Legs Like Mine, 8300 Glade Avenue, Oklahoma City, OK (2026)

06/17/2026

Many insurance companies do not have provisions for care for lipedema, or the policies have limits that are unreasonable, like limits on how much can be removed per surgery, or how many surgeries a patient can have. I believe the provider should have the determination of what type how aggressive treatments should be, not insurance companies. Patients who have diseased tissue should be able to have it removed to save mobility, and to reduce long term effects of this diseased tissue being on the body.

During Lipedema Awareness Month, we encourage healthcare providers to recognize lipedema as the real, progressive disease that affects millions of women and is frequently misdiagnosed as obesity or overlooked altogether. Patients need knowledgeable, compassionate support from their medical team, not simply advice to lose weight.

Early recognition and appropriate management can improve symptoms, function, and quality of life. Conservative therapies such as compression, psychological support to reduce chronic stress, manual lymphatic drainage, movement and exercise programs, customized nutritional advice that includes identifying foods that trigger inflammation and flares, and targeted muscle strengthening should be considered as part of comprehensive care.

For patients with advanced disease involving fibrosis and the development of lymphedema, referral to an experienced lipedema surgeon may be appropriate. We invite all providers to learn more by reviewing the Standard of Care for Lipedema in the United States and partnering with patients to ensure they receive the evidence-based guidance, treatment, and support they deserve.

ACTION: Share, tag a provider, and help one more person learn the word LIPEDEMA and how to treat it.

06/16/2026

Being understood doesn’t cure Lipedema.
But feeling less alone can change everything.
That’s why community matters. 💜

06/16/2026

Behind every delayed diagnosis is a person trying to make sense of symptoms that never seemed to fit the explanations they were given.

Lipedema awareness is about more than facts and statistics — it’s about helping people find answers, community, and care sooner.

Because feeling unheard should never be part of the diagnostic journey. 💜

06/16/2026

Did you know? Many US-based lipedema patients do not have access to the care they need. Many patients travel out of state or overseas for surgical treatment because they cannot find a provider that either knows how to treat lipedema from a conservative standpoint, can't find a provider to even diagnose or recognize lipedema, or they are over the BMI limits for surgical care in their state.

Take me, for example. In OK, I have NO ONE guiding my use of compression, MLD, or other conservative therapies. I have a supportive primary care provider, but I must tell her what I need scripted. I have consulted surgeons in my state who say no to surgery on me. So I travel to California. We can do better.

During Lipedema Awareness Month, we encourage healthcare providers to recognize lipedema as the real, progressive disease that affects millions of women and is frequently misdiagnosed as obesity or overlooked altogether. Patients need knowledgeable, compassionate support from their medical team, not simply advice to lose weight.

Early recognition and appropriate management can improve symptoms, function, and quality of life. Conservative therapies such as compression, psychological support to reduce chronic stress, manual lymphatic drainage, movement and exercise programs, customized nutritional advice that includes identifying foods that trigger inflammation and flares, and targeted muscle strengthening should be considered as part of comprehensive care.

For patients with advanced disease involving fibrosis and the development of lymphedema, referral to an experienced lipedema surgeon may be appropriate. We invite all providers to learn more by reviewing the Standard of Care for Lipedema in the United States and partnering with patients to ensure they receive the evidence-based guidance, treatment, and support they deserve.

ACTION: Share, tag a provider, and help one more person learn the word LIPEDEMA and how to treat it.

06/15/2026

Did you know that many patients can't get insurance to cover compression garments to help with their lipedema symptoms? And that SO many patients travel out of state or overseas for surgical treatment because they self-pay for mobility-saving surgery? I've had 3 surgeries and I need 5 more. So far, I've spent $84K out of pocket for treatment that I should be receiving near my home, fully covered. There's a big insurance coverage gap lipedema, although it has been recognized on the global level as a real, progressive disease.

Did you also know that there are areas of the country where lipedema care is not there? In OK, I don't get the care, guidance, and support I need without online resources-NO ONE guiding my use of compression, MLD, or other conservative therapies.

During Lipedema Awareness Month, we encourage healthcare providers to recognize lipedema as the real, progressive disease that affects millions of women and is frequently misdiagnosed as obesity or overlooked altogether. Patients need knowledgeable, compassionate support from their medical team, not simply advice to lose weight.

Early recognition and appropriate management can improve symptoms, function, and quality of life. Conservative therapies such as compression, psychological support to reduce chronic stress, manual lymphatic drainage, movement and exercise programs, customized nutritional advice that includes identifying foods that trigger inflammation and flares, and targeted muscle strengthening should be considered as part of comprehensive care.

For patients with advanced disease involving fibrosis and the development of lymphedema, referral to an experienced lipedema surgeon may be appropriate. We invite all providers to learn more by reviewing the Standard of Care for Lipedema in the United States and partnering with patients to ensure they receive the evidence-based guidance, treatment, and support they deserve.

