Allie Wheelz

11/25/2025

Incredible news for the SMA community! Novartis has received FDA approval for Itvisma® (onasemnogene abeparvovec-brve)—a new SMA treatment option bringing greater independence and new possibilities for individuals living with SMA.

This is a meaningful step forward in our collective mission to address the critical unmet needs of older individuals living with SMA while empowering families with more options for care.

Learn more about this exciting development and what it means for individuals and families impacted by SMA: https://www.curesma.org/novartis-receives-fda-approval-of-itvisma-for-the-treatment-of-sma/

11/24/2025

Happy Gobble Gobble y’all.

11/24/2025

The weather forecast should just say “pain with a chance of attitude.”

11/24/2025

Not everyone’s gonna like me.

11/24/2025

Small reminder, I am in fact part of the lgbtqia if that is something that makes you uncomfortable, you may unfollow me

11/23/2025

11/23/2025

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11/23/2025

My mobility aid is just a prop. I'm the main character.

11/23/2025

He looks at me.

11/22/2025

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11/22/2025

I want to take a moment to clear something up because this is a real learning moment about poverty and how we talk about people who rely on food assistance.

Every human on Earth deserves food. That is not an opinion. That is a basic human right. No one stops being human because we do not like their choices. Eating is a need, not a privilege reserved for people we approve of.

A lot of people say things like “If they sold their food stamps they must not need them” or “If they can afford a dog they can afford food.” This is a misunderstanding of how poverty works. Selling food stamps usually means someone is desperate for cash for things SNAP does not cover. Toiletries. Cleaning supplies. Diapers. Transportation. Medical needs. Survival does not fit neatly into one category.

Many people had pets long before they fell into hardship. Poverty does not mean you give up every source of comfort or companionship. It means you are struggling inside a system that leaves very little room to breathe.

If we want real change we have to start with compassion. Poverty is not a character flaw. It is a situation people are trying to survive.

Let this be a reminder to look deeper, learn more, and lead with empathy every time.