ALS News Today

01/16/2026

Faced with stress and brain fog, columnist Juliet Taylor thought that staying on top of things would keep her husband's ALS at bay. https://alsnewstoday.com/columns/stress-caregiving-grief-led-brain-fog-didnt-notice/

Faced with stress and brain fog, columnist Juliet Taylor thought that staying on top of things would keep her husband's ALS at bay.

01/16/2026

Your words matter: http://bit.ly/4jMz1pl

Stories from the ALS community help shape understanding and spark connection.
If you’ve been thinking about sharing your experience, this is an open invitation.

Submit your interest through the form via the link.

01/16/2026

Clene is scheduled to meet with the FDA in the coming months to discuss new data for CNM-Au8, its experimental oral therapy for ALS. https://buff.ly/sQIzajy

Clene is scheduled to meet with the FDA in the coming months to discuss new data for CNM-Au8, its experimental oral therapy for ALS.

01/15/2026

Pallesthesia: https://bit.ly/4myfxFg

Pallesthesia, the sensation of a hum, was one of Dagmar Munn’s earliest ALS symptoms. Here’s how her body still feels when it’s doing its “humming thing.”

01/15/2026

Tell your side: https://bit.ly/3Xk1eJv

01/15/2026

A new approach emerges: https://bit.ly/3NoCi1O

A first in human trial is now underway for NRG5051, an experimental therapy designed to protect mitochondria and potentially slow disease progression in ALS and Parkinson’s. Early testing is focused on safety and dosing, with patient trials planned next.

01/14/2026

Sharing a hard reflection: https://bit.ly/47t5xrZ

Caring for someone with ALS can mean grieving losses that happen slowly over time while your loved one is still right beside you.

01/14/2026

Read the findings: https://bit.ly/4qTBrV9

A study shows a strong geographic association between ALS and multiple sclerosis. Researchers say this pattern points toward possible environmental factors influencing both diseases.

01/14/2026

See how bottles and caps affect ALS patients: https://bit.ly/3ZoCD7T

01/14/2026

Kitchen safety tips: https://bit.ly/4p0uAIi

Practical adjustments and supportive tools can help make cooking and mealtimes safer and more manageable for people living with ALS.

01/14/2026

The first healthy volunteers have been dosed in an early clinical trial testing NRG5051, a disease-modifying therapy for ALS and Parkinson's. https://buff.ly/ypw289G

The first healthy volunteers have been dosed in an early clinical trial testing NRG5051, a disease-modifying therapy for ALS and Parkinson's.

01/14/2026

Understand respiratory changes: https://bit.ly/3LDKIlr

Lung function tests help track how breathing muscles are working over time in ALS. Knowing what each measurement reflects can support clearer conversations with care teams and more informed planning as needs change.