Our Six Pack with a Twist

Our Six Pack with a Twist Welcome to Our Six Pack with a Twist! We are raising 6 kids, ranging in age from 1-18, including two boys who are rocking an extra chromosome!

Family blog focusing on motherhood, life with Down syndrome, activities for kids, organization, fashion, recipes, travel, and brands we love!

This is the face of a boy who is the target of hatred. Like so many others with Down syndrome, he is ridiculed, he is ju...
08/26/2025

This is the face of a boy who is the target of hatred. Like so many others with Down syndrome, he is ridiculed, he is judged, and his worth is questioned. He may not understand the insults, but his loved ones certainly do.

Our society is so focused on perfection. We focus on having nothing but the best, we focus on beauty, we fill our homes with possessions, and our schedules are overbooked so we can do all the things. Along the way to achieving perfection, we lose sight of what truly matters. Honestly, are most of us even happy? Even those who are celebrated for how they look or what they have are struggling.

Here’s what I want people to know. This boy chooses joy. He chooses love. He works incredibly hard each day to conform to society’s standards, yet he still manages to appreciate all the little things in life. He is content. He is truly happy. Despite the judgement, he loves himself, he loves people, and he loves his life. He is considered less than by so many, but he is the one who has so much more.

As I ran around today, checking things off my to do list and stressing over situations that feel out of my control, I glanced over to see him smiling and looking out the window as he listened to music on his Tonies Box. He just looked so happy and content, and I felt compelled to sit next to him for a few minutes. We looked out the window together, we hugged, and we exchanged grins. Despite the weight of the world on my shoulders, THIS is what matters in the end. THIS is pretty darn close to perfection.

I taught her well! Not only did Lexie take her first day of school sign to college, but she sent pictures by 7:40 AM. Th...
08/25/2025

I taught her well! Not only did Lexie take her first day of school sign to college, but she sent pictures by 7:40 AM. This is a mom win! 🤣 She is officially a college student, and currently at her first class. You’ve got this, Lexie!!!

Shoutout to my bonus kid, Kai, who is also a freshman at SRU. (Kai decided to commute.) Kai and Lexie were so excited to find out they have a class together!

Good luck, Lexie and Kai! I love you both, and I am so proud of you! ❤️

Hayden spent the day searching the house for Lexie. He kept knocking on her door, then getting down on his belly to try ...
08/24/2025

Hayden spent the day searching the house for Lexie. He kept knocking on her door, then getting down on his belly to try to peek under the door. I think he realized that she gave him a hug goodbye on Thursday morning, and hasn’t come back yet. It’s difficult, because he just doesn’t understand where she is. Thankfully, we will get to see her Labor Day weekend! (Just for the record, I missed her so much today, too!) ❤️

They’re going back to school! There are so many changes this year. It’s the first day of high school for Lily, the first...
08/21/2025

They’re going back to school! There are so many changes this year. It’s the first day of high school for Lily, the first day of middle school for Liam, and Coen will be going to school all day. Sending them off was more difficult this year, because Lexie was there to hug each of them goodbye before moving to college. I held it together so well until Coen hesitated before getting on the bus. That quick look of uncertainty sent me over the edge, and Lexie and I were wiping away our tears as the bus pulled away.

Now I have to drive my sweet girl to college, and then drive away without her. All of this on the same day is overwhelming! I am so proud of all of my kids, and I am looking forward to watching them grow! ❤️

It’s the last full day of summer break. Tomorrow, Lily heads to her first day of high school, Liam heads to his first da...
08/20/2025

It’s the last full day of summer break. Tomorrow, Lily heads to her first day of high school, Liam heads to his first day of middle school, Coen goes to school all day, and then we will immediately leave to move our daughter into her college dorm.

Every emotion is present in my house right now, and the tears have been flowing. Lexie has such a bright future, but we are going to miss each other so much. We’re not ready for any of this, but it’s go time.

Today, haircuts are lined up, first day outfits and signs will be sat out, backpacks will be filled, laundry will be finished, a trip to the store for last minute items will occur, and moving boxes will be labeled. We will have the “Thanksgiving” dinner that Lexie chose, start packing the cars, and I can 100% guarantee that crying will happen.

This stage of parenthood is so bittersweet. We loved our summer together, and farewells and new beginnings are difficult. I keep saying we got this, but right now, it just feels impossible.

Happy 12th Birthday to our beautiful Liam! He is so loving and so joyful, and he brightens up the world with that big sm...
08/18/2025

Happy 12th Birthday to our beautiful Liam! He is so loving and so joyful, and he brightens up the world with that big smile. I cannot believe he is 12! ❤️

He is so excited about his birthday! He used a megaphone to get his sisters out of bed so we could sing happy birthday, and eat donuts. We ended up singing twice, because round one did not go well. One candle fell over and blew out, and the other fell on his arm. Clearly, a redo was necessary, and everything was good again!

