Rare Visibility

Rare Visibility Lexie | Chronic Illness Awareness 🎗️
MCAS | POTS | EDS | GP | SFN +
📧 [email protected]

A little look into what brain fog can feel like and how it can impact your daily life 🌥️Chronic conditions also affect t...
08/29/2025

A little look into what brain fog can feel like and how it can impact your daily life 🌥️

Chronic conditions also affect the brain! A lot of those who struggle with chronic pain or any chronic condition also experience cognitive difficulties, or brain fog 🧠

Symptoms are different for everyone, but some of the most common symptoms are ⤵️

☁️ Inability to focus
☁️ Forgetting things often
☁️ Making frequent mistakes
☁️ Easily overwhelmed
☁️ Being indecisive
☁️ Inability to find words
☁️ Struggling to multitask
☁️ Difficulty following conversations
☁️ Feeling spaced out
☁️ Slow to process thoughts
☁️ Anxiety & Nervousness
☁️ Feeling disoriented

It’s a real symptom of mental illness, chronic illness, neurodivergence and it’s exhausting.

If this is your daily normal, I see you.

You’re not broken. You’re doing your best with a foggy brain in a world that expects clarity 24/7. 🫶🏼

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Gentle reminders for the days you forget your worth 🤍Here are your reminders:✨ Your softness is not a weakness.✨ It’s ok...
08/28/2025

Gentle reminders for the days you forget your worth 🤍

Here are your reminders:

✨ Your softness is not a weakness.
✨ It’s okay if all you did today was survive.
✨ You are not a burden for needing support.
✨ You are still lovable when you feel like a mess.
✨ Progress isn’t always visible, but it’s still real.
✨ You don’t have to “fix” yourself to be worthy.
✨ You can fall apart and still be whole.
✨ Your symptoms do not define your personality.
✨ You’re allowed to choose peace over pressure.
✨ Tired eyes and messy hair is still beautiful.
✨ Your appearance does not determine your value.
✨ Your symptoms are valid, even when they’re invisible.

You’re doing better than you think and you’re allowed to be exactly as you are. 🫶🏼

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Invisible illnesses are not imaginary.WHAT YOU SEE:✨Smiling in photos.✨Going out with friends.✨Posting online.✨Working a...
08/28/2025

Invisible illnesses are not imaginary.

WHAT YOU SEE:
✨Smiling in photos.
✨Going out with friends.
✨Posting online.
✨Working a job or attending school.
✨Running errands.
✨Exercising.
✨Acting “normal.”
✨Saying “I’m fine.”
✨Holding conversations.
✨Showing up on good days.
✨Keeping busy.
✨Being productive.
✨Having hobbies.

WHAT YOU DON’T SEE:
💭Collapsing in bed afterward.
💭Painful flare-ups.
💭Panic attacks in silence.
💭Cancelled plans from exhaustion.
💭Overthinking every symptom.
💭Brain fog that makes simple tasks hard.
💭Crying behind closed doors.
💭The guilt of not doing enough.
💭Doctors’ visits & medical bills.
💭Sleepless nights.
💭Mental burnout.

Just because someone looks like they’re “doing fine” doesn’t mean they aren’t carrying battles you’ll never see.

Invisible illnesses are real.
The struggles are real.

And the strength it takes to keep showing up every day? That’s real too. 🤍

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Some of the worst things about living with an invisible illness 💭• Constantly having to prove you’re actually sick• Feel...
08/27/2025

Some of the worst things about living with an invisible illness 💭

• Constantly having to prove you’re actually sick
• Feeling guilty for canceling plans… again
• People assuming you’re lazy or dramatic
• Doctors that dismiss everything as “stress”
• The constant grief of missing your “old self”
• Flare-ups ruining everything last minute
• Smiling through symptoms so you don’t freak people out
• Being told “but you don’t look sick”
• Waking up more exhausted than you went to bed
• Feeling like your personality is buried under symptoms
• The pressure to explain when you just want to exist
• The loneliness that no one sees

If you relate to any of these, you’re not alone. Invisible illness doesn’t make you invisible.

Your experience is valid, even if others can’t see it. 🤍

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➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!)

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It’s okay if you… (Chronic Illness Edition) 🤍✨It’s okay if you cancel plans last minute because your body said nope.✨It’...
08/26/2025

It’s okay if you… (Chronic Illness Edition) 🤍

✨It’s okay if you cancel plans last minute because your body said nope.

✨It’s okay if you spend more time resting than “being productive.”

✨It’s okay if you struggle to remember things or form words on bad flare days.

✨It’s okay if you don’t have a diagnosis yet (or are still figuring it out).

✨It’s okay if you say “I’m not okay today” even if you were okay yesterday.

✨It’s okay if you feel frustrated, sad, or angry about your reality.

✨It’s okay if you need more time to recover after doing simple things.

✨It’s okay if you wake up exhausted no matter how much you sleep.

✨And it’s okay if you avoid explaining your condition every single time.

Chronic illness is hard enough, you don’t need to carry guilt on top of it.

You’re doing the best you can, and that is more than enough.

Tag someone who needs this reminder today + save this if it resonates with you 🫶🏼

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➡️ Follow for more chronic illness + invisible illness posts
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Things I Think But Rarely Say (Chronic Illness Edition) 💭These thoughts pop up more often than I care to admit… and I kn...
08/26/2025

Things I Think But Rarely Say (Chronic Illness Edition) 💭

These thoughts pop up more often than I care to admit… and I know I’m not the only one.

