Legs Like Mine

10/03/2026

📢 Big News!! 📢
We asked and you answered!

We are proud to announce:
FDRS 2027 Conference
🗓 April 8 - 11, 2027
📍Minneapolis, Minnesota

More details to come!
Please help us get the word out! Forward, Share, Tell Everyone!

If you didn't get a chance to respond to our 2027 Conference Interest Survey, you still can! Let us know what you are interested in!
https://www.surveymonkey.com/r/LPX79NT

10/03/2026

Well. I injured my arthritis thumb pulling on my new compression and am having to figure that out. So I’m back in the bioflects today and doubled up with LevSox under them for a road trip.

Where are we headed, you say?

Well thank you for asking! We are headed to the Big Foot Festival in Honobia OK.

Also our car now features new karaoke microphones. Much to my husbands chagrin.

10/03/2026

American Lipedema Association

Help Shape the Future of Lipoedema Research!

How can communication around lipoedema research better meet the needs of the people it affects?

As part of an Lipedema World Alliance (LWA) linked university project, Alexandra Oltra, Patient Engagement Partner, is seeking input from healthcare professionals, researchers and people living with lipoedema.

The short surveys take less than 10 minutes and aim to better understand the different needs and perspectives across the lipoedema community.

Complete any of the surveys that are relevant to you:
▪️Healthcare professionals
https://forms.gle/tvDWp4KB87BMcqJj9

▪️Scientists and researchers
https://forms.gle/M4s13mJoMSS8q8WQ9

▪️People living with lipoedema
https://forms.gle/hYmwjG2pUy1x8t3f9

If more than one applies to you, you are welcome to complete each relevant survey.

Surveys will remain open until the end of November 2026.

Please share with others who may also wish to contribute.

10/02/2026

Doing a bit of broad advocacy work in the field today. Contacting sources that providers use when they’re looking up a disease, and requesting that Lipedema information be included in their online sources, so they’ll have something to aid in diagnosis, referral, and initial care from real, legitimate resources like the Lipedema foundation and Lipedema Society, as well as from published peer reviewed articles like the Standard of Care for Lipedema in The US.

Also beginning work on our national survey of medical schools so we can understand and set a baseline of who is actually already teaching Lipedema explicitly. (Of course those who aren’t teaching it will be getting follow ups. Many many follow-ups.)

Next piece: medical school textbook editors.

This is the beginning of a long, long project plan that will take time. But we have to start no one is going to do it for us.

American Lipedema Association

Lipedema World Alliance


Lipedema Sisters USA

10/02/2026

Doing a bit of broad advocacy work in the field today. Contacting sources that providers use when they’re looking up a disease, and requesting that Lipedema information be included in their online sources, so they’ll have something to aid in diagnosis, referral, and initial care from real, legitimate resources like the Lipedema foundation and Lipedema Society, as well as from published peer reviewed articles like the Standard of Care for Lipedema in The US.

Also beginning work on our national survey of medical schools so we can understand and set a baseline of who is actually already teaching Lipedema explicitly. (Of course those who aren’t teaching it will be getting follow ups. Many many follow-ups.)

Next piece: medical school textbook editors.

This is the beginning of a long, long project plan that will take time. But we have to start no one is going to do it for us.



Lipedema World Alliance

09/30/2026

09/30/2026

Meet our speakers at Conference 📢

We’re getting ready for The British Lymphology Society (BLS) 2026 Conference, taking place from 5th–7th of October at Chester Racecourse.

On Wednesday 7th of October, the conference will feature a dedicated lipoedema programme, delivered in association with Lipoedema UK.

We’re pleased to have three Lipoedema UK speakers taking part:
🎤 Sharie Fetzer – Lipoedema UK Chair
🎤 Professor Kristiana Gordon – Lipoedema UK Patron
🎤 Libby Harrison – Lipoedema UK member and volunteer

The programme will explore the latest research, expert insights and lived experience of lipoedema.

If you’re a healthcare professional attending BLS 2026, come and say hello to the Lipoedema UK team, pick up our latest leaflets and posters, and find out more about our work.

📅 5th–7th of October
📍 Chester Racecourse

Find the full programme and more about the event here:
https://www.theblsconference.com/

09/28/2026

🚨Members-Only Event, DIY Lipedema Therapist🚨

Join Bailey Rotenberry-Maddox, CLT, for a practical session all about conservative care for lipedema. Bailey will walk us through non-surgical approaches like compression, movement, therapy, and other tools that can support your day-to-day care.
We’ll also talk about how to build a realistic care plan that works with your life—including ways to keep some form of conservative care going when the holidays get busy and routines don’t exactly go according to plan.

Event Details:

Topic: DIY Lipedema Therapist: Conservative Care

Featuring: Bailey Rotenberry-Maddox, CLT

Date & Time: October 10th, 2026 | 8 PM Eastern
Location: Zoom (membership & registration required)

https://americanlipedemaassociation.org/join/

09/28/2026

Finally got my custom compression sorted in a remake. My first custom! I had them lower the compression to 20-30 mmHG. I couldn’t handle the higher level in the first pair. Also I had them raise the waistband as the old one was hitting right on my lap band port (yes I’ve had lap and Twice and I now hate it, anyway…).

09/26/2026

Excellent excellent Lipedema ladies meetup in OKC today! Thank you to those who came and to Amber Graham Knapp for putting it all together and hosting. No matter what it is that humans are experiencing in life, we are better together. There’s such good that comes from meeting in person!!!



American Lipedema Association

Lipedema World Alliance