Nova’s Journey GFPD warrior

05/24/2023

Missing you so much Nova love 💜💜

01/09/2023

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View Nova Socobasin's obituary, send flowers and find service dates or sign the guestbook.

01/08/2023

Our Nova love became our forever angel on 1/6/23. Our girl was exhausted and just couldn’t continue fighting anymore. Her love and strength shined through during her whole last hospital stay.
We miss our littlest love so much already but we know she is no longer in pain and suffering.
Our girl was always trapped in a body that just didn’t work for her.
We know she is now walking and running circles around everyone, talking all their ears off and eating all her favorite foods that she’s missed so much.
We haven’t never met a stronger little girl in our life. She was truly a warrior and now my inspiration.
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12/25/2022

Merry Christmas! Love you all 💜💜

12/17/2022

This! I feel this!
From the day we sat and received the news of Nova’s diagnosis in 2020, to every regression of hers, in and out of the hospital literally this whole year. The first biggest regression happening in January 2022.
The regression hit so hard and so fast, literally smacking us in the face and shattering our hearts. That was just the beginning. Through this year we’ve literally watched our girl just fade to a little girl she is not!
Where is our little girl that laughed at everything, scooted around under everyone’s feet to the point of almost tripping over her, in your face all the time knowing no personal space, throwing every single thing out of cupboards, the loudest one in every room and DROOL…drool everywhere and LOVE, she absolutely loved with her all!
WIth the sadness of her regression we also got to enjoy every milestone she succeeded. Hand eye coordination, fine motor skills, pulling herself out of her walker (I’ve never seen a child do that), eating with a spoon, being able to see wearing glasses, hearing our voices with her hearing aides, climbing up and down onto the couch, pulling herself up to stand, and strong…her strength was incredible and also speaking some words. Mama, dada, bubba, aba and rara…all the words that meant the most to her!
Every hospital stay Nova shows more regression, there’s always more heartbreaking news, and ends up with a new baseline for her. Each and every time she needs to go to the hospital it just rips all of us apart knowing she’ll be coming home with a new plan, new struggles and possibly new equipment.
We got to have the best of Nova, the best she could be and we cherish her very single second!
With all that being said, I’ve got to say that we’ve had the best team of drs, nurses and support system. From the day we received her diagnosis all the way until each and every time she’s hospitalized. We seriously have the best! We never feel alone, unheard, disrespected or unsupported.
We are a very lucky family and an even more luckiest precious little girl!

12/15/2022

Tonight!!!! 💜💜

12/10/2022

Update on our Nova love….

Tube is out! Dr is keeping a close eye on her cause he said it could go either way, keep the tube out or possibly back in but she’s doing ok right now. His concern is her weak muscles for her airway. Her lungs are great, it’s just the airway part. She’s on oxygen and has a nasal catheter in for suctioning so they’re not going down her throat as frequent. A respiratory therapist is close and will be with her all day.

Neurologically our brain tells our body everything it needs to do. Unfortunately Nova’s brain doesn’t have the capacity to do that for her little body, which makes things a little more complicated. Along with weak muscle tone as she’s losing that all over as well. Her disorder attacks neurologically which is causing the deterioration of her brain, as we seen more of in her MRI results yesterday. So right now her airway doesn’t open all the way like it normally should so it’s a struggle for her. We are hoping that changes but we will be patient and see. She has just had the most traumatic 3 days ever so hopefully she will settle down and fight to get as better as she can be.
Everyone please keep praying for our littlest love! 💜💜

12/06/2022

Look at miss nova go!!! Lots of movement and making noises. Best sight and sound ever!! She does so amazing in her chair 💜💜

11/29/2022

This giving Tuesday we ask that you donate $23 for a successful 2023! Funds donated through our Give for OUR Families fundraiser will go toward building better family programs, research, advocacy efforts, and more for our and their families. We appreciate your generosity and support of our GFPD Community!
https://www.facebook.com/donate/424737669859332/

   

11/27/2022

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