ACTION: Share, tag a provider, and help one more person learn the word LIPEDEMA and how to treat it.

06/14/2026

Guess what? So many patients with lipedema have tried losing weight in all kinds of ways - they've heard "lose weight" before. They're coming to you as a provider because they can't get the diseased tissue off. There are things a provider can do to support and guide a patient with symmetrical fat buildup, easy bruising, pain, and even nodules.

During Lipedema Awareness Month, we encourage healthcare providers to recognize lipedema as the real, progressive disease that affects millions of women and is frequently misdiagnosed as obesity or overlooked altogether. Patients need knowledgeable, compassionate support from their medical team, not simply advice to lose weight.

Early recognition and appropriate management can improve symptoms, function, and quality of life. Conservative therapies such as compression, psychological support to reduce chronic stress, manual lymphatic drainage, movement and exercise programs, customized nutritional advice that includes identifying foods that trigger inflammation and flares, and targeted muscle strengthening should be considered as part of comprehensive care.

For patients with advanced disease involving fibrosis and the development of lymphedema, referral to an experienced lipedema surgeon may be appropriate. We invite all providers to learn more by reviewing the Standard of Care for Lipedema in the United States and partnering with patients to ensure they receive the evidence-based guidance, treatment, and support they deserve.

ACTION: Share, tag a provider, and help one more person learn the word LIPEDEMA and how to treat it.

06/13/2026

For me, after suffering with painful, bruised legs that I could not get the fat off of, regardless of having bariatric surgery twice, training for a half-marathon, and doing countless targeted exercise routines, I was convinced I had cancer in my legs, even though I'd had MRIs, X-rays, bloodwork, CT scans and so on to try and figure it out. The simple act of receiving a lipedema diagnosis gave me validation that there was an actual disease causing these symptoms, gave me confidence to go about my life, and the ability to continue digging for conservative and aggressive therapies to help manage it.

During Lipedema Awareness Month, we encourage healthcare providers to recognize lipedema as the real, progressive disease that affects millions of women and is frequently misdiagnosed as obesity or overlooked altogether. Patients need knowledgeable, compassionate support from their medical team, not simply advice to lose weight.

Early recognition and appropriate management can improve symptoms, function, and quality of life. Conservative therapies such as compression, psychological support to reduce chronic stress, manual lymphatic drainage, movement and exercise programs, customized nutritional advice that includes identifying foods that trigger inflammation and flares, and targeted muscle strengthening should be considered as part of comprehensive care.

For patients with advanced disease involving fibrosis and the development of lymphedema, referral to an experienced lipedema surgeon may be appropriate. We invite all providers to learn more by reviewing the Standard of Care for Lipedema in the United States and partnering with patients to ensure they receive the evidence-based guidance, treatment, and support they deserve.

ACTION: Share, tag a provider, and help one more person learn the word LIPEDEMA and how to treat it.

06/13/2026

Had a little flight delay due to a storm NYC last night. Feeling grateful this am I walk back into the airport after a comfy Marriott night by Mets field as I passed SO many folks who slept in the airport. Believe me I’ve done my time in the airport over the years but I’m wayyy too cranky for that crap these days!

Anyhoo…I am doubled up on compression as I do for flying long flights and I noticed the lady across from me is wearing LevSox compression that I own! ps if you’ve had cpr training and see the lady’s socks you know why I picked “staying alive” for the audio.

06/12/2026

Had a really good time meeting other Lipedema ladies and being with my partners from the Lipedema Foundation at their headquarters to celebrate It’s always good to swap stories and hear what’s going on with folks in person. Also. Wow they have a gorgeous office!!!

06/12/2026

When a patient comes in showing signs of lipedema, but you've never heard the word, how can you even know to diagnose? Symptoms like easy bruising, symmetrical fat buildup in legs or arms, (sometimes) cuffs around the ankles, and painful fat, might be signs of a progressive disease called lipedema. We need providers to know the word and recognize the symptoms.

During Lipedema Awareness Month, we encourage healthcare providers to recognize lipedema as the real, progressive disease that affects millions of women and is frequently misdiagnosed as obesity or overlooked altogether. Patients need knowledgeable, compassionate support from their medical team, not simply advice to lose weight.

Early recognition and appropriate management can improve symptoms, function, and quality of life. Conservative therapies such as compression, psychological support to reduce chronic stress, manual lymphatic drainage, movement and exercise programs, customized nutritional advice that includes identifying foods that trigger inflammation and flares, and targeted muscle strengthening should be considered as part of comprehensive care.

For patients with advanced disease involving fibrosis and the development of lymphedema, referral to an experienced lipedema surgeon may be appropriate. We invite all providers to learn more by reviewing the Standard of Care for Lipedema in the United States and partnering with patients to ensure they receive the evidence-based guidance, treatment, and support they deserve.

ACTION: Share, tag a provider, and help one more person learn the word LIPEDEMA and how to treat it.

Legs Like Mine

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