Our Six Pack with a Twist

Our Six Pack with a Twist Welcome to Our Six Pack with a Twist! We’re just two ordinary parents raising an extraordinary crew.

Dylan (20), Lexie (18), Lily (14), Liam (12), Coen (6), and Hayden (3). Liam and Hayden are rocking an extra chromosome, and Hayden is a heart warrior! Family blog focusing on motherhood, life with Down syndrome, activities for kids, organization, fashion, recipes, travel, and brands we love!

Happy 4th Birthday to my sweet boy! 💙💛 He is truly the toughest person I know. He has overcome so many battles, and just...
11/08/2025

Happy 4th Birthday to my sweet boy! 💙💛 He is truly the toughest person I know. He has overcome so many battles, and just keeps smiling! He is joy personified, and makes this world a better place. Here’s to another year of constant hugs, smiles, and giggles!

Liam’s school picture retake was MUCH better! (Swipe to see the original! 🤣) The first one was a keeper, but we did want...
11/06/2025

Liam’s school picture retake was MUCH better! (Swipe to see the original! 🤣) The first one was a keeper, but we did want another picture for the yearbook! He did bring back his beloved bow tie for picture day yesterday….it’s his signature look, and for a while, he thought bow ties went with everything!

Hurricane Hayden strikes again! I wondered if he would end up with the same hulk-like strength as Liam, and that answer ...
11/04/2025

Hurricane Hayden strikes again! I wondered if he would end up with the same hulk-like strength as Liam, and that answer is yes. This morning, while I was rushing around getting the boys ready for school, this tiny tornado decided to pick up his wooden play market, which happens to be much bigger than he is, and throw it to the ground, like it was nothing. Dozens of wooden fruits, donuts, cookies, and coins scattered all over the room. Such a fun mess to clean up at 8:30 AM, but he is absolutely going to learn how to clean up his path of destruction!

Halloween 2025! 🎃 We all agreed that Halloween is more fun on a Friday! From a morning walk with a friend to Halloween p...
11/03/2025

Halloween 2025! 🎃 We all agreed that Halloween is more fun on a Friday! From a morning walk with a friend to Halloween parties at school to trick or treating to our traditional post-trick-or-treating dinner with Grant’s mom, the day was packed with fun!

Lily did run off with her friends, but Dylan, Lexie, Kai, Lexie’s boyfriend and college friend, and Dylan and Kai’s friends walked with us. Liam only made it to about 10-15 houses, but Coen and Hayden kept going. We had a great group of kids of all ages, and the little kids loved having their older siblings there!

After trick or treating, the young adults headed back to Lexie’s school for Halloween parties, and Lily went to a friend’s house. It was my first Halloween night without my older kids, so I was a bit bummed, but I ended up putting Hayden to bed, and watching a movie with Liam and Coen. It was a good day!

Everybody wants something from me…
10/30/2025

Everybody wants something from me…

Our annual family trip to the pumpkin patch! ❤️ We missed Dylan and Kai, but hopefully they can join us next year. Hayde...
10/29/2025

Our annual family trip to the pumpkin patch! ❤️ We missed Dylan and Kai, but hopefully they can join us next year. Hayden loved the hayride, and kept clapping and saying yay! This was the first year he loved it as much as his brothers. We went through the corn maze, the kids found the perfect family pumpkin to carve, then we rode the hayride back. The little boys played while Grant and Lily bought pumpkins and fudge, then we headed home. I always consider this outing the official start of our holiday season, and I am looking forward to all the time spent with my family!

Liam went to a local farm with his class on Friday, and had a great time! When he took off his shoes after school, corn ...
10/27/2025

Liam went to a local farm with his class on Friday, and had a great time! When he took off his shoes after school, corn kernels went everywhere. We thought we got them all, but when he changed into pajamas, more corn kernels fell out of his clothes! This boy lives life to the fullest! 💙💛

Daily dose of Down syndrome x 2! 💙💛 These two boys are the sweetest, and they love like no other!
10/23/2025

Daily dose of Down syndrome x 2! 💙💛 These two boys are the sweetest, and they love like no other!

My family is dealing with some tough things right now, and I just haven’t had it in me to post. This phase of life just ...
10/20/2025

My family is dealing with some tough things right now, and I just haven’t had it in me to post. This phase of life just feels so overwhelming at times. I’m just trying to focus on all the little things, and the people I love most.

❤️Visits with my two big kids, who no longer live at home. We still see them several times a week!

❤️Many afternoons spent with my mom and dad.

❤️The amount of love that fills our home.

❤️Morning walks and playdates at the park with friends.

❤️My weekly lunch with Lexie at her school.

❤️Celebrating special moments with dear friends.

❤️All the ordinary everyday moments that make me smile!

I always have the best intentions when it comes to Down Syndrome Awareness Month, but then life happens. Maybe that’s th...
10/09/2025

I always have the best intentions when it comes to Down Syndrome Awareness Month, but then life happens. Maybe that’s the point I really want to get across? Our lives didn’t end with a diagnosis. Actually, everyday life didn’t change much at all!

Lily’s first homecoming! From the time she was 2, she had her own style, and that hasn’t changed! She went with a big gr...
10/06/2025

Lily’s first homecoming! From the time she was 2, she had her own style, and that hasn’t changed! She went with a big group of friends, and had a lot of fun. Getting all of them to show up on time for pictures and look at the camera at the same time was a big challenge! 🤣 They were more excited about going to dinner after pictures!

Their smiles rock my world! 💙💛There are 3 types of Down syndrome:Trisomy 21 is the most common type, accounting for abou...
10/04/2025

Their smiles rock my world! 💙💛

There are 3 types of Down syndrome:

Trisomy 21 is the most common type, accounting for about 95% of cases. It occurs when there is an extra copy of chromosome 21 in all cells of the body, and is caused by a random error during cell division.

Translocation Down Syndrome accounts for about 4% of cases, and occurs when part of chromosome 21 breaks off and attaches to another chromosome. This can be inherited from a parent who carries the translocation.

Mosaic Down Syndrome is the rarest type, accounting for about 1% of cases. It occurs when only some of the cells in the body have an extra copy of chromosome 21. It is also a random event that happens after fertilization.

Only 1% of all cases of Down syndrome are hereditary.

There is a belief that there may actually be a higher percentage of people who have mosaic Down syndrome, because the percentage of affected cells can range from very low to very high, and if it’s very low, it can go undetected.

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Our Story

Welcome to Lexie Loo, Lily, Liam & Dylan Too! Motherhood, Down syndrome, Fashion, Lifestyle, Kids Activities, and everything in between. I’m Stefanie, and I live in Pittsburgh with my husband and our four kids. Dylan is 13, Alexandria (Lexie) is 11, Liliana (Lily) is 6 and Liam, who is rocking an extra chromosome, is 4! Four rabbits and a giant English Mastiff puppy round out the chaos! My blog began almost a decade ago when we had two kids, and over the years, my family, and my blog grew. You can also find me over on Pittsburgh moms blog, volunteering for the Down Syndrome Diagnosis Network, running, sipping hot tea, shopping, reading and taking LOTS of pictures. It’s my hope that by sharing my family’s daily adventures, I can show the world what life with Down syndrome is REALLY like!