Bionews

Bionews Bionews is a digital health solutions company that empowers rare disease communities with trusted information & news, fostering a space where hope thrives.

19/07/2025

🧠 Curious how Huntington’s disease is passed down? https://f.mtr.cool/ylzjvjrmgg Jana explains the genetics and symptoms — and shares from the heart, having lost loved ones to HD herself. Knowledge is power.

16/07/2025

What workout are you hoping to see next? https://bit.ly/4koxiVV Morgan Talevich, who lives with Friedreich’s ataxia, shows us an upbeat seated boxing routine designed to boost heart health, coordination, and core strength. 🥊❤️
In this episode of Rare Moves, see how adaptive movement can bring energy and empowerment to every workout.
⚠️ Disclaimer: We are not medical professionals. Please consult your doctor before starting any new exercise program to ensure it’s safe and appropriate for you.
💬 Tell us your favorite way to stay active and energized!

Get the latest on a simple pill that may help rapidly stop HAE attacks: https://bit.ly/4kt1XlyPeople with HAE can take i...
13/07/2025

Get the latest on a simple pill that may help rapidly stop HAE attacks: https://bit.ly/4kt1Xly

People with HAE can take it quickly at home, and most see relief in under two hours, even when attacks are severe or involve the throat or abdomen. Discover more about this innovative treatment in the article.

10/07/2025

Learn more about hemophilia and how you can get involved: https://bit.ly/4luwbVR L.A., a dedicated hemophilia advocate, attended the 2025 Lone Star Bleeding Disorders Conference to connect with others, share experiences, and raise awareness for the bleeding disorders community.

From living with hemophilia to advocating for those affected, L.A. continues to use his voice to inspire change and build community.

09/07/2025

🙌 Who inspires you to keep pushing forward? Tag them below!

Braxton Terrebonne, diagnosed with Friedreich’s ataxia in 2024, demonstrates an adaptive glute bridge variation that targets the posterior chain — engaging glutes, hamstrings, and core. 🍑🔥
In this episode of Rare Moves, see how tailored exercises can empower strength and control for every body.

⚠️ Disclaimer: We are not medical professionals. Please consult your doctor before starting any new exercise program to ensure it’s safe and appropriate for you.

👉 Tag someone who inspires you to keep moving forward!

07/07/2025

Mason Taylor shares a story having a myasthenia gratis flare-up. Comment your story below if you can relate!

27/06/2025

📣 Ever feel like your doctor doesn’t hear you? https://bit.ly/4mNpxet

You’re not alone. Watch Anne Rosales share how speaking up about her MS treatment made a real difference. 🧡

Your voice matters—let it be heard!

Feeling the summer heat? ☀️ For those managing Cystic Fibrosis, warm weather can bring extra challenges. https://bit.ly/...
26/06/2025

Feeling the summer heat? ☀️ For those managing Cystic Fibrosis, warm weather can bring extra challenges. https://bit.ly/45mVAeW

We want to make sure you're feeling your best, so we've pulled together some vital tips on staying cool and safe from morning to night.

🧠💪 Early symptoms of ALS can be easy to overlook — but recognizing them early can lead to faster support and better care...
23/06/2025

🧠💪 Early symptoms of ALS can be easy to overlook — but recognizing them early can lead to faster support and better care

Watch for signs like:
• Muscle weakness or stiffness
• Twitching (fasciculations)
• Slurred speech or voice changes 🗣️
• Muscle fatigue🚶
• Shaking or tremor-like symptoms ✋

Understanding the signs can empower you or a loved one to take the next steps. Learn more about ALS symptoms and what they may mean: https://bit.ly/3FXpBaL

Cystic fibrosis can affect so much more than your lungs. From digestive struggles to sinus pain, salty skin, and beyond....
17/06/2025

Cystic fibrosis can affect so much more than your lungs. From digestive struggles to sinus pain, salty skin, and beyond. This quick guide breaks down common symptoms and why they show up, helping you feel more informed and validated in what you’re facing. 🙌

Did you know body temperature changes how electrical signals travel along nerves? See how this dysregulation ultimately ...
13/06/2025

Did you know body temperature changes how electrical signals travel along nerves? See how this dysregulation ultimately leads to a worsening of symptoms.

Link in our bio to learn more.

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