my doctors took the time to really see what was wrong.

~𝓛𝔂𝓽𝓲𝓪𝓣𝓱𝓸𝓶𝓹𝓼𝓸𝓷💜