✨ “What if I never get better?”
✨ “Is this pain normal… or something new?”
✨ “I wish I had the energy to do normal things.”
✨ “They say I look fine… but I’m barely holding it together.”
✨ “Is it worth explaining, or will they just dismiss me?”
✨ “How do I keep pretending I’m fine all the time?”

If you’ve ever had even one of these thoughts, please know:

You’re not dramatic.
You’re not weak.

You’re just dealing with way more than most people see. And you don’t have to carry it all alone.

If this resonates, drop a comment or share a thought you rarely say out loud. You never know who it might help feel seen. 🤍

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➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!) 🫶🏼

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Signs of medical burnout you may not realize you have & that are very prevalent in the chronic illness community 🪫 Medic...
08/20/2024

Signs of medical burnout you may not realize you have & that are very prevalent in the chronic illness community 🪫

Medical burnout is real, and if you feel this way, you are not alone.

If I’m going to be transparent with you, a lot of these things I’m experiencing right now. Don’t feel like you’re alone & please reach out to me if you need someone to talk to!🫶🏼

So many people, especially in the chronic illness community, end up feeling overwhelmed and burnt out with how much their lives revolve around their health 🔄

Signs of medical burnout ⤵️
♦️ overwhelmed
with upcoming appointments
and tests
♦️ difficulty finding motivation to go to the doctor
♦️ feeling hopeless instead of optimistic
♦️ you begin canceling or rescheduling appointments
♦️ Finding yourself wanting to give up on treatment plans and meds
♦️ feeling as if appointments are useless
♦️ feeling depleted after doctors appointments
♦️ increased depression, anxiety and isolation
♦️ You begin to stop advocating for yourself as much as you did before

Hey guys it’s Lexie (Rare Visibility)! I just wanted to let you all know that I started a digital marketing business! I ...
08/20/2024

Hey guys it’s Lexie (Rare Visibility)!

I just wanted to let you all know that I started a digital marketing business!

I decided to start this journey because my chronic illnesses make it hard for me to work full time hours.

I decided I wanted to share my journey with you guys and let you know that if you are interested in learning how you can also make money online selling digital products, DM me on here or Instagram (link in bio) and I will walk you through how I got started and teach you everything you need to know!

Thank you guys for supporting my journey & I hope to hear from you.❤️

Invisible illnesses aren’t always completely invisible 🙌🏻When someone has a chronic illness, there will always be little...
08/15/2024

Invisible illnesses aren’t always completely invisible 🙌🏻

When someone has a chronic illness, there will always be little signs here and there to look out for ⬇️

🤍 Using mobility aids and medical devices
🤍 Sitting down more frequently than most
🤍 Taking several different medications
🤍 Needing to take many breaks
🤍 Taking things slower than others
🤍 Going to the doctor frequently
🤍 Blood pooling, shakiness, fainting
🤍 Sweating, flushing, color changes
🤍 Checking vital signs while out frequently
🤍 Staying home most days of the week
🤍 Cancelling plans due to unexpected symptoms
🤍 Struggling to focus and concentrate on things

What are some signs of your invisible illness that may need noticeable to others? 💖

Chronic illness myths & the truth behind them 🙌🏻⬇️🚫 Everyone is affected the same by a certain illness. ✅ Same diagnoses...
08/12/2024

Chronic illness myths & the truth behind them 🙌🏻⬇️

🚫 Everyone is affected the same by a certain illness.
✅ Same diagnoses does not equal same experience.

🚫 You can tell if someone is sick or disabled just by looking at them.
✅ While some illnesses are visible, some are invisible. You can’t always see a disability.

🚫 We get used to our chronic illnesses with time.
✅ Being chronically ill never gets easier with time.

🚫 If someone has a chronic condition, they did it to themselves.
✅ We did not cause our illnesses and we can not do anything to change it.

What are some other myths or misconceptions that you have heard regarding chronic illnesses & disabilities? ⬇️

Chronic Illness Affirmations 🤍🌟 My body is capable of healing🌟 I am greatful for my body🌟 Asking for help is not weaknes...
08/08/2024

Chronic Illness Affirmations 🤍

🌟 My body is capable of healing
🌟 I am greatful for my body
🌟 Asking for help is not weakness
🌟 I am at peace with my illness
🌟 I learn from my pain & illness
🌟 I am more than the pain i feel
🌟 I am not defined by my illness
🌟 This journey makes me stronger
🌟 My life is full of comfort & purpose
🌟 I will handle my emotions with care
🌟 I am a warrior, not a victim
🌟 I choose to focus on what i can control

If you are anything like me, I struggle with being kind to myself, my body, and my mind - especially on the days that are more tough than others.

We need to learn to be kind to not only our bodies, but also our minds 🫶🏼

Being tired is NOT the same thing as being fatigued 🪫Fatigue is absolutely debilitating and impacts all aspects of daily...
08/07/2024

Being tired is NOT the same thing as being fatigued 🪫

Fatigue is absolutely debilitating and impacts all aspects of daily living and comes with more symptoms than just being tired 🗣️

Being tired ⤵️
🙌🏻 Being able to recover after resting your body
🙌🏻 Being able to push through high impact activities
🙌🏻 Feeling rested after a full night of sleep
🙌🏻You can pinpoint a reason why you are tired
🙌🏻 Your body still works & you can still move your body freely - you are just tired

Being Fatigued ⤵️
🙌🏻 Tackling the day feels impossible
🙌🏻 Not feeling recovered after rest or a night of sleep
🙌🏻 Impacts your daily living & sometimes comes without a cause or warning
🙌🏻 Feels like you have bricks weighing you down
🙌🏻 Not able to push through daily activities - body starts to give out

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