Sweet Tino Bebes Journey Familia & Beyond

Hello everyone my name is Nicole I am a Stay at home Mom to 4 Beautiful Children

while my husband works so I can stay home & take care of our Special Needs Sweet Bebe!! We are hoping to raise money to purchase a Wheelchair Van for Tino now has his wheelchair!! So here is our story. When I was pregnant with Constantino they knew something was wrong with him & also assumed he had down syndrome ect.

They tested for that & it came back he did not have down syndrome but that his vents in his brain was enlarged which causes fluid on the brain. Toughest pregnancy ever but so worth it. I had no idea what my baby was gonna be like or if he was gonna be okay. But he came out perfect on January 10th 2020 even though he had the vents enlarged in his brain. He came out with the cord wrapped around his neck so he needed oxygen immediately!! But Thanks to lord he only needed it for a good hour & was fine. He had to get MRIs done on his head to keep an eye on the vents. Usually the fluid will fill up and the head will become enlarged & your child would need a shunt. That was not Tinos case at all!! His vents are enlarged but the fluid is draning itself & his head grows at his growth rate which is truly a miracle. We have done some Genetic testing but nothing has came back on any of those & we are still doing more!! He is now 2 years old & attends Occupational Therapy & was doing Physical Therapy since he was around 9 months old but Swicthed him over to Hippotherapy about a month ago. Which he gets to ride horses Here is a list of all of Tinos Diagnoses for you can know him better!! I hope to find other Family's like him so we can all support each other

Hyperopia with astigmatism, bilateral

Cortical Visual Impairment

Cerebral visual impairment (sometimes called cortical visual impairment or CVI)

Ventriculomegaly

Hypotonia

Colpocephaly

Agenesis of the corpus callosum

Global Developmental Delay (GDD)

Epilepsy/Seizure Disorder

Cerebral Palsy

Autism