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Rare Visibility, Tampa, FL (2025)

11/10/2025

Things that are not “being negative”, and instead simply being honest when it comes to our life with a chronic illness ⬇️

✨ Being honest about your symptoms: the good, the bad & the ugly!

✨ Saying you are disabled or chronically ill

✨ Talking about and opening up about your illness journey

✨ Saying your illness is chronic and incurable (just the truth!)

✨ Opening up about your mental health struggles

✨ Setting boundaries to protect your health

So often we are accused of being “negative” or pessimistic, when in all reality we are just being honest 🤍

11/07/2025

Living with a chronic illness means constantly fighting invisible battles that most people will never see.

These are just a few things we wish others understood:

✨our symptoms may not always be visible, but that doesn’t make them any less real
✨just because we could do something yesterday doesn’t mean we can do it today
✨we cancel plans to take care of ourselves, not because we don’t care
✨when we say we are tired, it’s not the same tired that you are used to
✨sometimes “i am okay” really means “i am trying my best to hold it together”
✨we are not seeking attention, we are seeking understanding and patience
✨listening without judgement is one of the kindest things you can do
✨our illness doesn’t define us, but it does shape how we move through life daily
✨we are constantly balancing what we want to do and what we actually can

If you love someone with a chronic illness… patience, compassion, and empathy goes further than you realize. 🤍

11/06/2025

Accepting and coming to terms with the fact that you are chronically ill or disabled is one of the hardest things to do 🤎

It is so difficult to simply come to terms with the word “chronic” and understand that this is our life forever and we have to learn how to manage and deal with it.

Some reasons why accepting a chronic illness is so hard ⬇️

☁️ You have little control over your life, your body and how you feel
☁️ Never knowing when new symptoms or medical problems will arise
☁️ Needing to change how you live your daily life
☁️ Remembering and grieving who you were before your illness and your old life
☁️ Imagining what your life would be like if you were not sick
☁️ Society and ableism making us feel inadequate or less worthy

Everyone’s reasonings are different, but please be patient and understanding to those walking through life with a chronic illness, even if you don’t fully understand 💗

11/05/2025

Things that living with a Chronic Illness has taught me 🤍

🌸 It it not selfish to prioritize yourself and your needs
🌸 You can’t tell how someone is feeling by how they appear
🌸 Advocating for yourself is so important
🌸 Asking for help does not mean you are weak
🌸 Mental health is just as important as physical health

Sometimes the hardest things you go through in life are the things that teach you the most. 🙌🏻

What’s something that your chronic illness has taught you? ⬇️

11/05/2025

Gentle reminders for the days you forget your worth 🤍

Here are your reminders:
✨ Your softness is not a weakness.
✨ It’s okay if all you did today was survive.
✨ You are not a burden for needing support.
✨ You are still lovable when you feel like a mess.
✨ Progress isn’t always visible, but it’s still real.
✨ You don’t have to “fix” yourself to be worthy.
✨ You can fall apart and still be whole.
✨ Your symptoms do not define your personality.
✨ You’re allowed to choose peace over pressure.
✨ Tired eyes and messy hair is still beautiful.
✨ Your appearance does not determine your value.
✨ Your symptoms are valid, even when they’re invisible.

You’re doing better than you think and you’re allowed to be exactly as you are. 🫶🏼

10/31/2025

Things that are “spooky” about having a chronic illness 👻

There are lots of things that a chronic illness brings that can cause fear, for example ⤵️

🧡 Not knowing how you are going feel on any given day. One day you could wake up feeling great, but the next day you could be in a huge flare up.

🧡 Hoping a doctor will take you seriously. Often when you have a chronic illness, you will find that a lot of doctors will not take you seriously or they will dismiss you or downplay your symptoms. It can take a lot of “doctor hopping” to find a good fit.

🧡 Never knowing if new symptoms are something serious or just.. well new daily chronic symptoms to add to the list.

🧡 Fear of losing friends, becoming isolated and being judges or not believed by others.

🧡 Fearing that you will continue to get worse/condition will continue to decline.

🧡 Fearing trying new meds and treatments due to negative side effects. Often times the side effects are worse than the symptoms themselves and it’s a frustrating process.

08/29/2025

A little look into what brain fog can feel like and how it can impact your daily life 🌥️

Chronic conditions also affect the brain! A lot of those who struggle with chronic pain or any chronic condition also experience cognitive difficulties, or brain fog 🧠

Symptoms are different for everyone, but some of the most common symptoms are ⤵️

☁️ Inability to focus
☁️ Forgetting things often
☁️ Making frequent mistakes
☁️ Easily overwhelmed
☁️ Being indecisive
☁️ Inability to find words
☁️ Struggling to multitask
☁️ Difficulty following conversations
☁️ Feeling spaced out
☁️ Slow to process thoughts
☁️ Anxiety & Nervousness
☁️ Feeling disoriented

It’s a real symptom of mental illness, chronic illness, neurodivergence and it’s exhausting.