Hurricane Hayden lately…LOVES:💙Climbing out of his crib💛Running into the bathroom, jumping in the shower fully clothed, ...
08/15/2025

Hurricane Hayden lately…

LOVES:

💙Climbing out of his crib
💛Running into the bathroom, jumping in the shower fully clothed, and turning on the water
💙Playing outside
💛Jumping off furniture
💙Going to therapy
💛Going to school
💙Visiting Papa & Nana
💛Swimming
💙V8 Juice and whatever is in mom’s cup
💛Eggs, sausage, yogurt, and veggie straws
💙Reading
💛Making lots of noise
💙Curling up with the big dog and chasing the little dog
💛Pulling down the curtains and hand towels
💙Singing and dancing
💛Throwing toys
💙Hanging out with his siblings
💛Exploring

DISLIKES:

🚫Napping
🚫Being told no
🚫Any drink other than his juice or mom’s drink
🚫Most foods (and it changes weekly)
🚫Getting dressed
🚫Getting out of the pool
🚫Being restrained in public
🚫Wearing shoes
🚫Getting strapped into his car seat
🚫Waiting for food
🚫Getting out of the tub

As you can tell, he likes to do things his own way these days!

Shortly after Liam was born, an article I wrote was picked up Yahoo News, and it went viral. Most of the comments were o...
08/13/2025

Shortly after Liam was born, an article I wrote was picked up Yahoo News, and it went viral. Most of the comments were overwhelmingly positive, but there were also those comments that were just plain disgusting or made by keyboard warriors who were experts on everything, including my own life. One comment always stuck with me. It said that Liam’s siblings would suffer and have a miserable childhood, and when they became adults, they would run away and never come back.

As my kids grew up together, I realized that was so far from the truth. We did all the things every other family did. Each of our kids had their own activities, and we supported them fully, as a family. I watched this amazing bond grow between all my kids, and at times, I honestly felt a bit jealous, because I don’t have that bond with my own siblings. My older kids grew into these amazing human beings, who have touched the hearts of many. Having siblings with disabilities taught them so many beneficial lessons, and they learned about unconditional love. Having siblings with disabilities turned them into BETTER human beings. I whole-heartedly believe that, and the compliments that I still receive about two of my now adult children prove that!

Nearly 12 years have passed since we were introduced to the world of Down syndrome. My oldest child did move out, as is the natural progression of life, but guess what? He still visits several times a week, and loves his siblings like no other. Lexie will be moving out in a week, to embark on her college journey, and while excited, she is also so sad. She isn’t just leaving behind her home and parents, but she is leaving behind the siblings she protected for 14 years - the siblings she loves fiercely, and feels lost without their presence. Lexie has a promising future. She has always been a fierce advocate about human rights, and I guarantee she is going to carry her knowledge about and experience with disabilities into her future career.

If the world had more unconditional love and acceptance, it would be a better place! ❤️

“They are always so happy!” That’s what we usually hear when people find out we have children with Down syndrome. Althou...
08/11/2025

“They are always so happy!” That’s what we usually hear when people find out we have children with Down syndrome. Although that level of joy is like no other, I can ASSURE you that my 2 boys with Ds experience every single emotion. They just tend to choose happy, and that happiness is contagious!

Middle School visitation for Liam last night! I truly can’t believe he is going to be a 7th grader. This transition is t...
08/08/2025

Middle School visitation for Liam last night! I truly can’t believe he is going to be a 7th grader. This transition is the toughest one so far for me. HE doesn’t seem to mind one bit! Middle school is just tough for a lot of kids, but it is extra worrisome when your child has a disability and limited expressive speech. I’m just holding on to the thought that he has a lot of peers in both 7th and 8th grade watching out for him!

When the little kids leave the slip ‘n slide, the big “kids” come out to play!
08/04/2025

When the little kids leave the slip ‘n slide, the big “kids” come out to play!

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Our Story

Welcome to Lexie Loo, Lily, Liam & Dylan Too! Motherhood, Down syndrome, Fashion, Lifestyle, Kids Activities, and everything in between. I’m Stefanie, and I live in Pittsburgh with my husband and our four kids. Dylan is 13, Alexandria (Lexie) is 11, Liliana (Lily) is 6 and Liam, who is rocking an extra chromosome, is 4! Four rabbits and a giant English Mastiff puppy round out the chaos! My blog began almost a decade ago when we had two kids, and over the years, my family, and my blog grew. You can also find me over on Pittsburgh moms blog, volunteering for the Down Syndrome Diagnosis Network, running, sipping hot tea, shopping, reading and taking LOTS of pictures. It’s my hope that by sharing my family’s daily adventures, I can show the world what life with Down syndrome is REALLY like!