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The Pink Easel

Coach to neurocolorful humans who want to live shame-free | Psychological Safety Trainer

30/06/2024

This is Llama. Her name was Luna, but she isn't quite fancy enough for that... And she looks like a llama so...

I recently read that research is showing Autistic people as preferring interactions with animals over humans.

Seems legit 🤣

04/03/2024

I'm purposefully excluding a large part of the Autism community in my research.

I will include Autistic people who represent the 'typical' diagnosis of Autism (as stated by DSM-5) and are formally diagnosed.

I will NOT include Autistic people who

- experience autism in ways that doesn't match the dx version

- are very good at masking and coping, therefore they are now later in life and wouldn't really be served by a formal dx

- don't have access to healthcare

- are treated by a doctor who has an outdated and misinformed understanding of autism

- are treated by a doctor who doesn't believe their patients' ability to recognize their own challenges

- is part of a historically marginalized community who struggles with systemic obstacles in healthcare

- doesn't have the money to fund the formal dx process

TLDR: Any Autistic person who is not formally diagnosed ⬆️

This is a point of extreme contention and frustration that I have argued with my professor about at length.

Here's the annoying truth:

The focus of my research is arguing the ethical requirements of advertisers to consider Autistic consumers in their practices.

This is a relatively new topic in research and I want to get it published so we can continue to build on it.

Formal autism diagnosis are accepted by the academic community, while self-dx are not.

Using self-dx Autistics in my research would make it harder to publish because of the 'self-dx is not valid' argument.

My long term solution is to continue working alongside others to argue the need to include self-dx Autistics in research - otherwise we're not getting the full picture.

My short term solution is to work within the constraints I'm given - and throwing fits along the way.

Charlie Bear went on her first camping trip in 3 years and had the best weekend. ❤️🐾

What did you do this weekend?

28/01/2024

My professor listed the rules for the use of AI in our class - essentially, don't do it.

I raised my hand and asked how this rule applied to digital accessibility tools and accommodations built in AI.

While I was asking specifically for me in that moment, because...panic.

Looking back, there wasn't a solid answer for that.

The departments guidelines were pretty much not to use it.

That critical thinking is built outside of AI and that's why we're in a grad program.

As an AuDHD person who uses AI as part of my accommodations a lot,

I would argue that, especially in education, rules around AI should be created with accessibility in mind.

25/01/2024

I complete my PhD application, Charlie gets a treat.

23/01/2024

I live in constant anxiety about time.

The allistic world revolves around time, dates, deadlines....

These things are worshiped - maybe you've noticed.....

I, an AuDHD human, do *not* experience time the way someone who is not Autistic or not ADHD does.

So much so that it's hard for me to explain how time feels in comparison to how they might experience it - because I can't conceive it.

Much like they can't conceive my experience.

I have the timers, the calendar reminders, the Slack automations, etc.

but none of these things will change my neurotype. It is what it is.

I exist in a constant state of anxiety trying to make myself understand and conform to a version of time I just can't wrap my head around.

Maybe it's time for a two way street.

20/01/2024

I opened the truancy notice email.

I deleted the truancy notice email.

I am very clear with the attendance officer at my daughter's school.

See sends me the emails saying that we've used 5 of the 6 'unexcused' absences

and we need to prove the absences are 'valid' (i.e., provide a doctor's note) or they will continue to count against us.

I send her the response with my practiced and pretty worn-out statement telling her that I understand their policy,

but a doctor is not the support my daughter needs on her sick days. Therefore, we will not be able to prove her state of well-being according to your standards.

She says, "Thanks for letting me know" and we do it all again next time 😅🙄

Pretty sure I don't need to describe here the problems of that structure of absence validation and the gaping supporr holes it leaves for the disabled community.

Oh, and does truancy end up taking you to court? 👩‍⚖️ Asking for a friend....

(I mean - at least truancy is no longer a criminal offense 🤷‍♀️)

22/12/2023

Relistening to this fav. What are you reading right now?

14/12/2023

Y'all. Today is the day 😳

Thesis proposal defense to the committee and Chair at 10am (I will finally know if my 6 months of research and argument development is approved/what changes need to be made to start quantitative research in Feb.),

then submission of my thesis abstract to The Association for Education in Journalism and Mass Communication Midwinter Conference (if accepted, I get to argue my thesis at the University of Oklahoma in March),

then 15 min presentation of social insights data and query structure for my Social Insights final,

then submission of 10 page final research paper for Global Comm

then, I will be curled into a little ball of tired and happy under my desk if you need me...

30/11/2023

When you're arguing for the 'should' of equitable access to and participation in the marketplace for the disability community,

starting with advertising ethics,

sometimes you need extra blemish dots the same color as the gallons of coffee you're drinking to keep making progress. 🖤☕

Who is getting on Zoom with me to let me talk thesis to you so I can finish this proposal by like...yesterday 🫢😅

Send help.

21/11/2023

What if this place could decrease early death in neurodivergent communities?

Think neuro-inclusive community center, bookshop, artist's corner....

A safe place to share your creativity, be in community with others, learn about being a neurodivergent entrepreneur....

😍😍😍

I'm working to build this space not only online, but irl.

Did you know safe community decreases su!cide in neurodivergent humans by almost 30%?

Did you know creating your passion/business and sharing can decrease su!cide in neurodivergent humans by almost 20%?

So, whoever is in for $1,500/mo, I found the perfect space 😉🙃

My DMs are open just in case... 😅🫣

17/11/2023

💙💙

06/11/2023

9 minutes and the passing of my grandmother is currently what is tanking my grade.

There isn't anything I can do about it.

I did finally submit my grandmother's obituary (again) as 'required documentation for an excused absence',

which I am finding to be re-traumatizing, morbid, and, honestly, completely ridiculous.

But, I digress.

Let's talk about the 9 minutes.

According to the participation rubric, if I am 3 minutes late the highest grade I can receive for the entire 3 hour class is a 60%.

I'd like to preemptively recognize and set aside the outdated arguments saying things like

'Tardiness proclaims to the world that you don't know how, or don't want to manage your time'

'Punctuality makes you look good, it means you plan for contingencies'

'Tardiness shows ineptitude, punctuality shows intelligence'

'Being late is rude. It's tell the people around you their time isn't as important as yours'

I won't engage in all the ways these are problematic, I think most of you are pretty aware.

Moving on...

I have a service animal named Charlie Bear.

I am Autistic.

I have ADHD.

None of these are excuses.

All of these are things that make those 3 minutes a little different for people who experience the world similar to me

than for people who experience the world in a more neurotypical way.

I would argue that it's a responsibility of our existence to do our best to recognize and attempt to understand that others experience the world vastly differently than we might

and just maybe those 3 minutes aren't me telling you that my time is more important than yours,

rather,

my service animal had an unexpected p**p and I forgot her p**p bag pouch was empty so I had to go back to the car to find one and then back to pick up her p**p while worrying that someone thinks I am leaving her p**p there like a terrible service animal handler and now they hate me.

Or, ya know, a myriad of other issues that come with executive functioning limitations, aggressive anxiety, and PTSD. 😅😳

Anyway...thank you for coming to my TED talk.

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Website

https://stan.store/chelseaempowers

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