Love and Lipedema Awareness / LALA

07/11/2025

Awareness comes in many forms. Excited to see lipedema in the spotlight on NBC News. If we could have acknowledgement and tools at stage 1, it would be life changing for so many.

Aurora McCausland has lipedema, a painful disorder that causes a buildup of fat in the lower body. Her doctor said surgery could fix it, but her insurance has denied coverage.

06/02/2025

Lipedema and pumping!
If you're not available tonight, you will be able replay 💜

Each month Dr. Karen Herbst focuses on a topic of interest to those treating patients with lymphedema, venous disease, and lipedema. Special guests with expertise in the monthly topic join the discussion, and attendees can offer input and ask questions. Moderated by Brenda Viola for Lympha Press, th...

04/08/2025

💜💜💜

The Lipedema Foundation is seeking clinicians who evaluate and diagnose Lipedema to join our Provider Directory.

Too many individuals experience significant delays before receiving a proper diagnosis. By listing clinicians who recognize Lipedema, this directory helps improve access to timely care.

If you are a physician, nurse practitioner, or physician associate who diagnoses Lipedema, we encourage you to sign up.

🔗 bit.ly/49Oa9GS

04/01/2025

Save the date for this live chat!
Event link in comments 💜

Did you know there are over 50 hormones in your body and they ALL have an impact on lipedema, MCAS and EDs.
Not to mention your over all health. Balanced hormones, happy body 😀

Join Dr. Rodriguez in a live chat on ALL THINGS HORMONAL ☯️

Save the Date!
APRIL 10th @ 5:30pm Pacific Standard time

Submit your questions regarding hormones only to,
[email protected]

Dr. Rodriguez will chat for 40 minutes and we will have 20 minutes to answer questions. 1 hour is definitely not enough time for this topic, if this chat is successful we will schedule a second live chat to continue the discussion.

Here is the link to join in on the chat! See you Thursday 🩷
https://meet.google.com/drr-yjij-xmg

12/11/2024

While GLP-1s are not for everyone, here is some information from Dr Herbst and Dr Amron 💜

12/06/2024

Lipedema Article 💜

Lipedema is characterized by an abnormal and uneven buildup of fibrous, fatty tissue, typically in the buttocks and legs. The condition's prevalence is not precisely known, since lipedema is often ...

09/16/2024

We need you!

🚨 Help Us Make a Change! 🚨

We need your help sending a message of support for ICD-10 codes for Lipedema to the CDC!

🎇 Before October 11, 2024, email [email protected] with this statement: "I support implementing ICD-10 codes for Lipedema now."

Tell whether you're a patient, provider or caregiver. You can then feel free to share your challenges as a patient or provider caused by not having diagnosis codes in place if you'd like. Please keep it short.

❗ Why is this a big deal? ❗

💜 With codes on every doctor's system, diagnosis can be tracked which means we will be able to know the true prevalence of lipedema soon.
💜With codes in place, doctors will have a consistent way to report that a person has lipedema.
💜With codes in place, the disease is legitimized. A medical provider cannot deny its existence if the codes are right there in the system.
💜With codes in place, it reduces the chaos that it is in the medical system for patients and providers. Diagnosis will surely come more quickly.
💜Research and grants will be easier to fund with a recognized separate code for lipedema.
💜Patients can point to the codes when working with insurance for coverage of treatments, supplies, and surgeries related to managing their condition.

Getting ICD-10 codes in place now is foundational to all of the work we collectively (members of the ALA or not, right!) are trying to accomplish.

Please email the CDC at [email protected] with your support of ICD-10 codes for lipedema today. Thank you so much for your personal advocacy!

09/13/2024