If this is your daily normal, I see you.

You’re not broken. You’re doing your best with a foggy brain in a world that expects clarity 24/7. 🫶🏼

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➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!)

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08/28/2025

Gentle reminders for the days you forget your worth 🤍

Here are your reminders:

✨ Your softness is not a weakness.
✨ It’s okay if all you did today was survive.
✨ You are not a burden for needing support.
✨ You are still lovable when you feel like a mess.
✨ Progress isn’t always visible, but it’s still real.
✨ You don’t have to “fix” yourself to be worthy.
✨ You can fall apart and still be whole.
✨ Your symptoms do not define your personality.
✨ You’re allowed to choose peace over pressure.
✨ Tired eyes and messy hair is still beautiful.
✨ Your appearance does not determine your value.
✨ Your symptoms are valid, even when they’re invisible.

You’re doing better than you think and you’re allowed to be exactly as you are. 🫶🏼

-

➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!)

-

08/28/2025

Invisible illnesses are not imaginary.

WHAT YOU SEE:
✨Smiling in photos.
✨Going out with friends.
✨Posting online.
✨Working a job or attending school.
✨Running errands.
✨Exercising.
✨Acting “normal.”
✨Saying “I’m fine.”
✨Holding conversations.
✨Showing up on good days.
✨Keeping busy.
✨Being productive.
✨Having hobbies.

WHAT YOU DON’T SEE:
💭Collapsing in bed afterward.
💭Painful flare-ups.
💭Panic attacks in silence.
💭Cancelled plans from exhaustion.
💭Overthinking every symptom.
💭Brain fog that makes simple tasks hard.
💭Crying behind closed doors.
💭The guilt of not doing enough.
💭Doctors’ visits & medical bills.
💭Sleepless nights.
💭Mental burnout.

Just because someone looks like they’re “doing fine” doesn’t mean they aren’t carrying battles you’ll never see.

Invisible illnesses are real.
The struggles are real.

And the strength it takes to keep showing up every day? That’s real too. 🤍

-

➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!)

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08/27/2025

Some of the worst things about living with an invisible illness 💭

• Constantly having to prove you’re actually sick
• Feeling guilty for canceling plans… again
• People assuming you’re lazy or dramatic
• Doctors that dismiss everything as “stress”
• The constant grief of missing your “old self”
• Flare-ups ruining everything last minute
• Smiling through symptoms so you don’t freak people out
• Being told “but you don’t look sick”
• Waking up more exhausted than you went to bed
• Feeling like your personality is buried under symptoms
• The pressure to explain when you just want to exist
• The loneliness that no one sees

If you relate to any of these, you’re not alone. Invisible illness doesn’t make you invisible.

Your experience is valid, even if others can’t see it. 🤍

-

➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!)

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08/26/2025

It’s okay if you… (Chronic Illness Edition) 🤍

✨It’s okay if you cancel plans last minute because your body said nope.

✨It’s okay if you spend more time resting than “being productive.”

✨It’s okay if you struggle to remember things or form words on bad flare days.

✨It’s okay if you don’t have a diagnosis yet (or are still figuring it out).

✨It’s okay if you say “I’m not okay today” even if you were okay yesterday.

✨It’s okay if you feel frustrated, sad, or angry about your reality.

✨It’s okay if you need more time to recover after doing simple things.

✨It’s okay if you wake up exhausted no matter how much you sleep.

✨And it’s okay if you avoid explaining your condition every single time.

Chronic illness is hard enough, you don’t need to carry guilt on top of it.

You’re doing the best you can, and that is more than enough.

Tag someone who needs this reminder today + save this if it resonates with you 🫶🏼

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➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!)

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08/26/2025

Things I Think But Rarely Say (Chronic Illness Edition) 💭

These thoughts pop up more often than I care to admit… and I know I’m not the only one.

✨ “What if I never get better?”
✨ “Is this pain normal… or something new?”
✨ “I wish I had the energy to do normal things.”
✨ “They say I look fine… but I’m barely holding it together.”
✨ “Is it worth explaining, or will they just dismiss me?”
✨ “How do I keep pretending I’m fine all the time?”

If you’ve ever had even one of these thoughts, please know:

You’re not dramatic.
You’re not weak.

You’re just dealing with way more than most people see. And you don’t have to carry it all alone.

If this resonates, drop a comment or share a thought you rarely say out loud. You never know who it might help feel seen. 🤍

-

➡️ Follow for more chronic illness + invisible illness posts
(pstt.. you’re not alone!) 🫶🏼

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Rare Visibility

11/10/2025

11/07/2025

11/06/2025

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11/05/2025

10/31/2025

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