SMA News Today

SMA News Today Your source for spinal muscular atrophy news, support, & real stories from the community. Let’s raise SMA awareness together!🎗️

SMA News Today is a leading online health, science, and research publication, focused on delivering daily news and information about SMA to those affected by the disease, as well as providing first-hand perspectives from members of the patient community. Our news and information articles are written by a dedicated team of science writers, curated, fact-checked, and edited by a team of PhD research

ers and experienced journalists whose sole focus is ensuring our news and information is accurate, timely, relevant, and easy to understand. Our columns are written by SMA patients and caregivers who provide an intimate look at what it’s like to live with SMA. Their stories offer a realistic first-hand account of various aspects of the disease, in addition to providing inspiration and hope to our patient communities. We also offer audio content, such as The Spinal Muscular Atrophy Podcast, hosted by SMA patient Kevin Schaefer. SMA News Today also hosts forums, where members of the community can connect with one another.

Discover more: https://bit.ly/4nDKrNrDid you know that a lack of sleep can contribute to loss of muscle strength? Take a...
07/22/2025

Discover more: https://bit.ly/4nDKrNr

Did you know that a lack of sleep can contribute to loss of muscle strength? Take a look at how impaired sleep can further complicate SMA’s issues here: https://bit.ly/4mxywAa

A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, it...
07/21/2025

A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, its developer says. https://buff.ly/Qj1RQrS

Could an asthma medication help with SMA? https://bit.ly/46ClufhSalbutamol, a medication often used for asthma, is showi...
07/21/2025

Could an asthma medication help with SMA? https://bit.ly/46Clufh

Salbutamol, a medication often used for asthma, is showing promise for children with SMA. Recent research suggests it may help improve upper limb strength and breathing, especially in younger kids. For families in regions where newer treatments aren’t available, salbutamol could offer a safe, affordable option worth discussing with your care team.

How often do you exercise or stretch with SMA? https://bit.ly/4lsgUoI 💪 From daily routines to physical therapy challeng...
07/20/2025

How often do you exercise or stretch with SMA? https://bit.ly/4lsgUoI 💪

From daily routines to physical therapy challenges, members of the SMA community are opening up about what works for them — and why staying active matters. Whether it’s pool therapy, gentle stretches, or home exercises, every bit helps! Share your routine or tips and connect with others on the journey.

Join the conversation in our forums.

07/19/2025

How’s the weather where you are? Is it posing any SMA-related challenges?

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in di...
07/18/2025

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in disability pride. https://buff.ly/l3Rtcvt

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for g...
07/18/2025

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for genetic counseling. https://buff.ly/ndWaErq

🌟 Exciting news for the SMA community: https://bit.ly/4nFUiSZ🔬New research suggests that a high-carb diet might improve ...
07/18/2025

🌟 Exciting news for the SMA community: https://bit.ly/4nFUiSZ

🔬New research suggests that a high-carb diet might improve metabolism for people with SMA. Because those with SMA often struggle to use fats for energy, adding more carbohydrates could help restore balance. While further studies are needed, this discovery offers fresh hope for better care and quality of life.

We’re committed to keeping you informed with the latest updates—together, we move forward.

🌈 Creating safe spaces matters https://bit.ly/3Iz2Nz2 — especially where LGBTQ+ and Disability Pride meet. In this movin...
07/17/2025

🌈 Creating safe spaces matters https://bit.ly/3Iz2Nz2 — especially where LGBTQ+ and Disability Pride meet.

In this moving column, our columnist Sherry Toh shares how coming out to their doctors brought unexpected relief and support, reminding us that acceptance in healthcare can be life-sustaining. As we celebrate Disability Pride Month, let’s remember the power of compassion and understanding for all.

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA di...
07/16/2025

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA diagnosis. https://buff.ly/rgOF5wy

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