08/25/2025
Honest Monday!! Emma hates her broviak! I don’t know if it’s Emanuel syndrome or autism! But some days she wakes up and waged war with it and me.. my sweet baby girl isn’t always so sweet! Some days she’s full blown ninja!! And the twinning we do, sometimes isn’t fun anymore because she’s so controlling lol I love my girl more than life! I wish she would just calm down so we can enjoy life.. maybe I need to take her back to neurology. Then her Gi dr is on me. We have to get her off TPN, because one day it will kill her! Gee freaking thanks Doc!! Like it doesnt play like a loop in my head or when u let her get to 53 pounds and starving!! I’m doing my best and my best isn’t good enough! Today emma chose war and I chose to Sob like a crazy person through all of it!!
I’m just like pleading with God and life to calm down!! Probably be heading for a new central line soon, hers has a cherry at the bottom and u can feel the abundment!
Could you please pray for her.. pray for me.. this life, intestinal failure is very hard!! Love my girl more than life!! I just want to go back to normal days!!
