Emma Noel's Journey

10/06/2025

Could you say a prayer for Emma! Her central line and granulation tissue is really bothering her!! She turned into a ninja warrior intent on taking out her line!! Emanuel syndrome/autism really had her in warrior mode.. nothing I did or her calming meds didn’t work.. she finally fell asleep around 8 am with thanks to her gloves and weighted blankets.. I’ve had an hour of sleep.. thank god, dad got off early to drive to her Drs apt.. I’m so very tired and stressed, my blood pressure has been back a couple weeks, really need to get to my Dr.. thanks for the prayers..

09/22/2025

Emma’s broken bed has been replaced with a very nice very big(bariatric) hospital bed!! We wanted her to be able to move around and for cuddles.. she’s not sure so sure about the air mattress. lol what a huge blessing and another worry checked off.. this bed is from an Angel mom.. we are very grateful.. 💝🙏
Tomorrow starts my final 3 days of training.. so exhausted from reaaranging and the meet and greet. We got along really well.. so pray for me.. it’s 3 10 hour days.. lol

Does anyone know about air mattresses. Should I turn off stage 5. Emma doesn’t have any pressure sores..

09/18/2025

So we’ve had a little secret.. we entered a contest for back up power and won.. a film crew comes to your house.. we were all a nervous wreck.. not so happy about my weight lol but am over Joyed with the results.. So for your viewing pleasure! lol 😭💝🫶

"What keeps Joy hopeful for Emma’s future when her mini ER loses power?Six years fighting rare gastric malrotation and total intestinal failure never broke E...

09/17/2025

Who’s crying!! Love my girl!!

09/16/2025

Just reading and napping!! Can you believe she’s been on TPN for 2 yrs now!!

09/10/2025

09/06/2025

Florida peeps do I want to sign emma up for the ICMC program?

09/06/2025

Sign the petition

09/05/2025

Super sweetness!! When lipgloss is life!! lol