My Journey With Ehlers Danlos Syndrome

  • Home
  • My Journey With Ehlers Danlos Syndrome

My Journey With Ehlers Danlos Syndrome What is EDS? Its so different for so many of us. This is my story of hypermobile Ehlers Danlos. The struggles, the medical let downs, and the victories!

10/09/2025

♡ this
26/08/2025

♡ this

✨️All great news at my Neurosurgeon today! Placement is perfect (pic is blurry .. oops) and I can now be collar free (wi...
06/08/2025

✨️All great news at my Neurosurgeon today! Placement is perfect (pic is blurry .. oops) and I can now be collar free (with rest, no 80s headbanging yet!)

I am cleared and good to go; thank you Dr Drake and team!

Civic Hospital 🏥 bound to see my Neurosurgeon Dr Drake. Let's see what my spine looks like now, and get this neck collar...
05/08/2025

Civic Hospital 🏥 bound to see my Neurosurgeon Dr Drake. Let's see what my spine looks like now, and get this neck collar off! 👏💕😎

Great information here
02/08/2025

Great information here

Today is my littlest 19th birthday! Time flies ♡ Happy Birthday Kenzy Lee xxoo
01/08/2025

Today is my littlest 19th birthday!
Time flies ♡ Happy Birthday Kenzy Lee xxoo

?!?!?!
30/07/2025

?!?!?!

30/07/2025
Love these 2! ♡
28/07/2025

Love these 2! ♡

12/03/2024

12/03/2024

Address


Website

Alerts

Be the first to know and let us send you an email when My Journey With Ehlers Danlos Syndrome posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to My Journey With Ehlers Danlos Syndrome:

Shortcuts

  • Want your business to be the top-listed Media Company?

Share