Bionews

Bionews Bionews is a digital health solutions company that empowers rare disease communities with trusted information & news, fostering a space where hope thrives.

https://bit.ly/47R51ol to learn more about FA symptoms.What’s a symptom of FA you face that doesn’t get enough attention...
09/22/2025

https://bit.ly/47R51ol to learn more about FA symptoms.

What’s a symptom of FA you face that doesn’t get enough attention?

Living with Friedreich’s ataxia goes far beyond “just being uncoordinated.” 💙

Remember—you’re not alone, we’re in this together.

09/18/2025

✨ Read her full column https://bit.ly/46tCByi

Discover how Sarah Bendiff applies different sides of her personality to living with myasthenia gravis. From humor to advocacy, her reflections show that no one is ever just one type, we’re a blend of many.

09/17/2025

Click here: https://bit.ly/3Vjp1s3 to learn more about myasthenia gravis. Myastheina gravis advocate Glenn Cutler shares some tips around keeping track of medication with MG.

09/16/2025

Reading with SMA isn’t always easy… https://bit.ly/47Loo1U 📖

Sometimes the tiniest challenges feel the biggest — like turning a page on a Kindle when you have SMA. 📖✨
But with creativity and support, what feels impossible can become a victory. Alyssa and her brother engineered a sensitive touchpad that lets her turn pages with just a gentle swipe — no strength needed. This small device means freedom, independence, and reclaiming a love for reading anywhere she goes.

It’s a powerful reminder: no matter the obstacles, there’s always a way to adapt and keep moving forward. 💪💙

💊 Lower drug costs matter for people living with MS. https://bit.ly/3VaE1IRA generic version of Zeposia (ozanimod) has w...
09/15/2025

💊 Lower drug costs matter for people living with MS. https://bit.ly/3VaE1IR

A generic version of Zeposia (ozanimod) has won tentative FDA approval — meaning it meets safety, quality, and effectiveness standards, though it can’t be sold yet due to existing patents.

Once available, it could make this treatment more affordable and accessible.

09/12/2025

Strengthen those shoulders with this rare but powerful move! https://bit.ly/41AYIBh 💪

Coach Damon V shows how athletes with SMA can boost delt strength and shoulder control using the negative lateral raise. The focus? Controlled lowering to engage lateral delts and build stability—even if lifting up is tough. Try these progressions with core engagement and single-arm focus for a total upper-body boost.

Tag someone who needs this tip! 🙌

Train Unique

09/08/2025

MG advocate Mason Taylor gives us some insight into what Myasthenia Gravis looks like! GravisNews

Learn more about Rett Syndrome here: https://bit.ly/47jvtGS 🧠💜 What is Rett syndrome?It’s a rare neurodevelopmental diso...
09/05/2025

Learn more about Rett Syndrome here: https://bit.ly/47jvtGS 🧠💜 What is Rett syndrome?
It’s a rare neurodevelopmental disorder that typically begins in girls between 6–18 months of age. It affects brain function and can lead to challenges with movement, communication, breathing, and more.
Want to dive deeper?

Learn more: https://bit.ly/4fRFZapSometimes the greatest confidence comes from years of lived experience.What once meant...
09/04/2025

Learn more: https://bit.ly/4fRFZap

Sometimes the greatest confidence comes from years of lived experience.

What once meant long drives, high copays, and waiting rooms is now a simple act of care at home.

Trusting ourselves as caregivers isn’t just convenient. It’s empowering.

Experience truly is the best teacher. Learn more link in bio!

ALS Clinical Trials: https://bit.ly/3ViINUNEver wondered what clinical trials really involve?From testing new treatments...
09/03/2025

ALS Clinical Trials: https://bit.ly/3ViINUN

Ever wondered what clinical trials really involve?
From testing new treatments to improving quality of life, clinical trials play an important role in ALS research.

This guide breaks down the different trial types, what they focus on, and the four phases of the process, so you know what to ask your doctor or research team.

09/02/2025

Want to build strength safely from a seated position? https://bit.ly/465v09X 💪

Coach Damon V shows how the seated adaptive deadlift targets hamstrings, glutes, back, and core—all with a simple hip hinge motion.

Perfect for anyone with limited mobility or starting out on their fitness journey. Start small, feel the stretch, and build your strength step-by-step—just like Anna! 👩🏻‍🦽

Ready to try? Watch and follow along! 👊

Address

3 W Garden Street, Suite 700
Pensacola, FL
32502

Website

Alerts

Be the first to know and let us send you an email when Bionews posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category