Kiara Day By Day

Kiara Day By Day Mom of 3, taking life day by day. Talking about Chronic illness, parenting, and everything in between.

08/02/2026

5 items for 5th grade!! As a child, my mom took me clothes shopping at the mall every year before school. Prices are not what they were so we don’t do that. This child has NEVER had a real mall school shopping experience. He helped with his younger siblings all summer long and I got a bonus at work so why not spoil my child a little. He definitely deserves it for working hard all summer. We definitely had to put a budget on that cross necklace he’s been begging me for 😂

07/29/2026

Finally home from the hospital and hopeful this new med will keep me out of the hospital and slow the lung disease!!

07/25/2026

I try to hold out showering at the hospital for as long as I can but after 3 days and being told I possibly have another 3 to go just because it takes that long for a test to come back….ugh! I couldn’t wait any longer. And yet another IV I will need and they haven’t even been using it!! But I’ll need it for my final infusion to get out of here. And the hair!!! There’s so much hair loss!! This is every day for the last few weeks now but my lupus markers are normal 🤦‍♀️

07/24/2026

I don’t think I’ve written a poem since high school but this one hit me a few days ago. And I don’t really know how to “perform” poetry so sorry if it sucks.

For the record, I am still hopeful especially after conversations with my drs today about switching me to a medicine called Rituxan.

I wasn’t actually going to post this. But I realized these are real feelings that many of us go through and I wanted to show that I go through them too. You are not alone.

It is ok to feel down and out. It is ok to feel like it’s too much. It’s ok to feel like you want to quit. It’s ok to be “negative”. I literally laugh at people when I hear they call me “negative” all the time. I think I would love for you to go through what I’ve gone through for 17 years starting with a blood clot at 18 years old and see how you feel then. Bitch please! (As we millennials like to say) 😂

The important thing is that you don’t quit. You do what you got to do to keep going. Anyone who knows me really well knows I love the cartoon Bluey. And as mama chilly says when things get tough I have a little cry, then I pick myself up, dust myself off, and keep going! The show must go on!!

Get your cry on, let it out any way you need to, in this instance it was a poem for me, talk to your doctors about how you’re feeling, cry in front of them too it’s ok, and find a new direction together.

You can do this. Much love 💕

07/17/2026

It has taken months of banging down my pulmonologist’s door but I finally have next steps scheduled and happy with what my bloodwork is showing. I guess I’ll keep starting on my oxygen as much as I can and keep up the Tyvaso as best I can.

07/14/2026

He has the sweetest intentions but I fear what the result would be 😂

07/13/2026

What the heck is ITP and why do my doctors think I have it? Let’s discuss immune thrombocytopenia, what it does and why it’s important. Anybody have this? What’s your ongoing treatment.

07/11/2026

Dive in movies are my new favorite part of summer. Water is so warm right now.

07/06/2026

What a great way to celebrate the 4th of July. What was supposed to be a grand resort oasis turned into a vacation from hell.

07/02/2026

Jackass best and last was sooooo funny!! I really miss those days.

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